2008-2009 Guide to Services for Persons with disAbilities in Delaware Delaware Health and Social Services Division of Services for Aging and Adults with Physical Disabilities www.dhss.delaware.gov/dsaapd State of Delaware Office of the Governor Ruth Ann Minner, Governor Dear Friends: As I travel across our state, I meet many residents with disabilities who are role models for all of us. These individuals lead active, independent lives, and they contribute in many ways to the quality of life we enjoy here in the First State. That is why I am pleased to introduce this free resource guide for Delaware residents with disabilities. This comprehensive guide provides vital information about services, programs, and resource facilities that we offer throughout our state to benefit Delawareans with disabilities. This information is also readily available on the Internet at www.dhss.delaware.gov/dsaapd. The Division of Services for Aging and Adults with Physical Disabilities publishes this guide, advocates for those with disabilities, and is committed to providing the best services and programs available to those in need. Our employees and service providers are always available to help, so I encourage you to reach out to them if you are in need of their services. This guide can help us provide additional support to those with disabilities and their families. By working together and gathering all of our best resources, we can make a difference in the lives of our fellow Delawareans. Sincerely, Ruth Ann Minner Governor At your service... Delaware's Division of Services for Aging and Adults with Physical Disabilities Delaware Health and Social Services' Division of Services for Aging and Adults with Physical Disabilities is committed to improving the quality of life for adults through community-based services, advocacy and partnerships. We provide a broad range of direct services, which are described on the following pages. In addition, we fund many additional services through Delaware social service agencies. The agencies providing these services are also listed in this directory. This Division's programs and services are funded by the Older Americans Act, the Social Services Block Grant, the Medicaid Waivers for Elderly and Physically Disabled and Assisted Living, and state appropriations. In addition, numerous partnerships with community organizations enable us to enhance the quality and diversity of the services we provide to Delaware residents. We are proud of our long-standing role as advocates at the state and federal levels on behalf of the residents we serve, which has enabled Delaware to be a leader in providing a continuum of high-quality, community-based services. DELAWaRE HEALTH AND SOCIAL SERVICES Division of Services for Aging and Adults with Physical Disabilities Dear Delaware Resident: The services and programs listed on the following pages are a remarkable testimonial to the many individuals and organizations in Delaware that work every day to improve the quality of life for persons with physical disabilities. Our Division is one of these organizations as a provider of direct consumer services through our staff of experienced and professional employees. We also fund many services provided by the community-based organizations in this publication. Funding for our services and programs is provided by the Older Americans Act, the Social Services Block Grant, Medicaid Waivers for Elderly and Physically Disabled and Assisted Living, and appropriations by the state of Delaware. We invite you to visit our popular Internet site, www.dhss. delaware.gov/dsaapd for the contents of this guide and information about all of our other services. Sincerely, The Dedicated Staff of the Division of Services for Aging and Adults with Physical Disabilities Accessibility These agencies can answer questions about the Americans with Disabilities Act (ADA) requirements for accessible facilities and available devices/approaches to make houses and facilities accessible. Several of these agencies also sell or loan assistive devices, such as ramps, communication devices and mobility aids. Adaptive Environments 610-326-3247 • adaptiveenvironments.com Architectural Accessibility Board Department of Administrative Services Division of Facilities Management 159 Transportation Circle, Dover, DE 19901 302-739-5644 Accessibility Delaware Assistive Technology Initiative (DATI) Central Site and New Castle County Assistive Technology Resource Center University of Delaware and duPont Hospital for Children Center for Applied Science and Engineering 1600 Rockland Road, Room 200 P.O. Box 269, Wilmington, DE 19899 www.dati.org Voice: 800-870-DATI (in-state only) Voice: 302-651-6790 TTY: 302-651-6794 Delaware/Maryland AgraAbility 22317 DuPont Highway Georgetown, DE 19947 877-204-3276 Delaware Division for the Visually Impaired 1901 N. DuPont Highway, Biggs Building New Castle, DE 19720 302-255-9800 • 302-424-7240 Call for a copy of their Resource Guide Delaware/Maryland Paralyzed Veterans 28 Peddlers Row Christiana, DE 19702 302-368-4898 Easter Seals Home Accessibility Assessments 800-677-3800 Hearing Loss Association of Delaware 2400 W. 4th Street, Wilmington, DE 19805 302-292-3066 Statewide Coalition for the Americans with Disabilities Act (SCADA) 800-949-4232 Total Access and Mobility 124 Turner Lane West Chester, PA 19380 877-333-5438 www.totalaccessco.com Universal Design (accessible) Builders in Delaware: Bay to Beach Builders 302-349-5099 Disabatino Construction 302-227-1812 Green Diamond Builders 302-677-1818 TAPA Homes 800-918-8272 Tull Ramey Ltd. 302-628-5232 www.tullramey.com Advocacy These agencies can assist with advocating for the rights of persons with disabilities, explaining public policy and proposed legislation, or teaching persons with disabilities self-advocacy skills. AARP 1100 N. Market Street, Wilmington, DE 19801 866-227-7441 or 888-687-2277 www.aarp.org/de ADAPT 24 South Old Baltimore Pike, Newark, DE 19702 302-453-8537 Addictions Coalition of Delaware 100 W. 10th Street, Suite 112 Wilmington, DE 19801 302-984-2322 AIDS Delaware 100 W. 10th Street, Suite 315, Wilmington, DE 19801 302-652-6776 302-226-5350 Alliance for the Mentally Ill in Delaware (NAMI Delaware) 2500 W. 4th Street, Suite 5 Wilmington, DE 19805 302-427-0787 and 888-427-2643 Alzheimer’s Association, Delaware Chapter 2306 Kirkwood Highway, Wilmington, DE 19805 302-633-4420 800-272-3900 American Cancer Society 92 Reads Way, New Castle, DE 19720 302-324-4227 American Diabetes Association 100 W. 10th Street, Suite 1002 Wilmington, DE 19801 302-656-0030, 888-DIABETES American Lung Association 1021 Gilpin Avenue, Wilmington, DE 19806 302-655-7258, 800-586-4872 Arthritis Foundation 1019 S. Governor's Ave., Dover, DE 19904 302-730-9000, 888-730-9008 800-283-7800 (national hotline) Advocacy Association for the Rights of Citizens with Mental Retardation (ARC/DE) 1016 Centre Road, Suite 1 Wilmington, DE 19805 302-996-9400, 302-856-6019 Autism Society of Delaware 5572 Kirkwood Highway, Wilmington, DE 19808 302-472-2638 and 800-328-8476 www.delautism.org Asperger’s Network of Delaware 302-455-9515 pegpry@verizon.net (e-mail) Brain Injury Association of Delaware 32 W. Loockerman St., Suite 103, Dover, DE 19904 302-346-2083, 800-411-0505 www.biausa.org/delaware/bia.htm Center for Disability Studies University of Delaware 461 Wyoming Road, Newark, DE 19716 302-831-6974 www.udel.edu/cds Children and Adults with Attention Defi cit Disorders (CHADD) 15 Cottonwood Drive, Newark, DE 19702 302-737-5063 Client Assistance Program (offers assistance to Division of Vocational Rehabilitation clients) 700 A River Road, Wilmington, DE 19809 254 E. Camden Wyoming Ave., Camden, DE 19934 302-764-2400 302-698-9336 and 800-640-9336 Council on Deaf Equality (CODE) O’Neill Building 410 Federal Street, Dover, DE 19901 302-739-3621 Delaware Association for the Blind 800 West Street, Wilmington, DE 19801 302-655-2111, 888-777-3925 Delaware Association for Non-Profit Agencies (DANA) 100 W. 10th Street, Wilmington, DE 19801 302-777-5500 Delaware Breast Cancer Coalition 100 W. 10th Street, Wilmington, DE 19801 302-778-1102 Delaware Coalition Against Domestic Violence 302-658-2958 and 800-701-0456 Delaware Council on Gambling Problems 100 W. 10th Street, Suite 303, Wilmington, DE 19801 302-655-3261 888-850-8888 Delaware Department of Labor Division of Vocational Rehabilitation Office for the Deaf and Hard of Hearing P.O. Box 9969, Wilmington, DE 19809 302-761-8275 V/TTY 302-739-7902 V/TTY Advocacy Delaware Division for Developmental Disabilities Services (DDDS) Director's Office 1056 S. Governor's Avenue, Suite 101 Dover, Delaware 19904 302-744-9600, 302-836-2100, 302-933-3000 800-552-5758 Delaware Early Childhood Center Mispillion and West Streets, Harrington, DE 19952 302-398-8945 Early Choices Centers: 701 E. Basin Road, New Castle, DE 19720 302-323-5370 21 The Green, Dover, DE 19901 302-739-4557 Stockley Center, Rt. 1 Box 1000 Georgetown, DE 19947 302-856-5909 Delaware Homes and Services for the Aging Westminister Village 1175 McKee Road, Dover, DE 19904 302-774-3508 Delaware Division of Substance Abuse and Mental Health (DSAMH) 1901 N. DuPont Highway, New Castle, DE 19720 302-255-9399 Delaware Mental Health Consumer Coalition 100 W. 10th Street, Suite 409, Wilmington, DE 19801 302-654-7455 Delaware People First ARC of Delaware 1016 Centre Road, Suite 1, Wilmington, DE 19805 302-996-9400 Delaware Program for Deaf-Blind Children 620 E. Chestnut Hill Road, Newark, DE 19713 302-454-2301 Developmental Disabilities Council (Partners in Policymaking Advocacy training) O’Neill Building 410 Federal Street, Suite 2, Dover, DE 19901 302-739-3333 www.ddc.delaware.gov Down Syndrome Association of Delaware 1016 Centre Road, Suite 1, Wilmington, DE 19805 302-995-1004 Early Intervention Family Forum Delaware Health and Social Services Division of Management Services, Main Building 1901 N. DuPont Highway, New Castle, DE 19720 302-255-9135 Easter Seals - Delaware and Maryland’s Eastern Shore 61 Corporate Commons Blvd., New Castle, DE 19720 302-324-4444 100 Enterprise Place, Suite 1, Dover, DE 19904 302-678-3353 Georgetown Professional Park, Suite 100 22317 DuPont Highway, Georgetown, DE 19947 302-856-7364 Old Town Hall Center 1415 Pulaski Highway, Newark, DE 19702 302-834-0190 113 Pencader Drive, Newark, DE 19702 302-709-0865 Advocacy Educational Surrogate Parent Program 900 King Street, Wilmington, DE 19801 302-255-1740 Epilepsy Foundation of Delaware 240 N. James Street Wilmington, DE 19804 302-999-9313 and 800-422-3653 Family Voices (for children with special health care needs) 302-697-1976 302-286-6673 Freedom Center for Independent Living 400 N. Broad Street, Middletown, DE 19709 302-376-4399 www.fcilde.org Governor’s Advisory Council for Exceptional Citizens (GACEC) 516 W. Loockerman St., Dover, DE 19904 302-739-4553 Hearing Loss Association of Delaware 2400 W. 4th Street, Wilmington, DE 19805 302-292-3066 www.hlade.org Homeless Planning Council 100 W. 10th Street, Wilmington, DE 19801 302-654-0126 www.hpcdelaware.org Independent Resources Inc. 6 Denny Road, Suite 205, Wilmington, DE 19809 302-765-0191 32 W. Loockerman Street, Suite 102, Dover, DE 19904 302-735-4599 31038 Country Gardens Blvd., Dagsboro, DE 19939 302-732-9500 Latin American Community Center 403 N. Van Buren Street, Wilmington, DE 19805 302-655-7338 www.thelatincenter.org Leukemia and Lymphona Society of America 100 W. 10th Street, Wilmington, DE 19801 302-661-7300, 800-220-1617 Lupus Foundation of America, Delaware Chapter 100 W. 10th Street, Suite 1015, Wilmington, DE 19801 302-622-8700 Mental Health Association of Delaware 100 W. 10th Street, Suite 600, Wilmington, DE 19801 302-654-6833 and 800-287-6423 www.mhainde.org Muscular Dystrophy Association 1003A Lincoln Drive West, Marlton, NJ 08053 856-810-0800, 888-484-7072 (Kent and Sussex Co.) National Kidney Foundation of the Delaware Valley 325 Chestnut Street, Suite 725 Philadelphia, PA 19106 800-697-7007, 215-923-8611 National Multiple Sclerosis Society, Delaware Chapter 2 Mill Road, Suite 106, Wilmington, DE 19806 302-655-5610 Advocacy Parent Information Center of Delaware (PIC/DE) 5570 Kirkwood Highway, Wilmington, DE 19808 302-999-7394, 888-547-4412 www.picofde.org State Council for Persons with Disabilities (SCPD) O’Neill Building 410 Federal Street, Suite 1, Dover, DE 19901 302-739-3621 United Cerebral Palsy of Delaware 700-A River Road, Wilmington, DE 19809 302-764-2400, 302-335-5626 Alcohol/Substance Abuse Services These agencies provide assistance to persons with substance abuse concerns. There may be a fee for these services. Contact your health insurance provider for the services and agencies covered under your health plan. Addictions Coalition of Delaware 100 W. 10th Street, Wilmington, DE 19801 302-984-2322 Aquila (for adolescents) 2110 Duncan Road, Wilmington, DE 19808 302-999-1106 6 N. Railroad Avenue, Georgetown, DE 19947 302-856-1734 AA Recovery Program 21-B Delaware Avenue, Trolley Square Wilmington, DE 19806 302-655-5113 302-736-1567 (answering machine only) 302-856-6452 (answering machine only) Brandywine Counseling Inc. 2713 Lancaster Avenue, Wilmington, DE 19805 302-656-2348 Catholic Charities 2601 W. 4th Street, Wilmington, DE 19805 302-655-0651, 302-674-1600, 302-856-9578 Connections Community Support Programs 500 W. 10th Street, Wilmington, DE 19801 302-984-3380 and 866-477-5345 Alcohol/Substance Abuse Services Delaware Association for Children of Alcoholics (DACOA) 2601 W. 4th Street, Suite 228, Wilmington, DE 19805 302-656-5554 Kent County Counseling Services 1525 Lebanon Road, Rte. 10, Dover, DE 19901 302-735-7790 Kent/Sussex Detoxification 302-422-8338 Latin American Community Center 403 N. Van Buren Street, Wilmington, DE 19805 302-655-7338 Open Door 3301 Green Street, Claymont, DE 19703 302-798-9555, 302-731-1504, 302-678-4911 Pace Inc. 5171 W. Woodmill Drive, Wilmington, DE 19808 302-999-9812 People’s Place II 213 S. Walnut Street, Milford, DE 19963 302-422-8033 People’s Settlement Association 408 E. 8th Street, Wilmington, DE 19801 302-658-4133 SODAT Counseling and Evaluation Center 625 Orange Street, 2nd ?oor, Wilmington, DE 19801 302-656-4044, 800-551-6464 Sussex County Counseling Services 20728 N. DuPont Blvd., Georgetown, DE 19947 302-854-0172, 302-877-0444 Thresholds Inc. 20505 DuPont Blvd., Georgetown, DE 19947 302-856-1835 University of Delaware Psychological Services Training Center Belmont Hall, 203 W. Main Street, Newark, DE 19716 302-831-2717 YMCA Resource Center 100 W. 10th Street, Wilmington, DE 19801 302-571-6975 Assisted Living Facilities Assisted living facilities provide a combination of housing, personal services, and health care. NEW CASTLE COUNTY Arden Courts ManorCare 700½ Foulk Rd. Wilmington, DE 19803 302-762-7800 Cokesbury Village 726 Loveville Road Hockessin, DE 19707 302-234-4444 Eden Rock 2210 Swiss Lane Wilmington, DE 19810 302-475-9400 Forwood Manor Assisted Living 1912 Marsh Road Wilmington, DE 19810 302-529-1601 Foulk Manor North 1212 Foulk Rd. Wilmington, DE 19803 302-478-4296 Foulk Manor South 407 Foulk Road Wilmington, DE 19803 302-655-6249 Gardens at White Chapel 200 E. Village Rd. Newark, DE 19711 302-366-8100 Ingleside Homes Assisted Living 1605 N. Broom Street Wilmington, DE 19806 302-984-0950 The Lorelton 2200 W. Fourth St. Wilmington, DE 19805 302-573-3580 Methodist Country House 4830 Kennett Pike Wilmington, DE 19807 302-654-5101 Millcroft Assisted Living 255 Possum Park Road Newark, DE 19711 302-366-0160 Rockland Place 1519 Rockland Rd. Wilmington, DE 19803 302-777-3099 Shipley Manor Assisted Living 2723 Shipley Road Wilmington, DE 19810 302-479-0111 Somerford 501 S. Harmony Rd. Newark, DE 19713 302-266-9255 Somerford Place 4175 OgletownStandon Road Newark, DE 19713 302-283-0540 Sunrise Assisted Living 2215 Shipley Road Wilmington, DE 19810 302-475-9163 Windsor Place 6677 Lancaster Pike Hockessin, DE 19707 302-239-3200 Personalized Assisted Living 6677 Lancaster Pike, Hockessin, DE 19707 (302) 239-33200 Assisted Living Facilities KENT COUNTY Green Meadows at Dover 150 Saulsbury Road Dover, DE 19904 302-674-4407 Heritage at Dover Assisted Living Community 1203 Walker Road Dover, DE 19904 302-735-8800 Delaware Veterans Home Assisted Living 100 Delaware Veterans Blvd. Milford, DE 19963 302-424-6000 State Street Assisted Living 21 N. State Street Dover, DE 19901 302-674-2144 Westminster Village 1175 McKee Road Dover, DE 19904 302-744-3558 SUSSEX COUNTY Brandywine Assisted Living at Seaside Pointe 36101 Seaside Blvd. Rehoboth Beach, DE 19971 302-226-8750 Cadbury at Lewes 17028 Cadbury Circle Lewes, DE 19958 302-645-0937 Heritage at Milford 500 S. DuPont Boulevard Milford, DE 19963 302-422-8700 Methodist Manor House 1001 Middleford Road Seaford, DE 19973 302-629-4593 Peach Tree Acres 26900 Lewes Georgetown Hwy. Harbeson, DE 19951 302-684-4002 Seaford Center 1100 Norman Eskridge Hwy. Seaford, DE 19973 302-629-3575 Stockley Center Assisted Living 26351 Patriots Way Georgetown, DE 19947 302-933-3000 Village of Green Valley 231 S. Washington St. Millsboro, DE 19966 302-934-7300 We help older Delawareans with questions about transportation, legal and medical issues, counseling, housing...and more! Call us. New Castle County: Jewish Family Services (302) 478-9411 Kent County: Modern Maturity Center (302) 734-1200 Sussex County: CHEER Center (302) 854-9500 Case Management DHSS Division of Services for Aging and Adults with Physical Disabilities Community Services Program (CSP) provides social workers who can visit older persons and adults with physical disabilities in their homes and help to develop a plan to assist the person in the community. For more information, call: DHSS Division of Services for Aging and Adults with Physical Disabilities New Castle County ................... 302-453-3820 Kent/Sussex County .................... 302-424-7310 Statewide Toll Free ..................... 800-223-9074 The Client Assistance Program (CAP), a program of United Cerebral Palsy of Delaware, assists consumers in accessing federal benefi ts and advocating on their behalf for work-related issues. Client Assistance Program (CAP) 700 N. River Road, Wilmington, DE 19809 302-764-2400, 302-698-9336, 800-640-9336 Other organizations within the state also provide case management and assessment of needs services. The following are private case management agencies: IKOR Quality Care Consultants Yorklyn, DE 19736 302-489-3100 Life Solutions, Inc. 504 West 9th Street Wilmington, DE 19801 302-622-8292 Senior Partner, Inc. Box 1908 Wilmington, DE 19899 302-425-4001 Senior Social Services 800 Windsor Ave. Wilmington, DE 19804 302-998-7603 Supportive Care Services 507 West 9th Street Wilmington, DE 19801 302-655-5518 Counseling/Mental Health Services These agencies offer individual mental health counseling. Contact your health insurance provider for the services and agencies covered under your health plan. Also, call the Mental Health Association at 800-287-6423 for a copy of their “Mental Health Community Resources Directory.” CareLink 100 W. 10th Street, Suite 601, Wilmington, DE 19801 302-429-6693 Catholic Charities 2601 W. 4th Street, Wilmington, DE 19805 302-655-0651 302-856-9578 Connections CSP 500 W. 10th Street Wilmington, DE 19801 302-984-3380 and 866-477-5345 Delaware Health and Social Services Division of Substance Abuse and Mental Health 1901 N. DuPont Hwy. New Castle, DE 19720 302-255-9399 Counseling/Mental Health Services Community Mental Health Centers 302-453-4104 (Newark) 302-577-6490 (Wilmington) 302-739-4275 (Dover) 302-856-5490 (Georgetown) Department of Veterans Affairs 1601 Kirkwood Highway, Wilmington, DE 19805 302-994-2511 800-827-1000 (V.A. Benefi ts/Claims) Family Counseling Services Claymont Community Center 3301 Green Street, Claymont, DE 19703 302-792-2757 Horizon House Delaware 500 S. Madison Street, Wilmington, DE 19801 302-655-7108 Jewish Family Service of Delaware 99 Passmore Road, Wilmington, DE 19803 302-478-9411, 302-286-1402 Newark Family Counseling Center P.O. Box 5505, Newark, DE 19711 302-368-6895 Open Door 3301 Green Street, Claymont, DE 19703 302-798-9555, 302-731-1504, 302-678-4911 People’s Place II 1131 Airport Road, Milford, DE 19963 302-422-8026 and 302-730-4479 Phoenix Mental Health of Dover 567 S. Governors Avenue, Dover, DE 19904 302-736-6135 Psychotherapeutic Community Services 630 W. Division Street, Dover, DE 19904 302-674-3366 Emergency Numbers - Crisis Intervention and Hotlines AIDS Hotline ............................800-422-0429 CONTACT Delaware ................302-761-9100 800-262-9800 Crisis Intervention, Suicide Prevention, Mental Health.....800-652-2929 800-345- 6785 Delaware Coalition Against Domestic Violence....800-701-0456 Delaware Gambling Hotline ......888-850-8888 Family Violence Hotline ............302-762-6110 Mobile Crisis Unit .....................800-345-6785 Poison Information Hotline ........800-722-7112 Rape Crisis ..............................302-761-9100 800-262-9800 Runaway and Homeless Youth Hotline....302-654-0808 302-734-7748 Education Here is a listing of colleges and universities in Delaware that offer degree and continuing education programs: Delaware State University 302-857-6000 Delaware Technical and Community College 302-857-1081 Goldey-Beacom College 800-833-4877 University of Delaware 302-831-2741, 302-855-1630 Wesley College 302-328-7616, 302-736-2400 Widener University 302-477-2000 Wilmington University 302-328-9407 Emergency Response Systems (ERS) An emergency response system is a device that can signal your need for immediate emergency help and/or assistance from previously identified family members, neighbors, or your local 911 response team. The following companies offer installation and monitoring of ERS systems in your home or apartment. There is a one-time cost for installation and monthly costs to maintain the system. Call these companies for more specific information, including costs. LifeAssure 800-685-5252 LifeLine 800-543-3546 Link To Life 800-892-4901 Medic Alert 800-432-5378 Response Link 302-456-9012 302-644-6990 Employment These agencies offer employment training and placement services for persons with disabilities. ARC/DE 1016 Centre Road Wilmington, DE 19805 302-996-9400 302-856-6019 Carelink Community Support Services 100 W. 10th Street Wilmington, DE 19801 302-429-6693 Chimes Delaware 514 Interchange Blvd. Newark, DE 19711 302-452-3400 800-9-CHIMES CLIMB to EMPLOYMENT (benefits counseling) Call the DVR office closest to you: 302-761-8275 302-368-6890 302-739-5478 302-856-5730 Delaware Association of Rehabilitation Facilities (DELARF) 100 W. 10th Street Wilmington, DE 19801 302-622-9177 Delaware Department of Labor, Division of Vocational Rehabilitation www.delawareworkforce.com • 4425 N. Market Street P.O. Box 9969 Wilmington, DE 19809 302-761-8275 • Appoquinimink State Service Center 122 Silver Lake Road Middletown DE 19709 302-378-5779 • Pencader Office Park 190 Executive Drive Newark DE 19702 302-368-6980 • Carroll’s Plaza 1114 DuPont Highway, Suite 105 Dover, DE 19901 302-739-5478 • Georgetown Professional Park 600 N. DuPont Hwy, Suite 212 Georgetown, DE 19947 302-856-5730 Disabled Veterans Outreach (Delaware Department of Labor) 302-761-8085 or 302-368-6622 or 302-739-5473 or 302-856-5230 Delaware Health and Social Services Division for the Visually Impaired (DVI) 1901 N. DuPont Highway New Castle, DE 19720 11-13 S.W. Front Street Milford, DE 19963 302-255-9800 302-424-7240 Easter Seals - Delaware and Maryland’s Eastern Shore 61 Corporate Circle New Castle, DE 19720 100 Enterprise Place, Suite 1 Dover, DE 19904 504 W. Market St. Georgetown, DE 19947 302-324-4444 302-678-3353 302-855-9815 Elwyn Delaware 321 E. 11th Street Wilmington, DE 19801 302-658-8860 Employment First State Project with Industry 1007 N. Market Street Suite DG-8 Wilmington, DE 19801 302-774-4559 Goodwill Industries of Delaware and Delaware County 300 E. Lea Blvd. Wilmington, DE 19802 302-761-4640 Kent Sussex Industries 301 N. Rehoboth Blvd. Milford, DE 19963 302-422-4014 Opportunity Center Inc. 3030 Bowers Street P.O. Box 254 Wilmington, DE 19899 302-762-0300 Salvation Army 400 W. Market Street Wilmington, DE 19801 302-656-1696 302-856-7145 302-628-2020 Financial Assistance/Consumer Counseling These agencies will assist consumers who are in financial debt in establishing a debt management plan and offer fi nancial planning options for family members with special needs. Consumer Credit Counseling Service 2055 Limestone Rd., Suite 212, Wilmington, DE 19808 302-996-9004, 800-642-2227 Debt Council for Seniors and the Disabled 800-992-3275 (if your only income is Social Security, disability, pension or VA benefits, call for legal advice.) Delaware Community Reinvestment Advisory Council (DCRAC) 601 N. Church St., Wilmington, DE 19801 302-654-5024 Delaware Cooperative Extension Service 461 Wyoming Avenue, Newark, DE 19716 302-831-2667 69 Transportation Circle, Dover, DE 19901 302-730-4000 16483 County Seat Highway, Georgetown, DE 19947 302-856-7303 Delaware Money School (free classes statewide) 800-642-2227 Division of State Service Centers 1901 N. DuPont Highway, New Castle, DE 19720 302-255-9500 (see map of Delaware state service centers - next page) DELAWARE ASSISTIVE TECHNOLOGY LOAN FUND DELAWARE TELEWORK EQUIPMENT LOAN FUND For persons seeking a loan to purchase assistive technology such as home modifications, vehicle modifications, communication devices, sensory aids and adapted computer equipment. Also, the Telework Loan Fund can provide a loan for equipment and modifications so a person can work from home or another remote location. Contact the Delaware Assistive Technology Initiative at 302-651-6790 or email dati@asel.udel.edu or go to the web at www.dati.org/funding/index.html. Delaware CarePlan Inc. 1016 Centre Road, Wilmington, DE 19805 302-633-4000 If you have a family member with special needs and are concerned about who will care for these needs when you are no longer able to do so, meet with the Delaware CarePlan staff to develop a long term plan. Financial Assistance/ Consumer Counseling MetLife Financial Services 111 Continental Drive, Newark, DE 19713 302-781-1055 Financial Planner Diann Jones specializes in estate planning for special kids. Also, see www.metlife.com for a series of brochures related to financial planning and persons with disabilities. TELEPHONE SERVICE DISCOUNTS Telephone service discounts for low-income persons - contact LifeLine Assistance and Link-Up America at www.lifelinesupport.org. You are eligible for LifeLine in Delaware if you participate in any of these programs: Food Stamps, LIHEAP (energy assistance), Medicaid, Section 8 Housing Assistance, SSI, TANF, free lunch program. Call 302-255-9659 for more information. Government Programs See www.Delaware.gov for a listing of online Delaware government services and information. See www.benefits.gov or call 800-FED-INFO for federal government benefits information. MEDICAID DHSS’ Division of Social Services administers the Medicaid Program (also known as Medical Assistance or Title XIX of the Social Security Act). This is a federal/ state insurance program which Government Programs covers specified medical expenses for the low-income aged, blind, and disabled. There are distinct eligibility criteria for participation in the program. 302-368-6610 302-424-7210 800-372-2022 MEDICAID WAIVER FOR THE ELDERLY AND DISABLED The Medicaid Home and Community-Based Services Waiver Program allows low-income persons with disabilities to remain in their own homes rather than going into an institutional setting. A person who is eligible for this program can receive all regular Medicaid services and, as needed, case management, homemaker, respite care (both home and institutional), an emergency response system and day care. For financial eligibility information, call the Division of Social Services: 302-368-6610 800-372-2022 For information about the Medicaid waiver program, call DHSS Division of Services for Aging and Adults with Physical Disabilities: 302-453-3820 302-424-7310 800-223-9074 MEDICARE Medicare is a federal health insurance program for people aged 65 and older, qualified disabled persons, and persons with chronic kidney disease. Local Social Security Administration offices take applications for Medicare and provide information about the Government Programs Delaware Contacts Part A - National Government Services 1-800-MEDICARE Part B - TrailBlazer Health Enterprises, Inc. 1-800-MEDICARE Home Health & Hospice Cahaba, Alabama BCBS 1-800-MEDICARE Durable Medical Equipment National Heritage Insurance Co. 1-800-MEDICARE Quality of Care Issues Quality Insights 866-475-9669, 302-475-8100 Joining Generations GRANDPARENTS & RELATIVES RAISING OTHERS’ CHILDREN Contact JOINING GENERATIONS at 255-9390 or 1-800-223-9074 for information on statewide support & education group programs, Grand Time Off and Camp Respite School Break/Summer Camps. DELAWARE HEALTH AND SOCIAL SERVICES DIVISION OF SERVICES FOR AGING AND ADULTS WITH PHYSICAL DISABILITIES DELAWARE SENIOR MEDICARE PATROL Delaware Senior Medicare Patrol is a federally funded project offered through the Delaware Division of Services for Aging and Adults with Physical Disabilities to teach Medicare beneficiaries to be better health care consumers. Volunteers are recruited and trained to lead sessions for other beneficiaries about how to identify and report possible health care fraud. Delaware Senior Medicare Patrol 800-223-9074 DELAWARE MONEY MANAGEMENT PROGRAM A joint program with AARP, the program offers money management assistance to low-income seniors and adults with physical disabilities who have difficulty budgeting, paying routine bills and keeping track of financial matters. Trained volunteers assist persons who do not have friends or relatives able or willing to help. Delaware Money Management Program 800-223-9074 She's a real spitfire when it comes to Medicare fraud and abuse tactics. Maggie knows how to spot it, and report it. She learned how from the Senior Medicare Patrol Program. And she's just one of thousands of Delaware seniors who won't be conned. Call the Senior Medicare Patrol Hotline — and join Maggie in showing abusers that it doesn't pay to mess with Delaware seniors. Government Programs ELDERinfo ELDERinfo, State Health Insurance Assistance Program, is a public service provided by the Delaware Insurance Department to help Medicare beneficiaries understand their Medicare, Medicaid, long term care insurance and other types of health insurance. ELDERinfo 800-336-9500 SOCIAL SECURITY AND SUPPLEMENTAL INCOME (SSI) The Social Security Administration manages the Social Security and SSI programs. Eligibility and benefits for Social Security depend upon one’s employment history. Benefits are also payable to spouses, widow/ widowers, and minor or disabled children of retired, disabled, or deceased workers. The federal guaranteed income program for the elderly, blind and disabled, Supplemental Security Income, provides a guaranteed minimum income for individuals whose incomes are below a certain level. The Social Security Administration also processes applications for Medicare, and for wards applications for Medicaid to appropriate agencies. For more information about Medicare and Medicaid please refer to the Medi care and Medicaid chapters of this guide. The web site is www.ssa.gov. For more information, call: WILMINGTON/NEW CASTLE COUNTY 302-323-0304 Toll Free 800-772-1213 KENT COUNTY 302-674-5162 Toll Free 800-772-1213 SUSSEX COUNTY 302-856-9620 Toll Free 800-772-1213 For more information about state of Delaware agencies, call Delaware Helpline at 800-464-4357. Veterans Administration Benefits and Information 800-827-1000 For a copy of "Federal Benefits for Vets and Dependents" call 866-512-1800 or go to www.va.gov. THE GOVERNOR’S ADVISORY COUNCIL ON SERVICES FOR AGING AND ADULTS WITH PHYSICAL DISABILITIES The Governor’s Advisory Council on Services for Aging and Adults with Physical Disabilities serves in an advisory capacity to DHSS’ Division of Services for Aging and Adults with Physical Disabilities. The Council seeks to protect, promote, and advocate for older Delawareans and adults with physical disabilities. Council members are appointed by the Governor and represent all geo graphic areas of Delaware. For more information, call: DHSS Division of Services for Aging and Adults With Physical Disabilities New Castle County 302-255-9390 Statewide Toll free 800-223-9074 Home Health Care/Hospice Home health care services help individuals function as independently as possible in their own homes. The services provided vary from agency to agency and may include duties such as personal care, meal preparation, light housekeeping, laundry and shopping. Home health care may involve medical-oriented care, ranging from dressing changes by a trained, supervised aide, to physical therapy, education and self-care provided by a licensed professional. Provided here is a list of home health agencies licensed in the state of Delaware. These organizations provide a variety of services and will accept different types of payment. Hospice is a choice when recovery is no longer possible. Hospice focuses on care, not cure, ensuring that patients and their families receive the care, comfort and support they need. Pain and symptom management and emotional support are provided in the familiar surroundings of home, regardless of the ability to pay. NEW CASTLE COUNTY ADDUS HealthCare 5614 Kirkwood Hwy. Wilmington, DE 19808 302-995-9010 Bayada Nurses, Inc. 750 S. Madison Street Wilmington, DE 19801 302-658-3000 Bayada Nurses, Inc. 1400 Peoples Plaza Newark, DE 19702 302-836-1000 Christiana Care/Visiting Nurse Association One Reads Way, Suite 100 New Castle, DE 19720 302-327-5212 Compassionate Care Hospice 5239 W. Woodmill Drive Wilmington, DE 19808 800-219-0092 Compassionate Home Health Care 5610 Kirkwood Hwy. Wilmington, DE 19808 302-999-8864 Delaware Hospice, Inc. 3515 Silverside Road Wilmington, DE 19810 302-478-5707 800-838-9800 Eldercare/Molter Associates 3203 Concord Pike Wilmington, DE 19803 302-479-5200 Home Health Care/ Hospice Generations Home Care 15 Ashley Place Wilmington, DE 19804 302-658-6731 302-322-3100 Heartland Home Health Care 267 E. Main Street Newark, DE 19711 302-455-1500 Home Health Corporation of America 260 Chapman Road Newark, DE 19702 302-738-9756 Home Health Services by T.L.C. 2915 Ogletown Road Newark, DE 19713 302-322-5510 Ingleside Home Health Care 1005 N. Franklin St. Wilmington, DE 19806 302-575-0250, ext. 2215 Interim Health Care 2 Reads Way Newark, DE 19720 302-322-2743 Life Force Elderly Services 1203 Polly Drummond Office Park Newark, DE 19711 302-737-4400 Loving Care Agency 5700 Kirkwood Hwy. Wilmington, DE 19808 302-993-7895 Maxim Health Care 1409 Foulk Road Wilmington, DE 19803 302-478-3434 Neuro Care/Total Care 201 Ruthar Drive, Suite 5 Newark, DE 19711 302-738-6400 Odyssey Health Care 1404 Foulk Road Wilmington, DE 19803 302-479-7500 Oncology Care Home Health 267 E. Main St. Newark, DE 19711 302-455-1500 Home Health Care/ Hospice St. Francis Home Health Care 7th and Clayton Streets Wilmington, DE 19805 302-575-8240 Saints Home Health Care 1601 Concord Pike Wilmington, DE 19803 302-652-4617 Vitas Hospice 100 Commerce Drive Newark, DE 19713 302-451-4000 KENT COUNTY ADDUS Health Care 600 NE Front Street Milford, DE 19963 302-424-4842 Bayhealth at Kent General Home Health Care 560 S. Governors Avenue Dover, DE 19904 302-674-7300 Bayhealth at Milford Memorial Home Health Care 104 N.E. Front Street Milford, DE 19963 302-424-5590 Christiana Care Visiting Nurse Association 2116 S. DuPont Highway Camden, DE 19934 302-698-4300 888-VNA-0001 Christiana Care Visiting Nurse Association 611 S. DuPont Highway Milford, DE 19963 302-422-2010 800-VNA-0001 Compassionate Care Hospice 201B DuPont Highway Millsboro, DE 19966 302-424-8230 800-219-0092 Delaware Hospice 911 S. DuPont Hwy. Dover, DE 19901 302-678-4444 800-838-9800 Generations Home Care 1125 Forrest Ave. Dover, DE 19904 302-734-7005 Home Health Care by TLC 1241 College Park Drive Dover, DE 19904 800-560-0114 Home Health Corporation of America 2145 S. DuPont Hwy. Dover, DE 19901 302-697-7125 800-655-9299 Interim Health Care 907 S. Governors Avenue Dover, DE 19901 302-734-3131 Maxim Health Care 1012 State College Road Dover, DE 19904 302-734-9040 Home Health Care/ Hospice Professional Home Health Care 2145 DuPont Highway Dover, DE 19901 302-697-7125 SUSSEX COUNTY Beebe Home Health Agency 20232 Ennis Road Georgetown, DE 19947 302-854-5210 CHEER Home Health Services 20520 Sandhill Road Georgetown, DE 19947 302-854-9555 Compassionate Care Hospice 220113 W. DuPont Highway Millsboro, DE 19966 302-934-5900 800-219-0092 Delaware Hospice 600 DuPont Hwy. Georgetown, DE 19947 800-838-9800 Generations Home Care, Inc. 205 East Market Street Georgetown, DE 19947 302-856-7774 Home Health Corporation of America 401 N. Bedford Street Georgetown, DE 19947 302-855-0310 Home Health Services by TLC 311 W. 9th Street South Bethany Beach, DE 19930 800-560-0114 Peninsula Home Care 9470 Herring Run Road Seaford, DE 19973 302-629-4914 Professional Home Health Care 401 N. Bedford Road Georgetown, DE 19947 302-855-1220 Housing These agencies provide housing for persons with low to moderate incomes. Call each agency for the income guidelines, a list of housing options and placement on a waiting list, if necessary. Also, request a copy of “Housing in a Hurry” resource guide from the Delaware Housing Coalition at 302-678-2286 or www. housingforall.org Delaware State Housing Authority Carvel State Office Building 820 N. French Street, Wilmington, DE 19801 302-577-5001 1289 Walker Road, Dover, DE 19904 302-739-6940 Dover Housing Authority 76 Stevenson Drive, Dover, DE 19901 302-678-1965 Kent County Department of Community Development and Planning 414 Federal Street, Room 320 Dover, DE 19901 302-774-2480 Housing New Castle County Department of Community Services 87 Reads Way, New Castle, DE 19720 302-395-5610 Newark Housing Authority 313 E. Main Street, Newark, DE 19711 302-366-0826 Sussex County Community Development and Housing 8 N. Race Street, Georgetown, DE 19947 302-855-7777 Wilmington Housing Authority 400 N. Walnut Street, Wilmington, DE 19801 302-429-6700 HUD (Housing and Urban Development) Wilmington Field Office: 302-573-6300 ARC of Delaware (homeownership opportunity for persons withcognitive disabilities) 302-996-9400 B'nai B'rith Housing (housing for seniors and persons with disabilities) 8000 Society Drive, Claymont, DE 19703 302-798-6846 Connections CSP (housing for persons with mental illness) 866-477-5345 HOUSING COUNSELING If you are considering home ownership and have questions about available low- interest loans, or you are applying for a reverse mortgage if you own your home and are age 62 and over, contact these housing agencies. For help with a mortgage or to learn how to avoid foreclosure, call the Deputy Bank Commissioner for Consumer Affairs at 302-577-5092. Centers for Homeownership YWCA 153 E. Chestnut Hill Rd., Newark, DE 19713 302-224-4060 Community Housing Inc. 613 Washington Street, Wilmington, DE 19801 302-652-3991 Housing Opportunities of Northern Delaware (HOND) 100 West 10th Street, Suite 1004 Wilmington, DE 19801 302-429-0794 NCALL Research Inc. 363 Saulsbury Rd., Dover, DE 19904 302-678-9400 302-283-7505 302-855-1370 Peoples Settlement Association 408 East 8th Street, Wilmington, DE 19801 302-658-4133 West End Neighborhood House Inc. 1218 B Street, Wilmington, DE 19801 302-652-3928 Neighborhood House 302-658-4171 First State Community Action Agency Inc. P.O. Box 877, Georgetown, DE 19947 302-856-7761 Housing HOUSING DISCRIMINATION If you believe you have been denied housing because of your race, religion, a disability, or other factors, you may file a complaint with HUD (the federal Department of Housing and Urban Development) under the Fair Housing Act by calling the Delaware State Human Relations Commission or by calling HUD directly. State Human Relations Commission New Castle County 302-577-5050 Kent County 302-739-4567 Sussex County 302-856-5331 HUD Fair Housing Information/ Publications Center 800-767-7468 HUD Fair Housing Complaints 888-799-2085 HUD Veterans Resource Center 800-998-9999 Delaware Housing Coalition 302-678-2286 Tenants Rights Hotline 888-335-7928 NATIONAL ACCESSIBLE APARTMENT CLEARINGHOUSE Call for information about select Delaware apartment complexes that may be listed on the database. 800-421-1221 or www.accessibleapartments.org Information and Assistance These agencies offer a database of information about Delaware agencies that offer services to the public. Contact Delaware (24-hour help line for rape crisis, suicide counseling, crisis intervention) P.O.Box 9525, Wilmington, DE 19809 302-761-9100 800-262-9800 Delaware Helpline (Statewide information and referral to over 2,100 health and human service programs, including government offices and personnel.) 900 N. King Street, Wilmington, DE 19801 800-464-4357 800-273-9500 (out of state) Information and Assistance Family and Workplace Connection (child care and elder care referrals and new respite-provider network) 3511 Silverside Road, Wilmington, DE 19810 302-479-1660 Hispanic Outreach, Latin American Community Center 302-655-7338 Kent County Community Services Department 302-698-6444 LONG TERM CARE OMBUDSMAN PROGRAM DHSS' Long Term Care Ombudsman Program provides impartial fact-finders whose job it is to assure that adults in licensed institutions, nursing homes, assisted living and adult foster care homes receive fair treatment. The Ombudsman seeks to: Investigate and resolve complaints made by or on behalf or residents of long term care facilities regarding violations of patients' rights. Train volunteers and others to participate in the Ombudsman Program. Advocate for improving the quality of life for residents of long term care facilities. Provide information and training to residents, families, and staff on topics such as patient rights, living wills, and patient abuse. For more information, or to register a problem or complaint, call: DHSS Division of Services for Aging and Adults with Physical Disabilities New Castle County 302-255-9390 Kent/Sussex County 302-424-7310 Statewide Toll Free 800-223-9074 DHSS DIVISION OF LONG TERM CARE RESIDENT PROTECTION This Division promotes the quality of care, safety and security of people living in long term care facilities and ensures these facilities' compliance with applicable state and federal laws designed to protect these residents. For more information or to make a complaint, call 877-453-0012. New Castle County 302-577-6666 Kent/Sussex County 302-424-8600 Interpreters for the Deaf These services can assist you in finding sign language, oral or tactile interpreters for persons who are deaf or hard of hearing. Deaf Communication Services Inc. PO Box 7004, Newark, DE 19714-7004 302-266-6877 terpservice@comcast.net DEAFinitions and Interpreting 1148 Pulaski Highway, Bear, DE 19701 302-563-7714 deafi nitionsterp@yahoo.com http://www.deafi nterpreting.com Deaf-Hearing Communication Centre 630 Fairwiew Road, Swarthmore, PA 19081 610-604-0452 info@dhcc.org http://www.dhcc.org Office of the Deaf and Hard of Hearing Delaware Division of Vocational Rehabilitation 302-761-8275 (V/TTY) Interpreters for the Deaf If you need to call a person who uses a TTY, call the Delaware Relay Service. These services act as a facilitator for the two-way conversation. The operators use a TTY to express your message to the deaf person and verbally deliver the response back to the caller. Delaware Relay Service 711 (V/TTY) universal access or 800-232-5470 STS (SPEECH TO SPEECH) STS is a phone service that enables people with a speech disability to make phone calls. Those who stutter, have cerebral palsy, muscular dystrophy, multiple sclerosis, or have speech difficulties after a stroke or brain injury can benefit from STS. You do not need to have a speech difficulty to make an STS call. You may wish to call someone who has speech difficulties. Call 877-335- 7274 (English) or go to www.STSnews.com. Legal Services These agencies can assist persons of low income with certain legal matters. Community Legal Aid Society Inc. Disability Law Program 100 W. 10th Street Suite 801 Wilmington, DE 19801 302-575-0660 840 Walker Road Dover, DE 19904 302-674-8500 144 E. Market Street Georgetown, DE 19947 302-856-0038 Delaware Volunteer Legal Services P.O. Box 7306 Wilmington, DE 19803 302-478-8850 800-773-0606 Lawyer Referral Service 1225 N. King Street 10th ?oor Wilmington, DE 19801 302-478-8850 800-773-0606 Legal Help Link (referral service) 302-478-8850 Legal Services Corp. of Delaware 100 W. 10th Street Wilmington, DE 19801 302-575-0408 208 S. Governors Ave. Dover, DE 19903 302-734-8820 Medical Care HEALTH CLINICS The following health clinics accept fees based on your ability to pay for persons with minimal or no health insurance: Casa San Francisco 127 Broad Street Milton, DE 19968 302-684-8694 Center of Hope St. Francis Hospital 523 Kirkwood Highway Newark, DE 19711 302-369-9370 Claymont Family Health Services 3301 Green Street Claymont, DE 19703 302-798-9755 Christiana Care Breast Cancer Screening/Avon's Helping Hand 302-765-4546 Christiana Care Community Health Outreach Coordination 302-765-4161 Delaware Breast Cancer Coalition 100 W. 10th Street Wilmington, DE 19801 866-312-DBCC www.debreastcancer.org Delaware Cancer Treatment Program Division of Public Health/EDS P.O. Box 950 New Castle, DE 19720 800-996-9969 Delaware Technical and Community College (Wilmington) Dental Clinic 333 Shipley Street Wilmington, DE 19801 302-571-5364 Delmarva Rural Ministries/ Kent Community Health Center 26 Wyoming Avenue Dover, DE 19904 302-678-2000 Henrietta Johnson Medical Center 601 New Castle Ave. Wilmington, DE 19801 302-655-6187 700 Lea Blvd. Wilmington, DE 19803 302-761-4610 Hope Medical Clinic Modern Maturity Center 1121 Forrest Avenue Dover, DE 19901 302-735-7551 La Red Health Center 505-A W. Market Street Georgetown, DE 19947 302-855-1233 Nemours Health Clinic 1801 Rockland Road Wilmington, DE 19803 302-651-4406, 800- 292-9538 (for low income Delaware residents who are over age 65) Medical Care Pierre Toussaint Dental Clinic 830 Spruce Street Wilmington, DE 19801 302-652-8947 Planned Parenthood 140 E. Delaware Ave. Newark, DE 19711 302-731-7801 625 Shipley Street Wilmington, DE 19801 302-655-7293 3009 Philadelphia Pike Claymont, DE 19703 302-798-8000 805 S. Governors Ave. Dover, DE 19901 302-678-5200 Midway Shopping Center Rehoboth Beach, DE 19971 302-645-2737 St. Claire Medical Outreach Van 302-575-8218 Sussex Smiles Dental Care Stockley Campus Georgetown, DE 19947 302-934-6910 Westside Health Services 1802 W. 4th Street Wilmington, DE 19801 302-655-5822 27 Marrows Road Newark, DE 19713 302-455-0900 Wilmington Hospital (Christiana Care) Health Department 501 West 14th Street Wilmington, DE 19801 302-428-6436 Wilmington Hospital Dental Clinic 302-428-4850 See www.delawarestatedentalsociety.org for a list of dental clinics for children and adults in Delaware. Delaware Mobile Dentistry (Kent County) Delaware Mobile Dentistry offers general dental care to residents of nursing homes, retirement communities and rehabilitation facilities in southern Delaware. They are accessible to persons using a wheelchair. If you live near Dover, they may be able to call on you at home. Charges are comparable to services in a dentist’s private office. Dr. Terry A. Bryan, D.M.D. 189 South Fairfield Drive Dover, DE 19901 302-698-9901 SCREENING FOR LIFE, DHSS, Division of Public Health Screening for Life offers FREE pap tests, mammograms and colorectal screenings to eligible women. Screening for Life has purchased special examination tables to better serve persons with Medical Care disabilities. These tables are specially made for persons using wheelchairs. For an appointment using one of these special tables, contact Screening for Life via the Delaware Helpline at 800-4644357 or 302-741-8600. HEALTH SCREENING DHSS’ Division of Public Health offers health screening services by appointment in clinics located throughout the state to persons age 35 and over. Call the Delaware Helpline at 800-464-4357 for a list of state service centers and the services available. Other Cancer Resources: American Cancer Society, 800-ACS-2345, www.cancer.org Cancer Care, 800-813-HOPE, www.cancercare.org Cancer Resource Network, 800-227-2345 Delaware Cancer Treatment Program (Division of Public Health), 800-996-9969 National Cancer Institute, 800-422-6237, www.cancer.gov People Living with Cancer, 888-651-3038, www.plwc.org Wellness Community (DE), 302-995-2850, 302-734-0898, 302-227-1155 HOSPITALS NEW CASTLE COUNTY DuPont Hospital for Children 1600 Rockland Road, Wilmington, DE 19899 302-651-4000, 800-416-4441 Christiana Care - Christiana Hospital 4755 Stanton Ogletown Road, Newark, DE 19713 302-733-1000 Christiana Care - Wilmington Hospital 501 W. 14th Street, Wilmington, DE 19802 302-733-1000 Helen F. Graham Cancer Center 4701 Ogletown-Stanton Road, Newark, DE 19713 800-811-8116 DuPont Hospital for Children P.O. Box 269, Wilmington, DE 19899 302-651-4000 MeadowWood Behavioral Health System 575 S. DuPont Hwy., New Castle, DE 19720 302-328-3330 Medical Care Rockford Center 100 Rockford Dr., Newark, DE 19713 302-996-5480 St. Francis Hospital 7th & Clayton Sts., P.O. Box 2500, Wilmington, DE 19805 302-421-4100 Veterans Administration Medical Center 1601 Kirkwood Hwy., Wilmington, DE 19805 302-994-2511 KENT COUNTY Bayhealth at Kent General Hospital 640 S. State St., Dover, DE 19901 302-674-4700 Medical Care SUSSEX COUNTY Bayhealth at Milford Memorial Hospital 21 W. Clarke Ave. Milford, DE 19963 302-422-3311 Beebe Medical Center 424 Savannah Rd. Lewes, DE 19958 302-645-3300 Nanticoke Memorial Hospital 801 Middleford Rd. Seaford, DE 19973 302-629-6611 OTHER IMPORTANT NUMBERS: Delaware Consumer Health Library 302-733-1122 Tel Med of the Delaware Academy of Medicine (recorded health messages) 302-571-1010 or 800-794-6565 Foundation for Health Coverage Education 800-234-1317 www.coverageforall.org to identify health coverage options Vial For Life (New Castle County only) to provide your personal medical history to emergency personnel 302-395-8184 Drug Savings Card (Kent and Sussex Counties only as of winter 2008) To receive your 20%-off discount card, good at most pharmacies in Delaware, call 302-744-2300 or 302-855-7700 Nearby Pennsylvania rehabilitation hospitals: Bryn Mawr Hospital 888-REHAB41 Magee Hospital 800-96MAGEE Moss Hospital 215-456-9900 215-663-6000 PRACTICE WITHOUT PRESSURE CENTER An agency that works with children and adults with disabilities to practice medical and dental procedures such as blood draws, dental cleaning and x-rays – even haircuts. The goal is for the individual to get through the procedure successfully, without restraint or trauma. Practice Without Pressure Center 20 Russell Road, New Castle, DE 19720 302-832-2800 PRESCRIPTION ASSISTANCE PROGRAM The state of Delaware offers a prescription assistance program for qualified low-income adults with disabilities and seniors over the age of 65 who do not have prescription drug coverage as part of their health insurance. The plan covers up to $3000/year and requires a $5.00 or 25% co-pay based on the drug cost (whichever is higher). Prescription Assistance Program (EDS/DPAP) P.O. Box 950, New Castle, DE 19720 800-996-9969, press 2, then 1 FREE PRESCRIPTION MEDICINE AVAILABLE TO THOSE WHO QUALIFY Free Medicine Foundation www.freemedicinefoundation.com 573-996-3333 Also, many drug companies have Patient Assistance Programs to help low-income persons pay for the drugs they need. The web sites below are some resources to access lower cost or free prescription medicines. www.rxassist.org www.rxhope.com www.helpingpatients.org www.needymeds.com www.benefi tscheckup.org Nursing Homes The term “nursing home” generally refers to a long term care facility which provides services to clients who are no longer able to live independently in the communi ty. Below is a list of nursing homes in Dela ware. See www.medicare.gov for a list of nursing homes and for inspection survey results. Contact the Delaware Division of Long Term Care Residents Quality Assurance Committee at 302-255-1780. WILMINGTON Gilpin Hall 1101 Gilpin Ave. Wilmington, DE 19806 302-654-4486 Hillside Center 810 S. Broom Street Wilmington, DE 19805 302-652-1181 Kentmere Nursing Care Center 1900 Lovering Avenue Wilmington, DE 19806 302-652-3311 Parkview Nursing and Rehabilitation Center 2801 W. 6th Street Wilmington, DE 19805 302-655-7568 Regency Health Care and Rehabilitation Center 801 N. Broom Street Wilmington, DE 19806 302-652-3861 Riverside Transitional Care 700 Lea Blvd. Wilmington, DE 19802 302-765-4400 NEW CASTLE COUNTY Accord Health Service at Brandywine 505 Greenbank Road Wilmington, DE 19808 302-998-0101 Arbors at New Castle 32 Buena Vista Drive New Castle, DE 19720 302-328-2580 Broadmeadow Healthcare 5005 Broad Street Middletown, DE 19709 302-449-3400 Churchman Village 4949 Ogletown-Stanton Rd. Newark, DE 19713 302-998-6900 Cokesbury Village 726 Loveville Road Hockessin, DE 19707 302-235-6000 Delaware Psychiatric Center (DHSS) Carvel Building 1901 N. DuPont Hwy. New Castle DE 19720 302-255-2700 Emily P. Bissell Hospital (DHSS) 3000 Newport Gap Pike Wilmington, DE 19808 302-995-8434 Exceptional Care for Children 11 Independence Way Newark, DE 19713 302-894-1001 Forwood Manor 1912 Marsh Road Wilmington, DE 19810 302-529-1600 Foulk Manor North 1212 Foulk Road Wilmington, DE 19803 302-478-4296 Foulk Manor South 407 Foulk Road Wilmington, DE 19803 302-655-6249 Governor Bacon Health Center (DHSS) Tilton Building P.O. Box 559 Delaware City, DE 19706 302-836-2550 Highfield, Masonic Home of Delaware, Inc. 4800 Lancaster Pike Wilmington, DE 19807 302-994-4434 Ingleside Homes Inc. 1005 N. Franklin Street Wilmington, DE 19806 302-575-0250, ext. 2212 Jeanne Jugan Residence 185 Salem Church Road Newark, DE 19713 302-368-5886 Manor Care Pike Creek Health Services 5651 Limestone Road Wilmington, DE 19808 302-239-8583 Manor Care Wilmington Health Services 700 Foulk Rd. Wilmington, DE 19803 302-764-0181 Mary Campbell Center 4641 Weldin Road Wilmington, DE 19803 302-762-6025 Methodist Country House 4830 Kennett Pike Wilmington, DE 19807 302-654-5101 Millcroft 255 Possum Park Road Newark, DE 19711 302-366-0160 Milton and Hattie Kutz Home, Inc. 704 River Road Wilmington, DE 19809 302-764-7000 Newark Manor Nursing Home, Inc. 254 W. Main Street Newark, DE 19711 302-731-5576 Regal Heights Care and Rehabilitation 6525 Lancaster Pike Hockessin, DE 19707 302-998-0181 St. Francis Care Center at Brackenville 100 St. Clair Drive Hockessin, DE 19707 302-234-5420 Shipley Manor Health Center 2723 Shipley Road Wilmington, DE 19810 302-479-0111 Stonegates 4031 Kennett Pike Greenville, DE 19807 302-658-6200 KENT COUNTY Capitol Healthcare Services 1225 Walker Road Dover, DE 19904 302-734-1199 Courtland Manor 889 S. Little Creek Road Dover, DE 19901 302-674-0566 Delaware Hospital for the Chronically Ill (DHSS) 100 Sunnyside Road Smyrna, DE 19977 302-223-1000 Delaware Veterans Home 100 Delaware Veterans Blvd. Milford, DE 19963 302-424-6000 Green Valley Pavillion 3034 South DuPont Blvd. Smyrna, DE 19977 302-653-5085 Silver Lake Center 1080 Silver Lake Blvd. Dover, DE 19901 302-734-5990 Westminster Village Health Center 1175 McKee Rd. Dover, DE 19904 302-744-3600 SUSSEX COUNTY Cadbury at Lewes 17028 Cadbury Circle Lewes DE 19958 302-645-6430 800-390-8298 Country Rest Home 12046 Sunset Lane Greenwood, DE 19950 302-349-4114 Delmar Nursing and Rehabilitation Center 101 E. Delaware Ave. Delmar, DE 19940 302-846-3077 Green Valley Terrace 231 S. Washington St. P.O. Box 909 Millsboro, DE 19966 302-934-7300 Harbor Healthcare & Rehabilitation Center 301 Ocean View Blvd. Lewes, DE 19958 302-645-4664 Harrison Senior Living 110 W. North Street Georgetown, DE 19947 302-856-4574 Looking for a volunteer opportunity that takes just a little time, but offers a big reward? Friendly Visitors visit Delaware seniors who are living in nursing homes. As a Friendly Visitor, you’ll be trained in how to be a voice for those who may not be able to speak up for themselves. Most of all, you’ll be a friend who will be appreciated and treasured. If you can open your heart for just a few hours a week, you can be a VIP to someone who knows that in the business of life, nothing is more valued than people who care. For information call 302.424.7310 or 800.223.9074 Lifecare at Lo?and Park 715 E. King Street Seaford, DE 19973 302-628-3000 Methodist Manor House 1001 Middleford Road Seaford, DE 19973 302-629-4593 800-775-4593 Milford Center Genesis Healthcare 700 Marvel Road Milford, DE 19963 302-422-3303 Renaissance Health Care 26002 John J. Williams Highway Millsboro, DE 19966 302-947-4200 Seaford Center 1100 Norman Eskridge Highway Seaford, DE 19973 302-629-3575 Stockley Center 26351 Patriots Way Georgetown, DE 19947 302-933-3000 Personal Assistance Providers/Respite Care These agencies provide supportive services at home to allow people to live as independently as possible. Call the Family and Workplace Connection for a list of respite providers at 302-479-1679. (See the Yellow Pages under Home Health Services for additional home health agencies.) WILMINGTON/NEW CASTLE COUNTY Christiana Care Visiting Nurse Association One Reads Way, Suite 100 New Castle Corporate Commons, New Castle, DE 19720 302-327-5212 Easter Seals - Delaware and Maryland’s Eastern Shore 61 Corporate Circle, New Castle, DE 19720 302-324-4444 Personal Assistance Providers/Respite Care Generations Home Care 15 Ashley Place, Wilmington, DE 19804 302-658-6731 Lutheran Community Services Home Repairs 1304 N. Rodney Street, Wilmington, DE 19806 302-654-8886 Homebound Helpers Paper Mill Road, Newark, DE 19711 302-286-0237 Neuro Care/Total Care 201 Ruthar Drive, Suite 5, Newark, DE 19711 302-738-6400 The Delivery Boys (home-delivered grocery shopping) 26 Lanford Road, New Castle, DE 19720 302-322-7701 Local supermarkets and drug stores may also offer home delivery of groceries and prescriptions. Cost of the delivery will vary. KENT COUNTY Christiana Care Visiting Nurse Association 2116 S. DuPont Hwy., Suite 2, Camden, DE 19934 302-698-4300, 800-VNA-0001 Generations Home Care 1125 Forrest Avenue, Dover, DE 19904 302-734-7005 SUSSEX COUNTY Generations Home Care 205 East Market Street, Georgetown, DE 19947 302-856-7774 Recreational/Social These agencies offer activities for persons with disabilities or arrange accessible vacations for persons with cognitive and/or mobility challenges. Also, call your local community services department, public library and senior centers to see if recreation programs are offered in your area. Able Arts Theatrical Troupe 26 Fox Hunt Drive, Bear, DE 19701 302-368-7477 www.ablearts.com Accessible Movie Theaters For a list of movie theaters that offer captioning for patrons with hearing difficulties or descriptive narration for patrons with visual difficulties, go to www.insightcinema.org. Access-Able Travel Source (travel agency) P.O. Box 1796, Wheat Ridge, CO 80034 303-232-2979 www.access-able.com Accessible Journeys (travel agency) 35 W. Sellers Avenue, Ridley Park, PA 19078 800-846-4537 www.disabilitytravel.com American Amputee Soccer Association/ Delaware Adaptive Sports Association P.O. Box 6002, Wilmington, DE 19804 302-683-0997 American Dance Wheels Crystal Dansport 79 Christiana Road, New Castle, DE 19720 215-588-6672, 302-221-0307 Brandywine Social Club YMCA Resource Center 100 W. 10th Street, Wilmington, DE 19801 302-571-6975 Center for Disability Studies, University of Delaware 461 Wyoming Road, Newark, DE 19716 302-831-6974 Center for Therapeutic and Educational Riding C-Line Stables, 3491 Harris Road Townsend, DE 19934 302-376-9594 Challenger Little League/TOPS Soccer c/o Lisa Johannsen 302-378-2530 Children's Beach House 1800 Bay Ave., Lewes, DE 19958 302-645-9184 DateAble Dating Service (serves Delaware residents) 15520 Bald Eagle School Road Brandywine, MD 20613 301-657-DATE www.dateable.org Delaware Association for the Blind 800 West Street, Wilmington, DE 19801 302-655-2111 Delaware Association for Blind Athletes 302-836-5784, sandyw1994@aol.com Delaware Special Olympics 619 S. College Avenue, Newark, DE 19716 302-831-4653 Delaware Theater Company 200 Avenue of the Arts, Wilmington, DE 19801 302-594-1100 Department of Natural Resources and Environmental Control (DNREC) Division of State Parks and Recreation 89 Kings Highway, Dover, DE 19901 302-739-9220 (call for a list of Delaware state parks) Fairlee Manor Recreation and Education Center 22242 Bayshore Road, Chestertown, MD 21620 410-778-0566 Farm of Dreams 2325 S. DuPont Highway, Smyrna, DE 19977 302-653-6731 Guided Tour (travel agency) 7900 Old York Road, Suite 111B Elkins Park, PA 19027 215-782-1370 Mary Campbell Center (recreation programs and summer day camp) 4641 Weldin Road, Wilmington, DE 19803 302-762-6025 Southern Delaware Therapeutic and Recreational Horseback Riding P.O. Box 219, Nassau, DE 19969 302-644-1920 United Cerebral Palsy of Delaware (respite and summer day camp) 700A River Road, Wilmington, DE 19809 302-764-2400, 302-335-5626 VSA Arts of Delaware (arts programs) Delaware State University Arts Center Gallery 1200 N. DuPont Highway, Dover, DE 19901 302-857-6699 Wellspring Farm, Bellevue State Park 800 Carr Road, Wilmington, DE 19809 302-798-2407 Other Travel Resources: Moss Rehabilitation Hospital Travel Information 800-CALL-MOSS www.mossresourcenet.org The Boulevard (internet site of disability resources) www.blvd.com For the traveler requiring oxygen: www.travelo2.com, 800-391-2041 www.oxygen4travel.com For a list of Delaware retail gas stations that will assist the traveler with disabilities to pump gas, call 302-744-2715 or go to www. deldot.gov/information.community_programs_and_services/. Read about the Service Station Assistance Program. Support Groups Support groups provide an environment for caregivers, family members, and loved ones to talk, share experiences, and learn about resources in the community. Call the agencies listed for a schedule of support group meetings that they offer in the community. AIDS Delaware 302-652-6776 Alliance for the Mentally Ill in Delaware (NAMI Delaware) 302-427-0787, 888-427-2643 Alzheimer's Association of Delaware 302-633-4420 or 800-272-3900 American Cancer Society 302-324-4227 or 800-304-0779 American Diabetes Association 302-656-0030 or 888-DIABETES American Lung Association 302-655-7258, 866-586-4872 Arthritis Foundation 302-730-9000 Brain Injury Support Groups 302-378-0375, 659-2829, 841-9675, 800-411-0505 Breathe For Your Life 302-328-2011, 302-545-6588 Cancer Care Connection 302-266-8050, 866-266-7008 Caregiver Support Groups (for persons caring for relatives) Call the Caregiver Resource Centers at: 302-737-2336, 302-651-3401, 302-734-1200, 302-337-8771 or 302-854-9555 for a list of support groups for caregivers. Compassionate Friends (when a loved one has died) 302-376-0300, 302-284-3767, 302-739-5348 Delaware Amputee Support Group 302-778-2227 amputeesgofde@aol.com Delaware Asssociation for Children of Alcoholics 877-302-2262 Delaware Hospice 302-478-5707, 800-838-9800 Delaware Stroke Initiative 302-633-9313 Epilepsy Foundation 302-999-9313, 800-422-3653 HIV Support Groups 302-654-5471, 800-422-0429 (Call for a copy of the HIV/AIDS Resource Guide) Joining Generations (for grandparents and relatives raising others' children) 800-223-9074 Lupus Foundation 302-622-8700 Mental Health Association Support Groups 302-654-6833, 800-287-6423 Multiple Sclerosis Society 302-655-5610, 800-FIGHT MS New Directions (Mental Health) Support Group 302-286-1161 Parkinson's Disease Support Group 856-678-3049, 302-764-6172, 302-368-5446 Pathways Through Grief 302-368-5738 Spinal Cord Injury Support Group Christiana Care, Wilmington Hospital 302-428-6668 Stroke Club 302-324-4444, 800-677-3800 Veteran Services Organizations: Disabled American Veterans 302-633-5324 Paralyzed Veterans of America 302-633-5325 Veterans of Foreign Wars 302-633-5326 Vietnam Vets 302-633-5351 VIP’s (Visually Impaired Persons) Support Groups Contact the Division for the Visually Impaired for a list of support groups at 302-255-9800. Well Spouse Foundation 800-838-0879, 732-577-8899 Wellness Community (To help people with cancer and their families fight for their recovery with free psycho-social support to complement conventional medical treatment) 302-995-2850, 877-892-9355 You Are Not Alone grief support 302-655-9624 Technology/ Assistive Devices These agencies provide information about the variety of available assistive technologies and possible funding sources. Canine Partners for Life (service dogs) P.O. Box 170, Cochranville, PA 19330 610-869-4902 Delaware Assistive Technology Initiative (DATI) Call to receive the “AT Messenger” newsletter. Central Site and New Castle County Assistive Technology Resource Center University of Delaware and duPont Hospital for Children Center for Applied Science and Engineering 1600 Rockland Road, A and R Building, Room 200 P.O. Box 269, Wilmington, DE 19899 Voice: 800-870-DATI (in-state only) Voice: 302-651-6790 TTY: 302-651-6794 www.dati.org DATI Kent County Assistive Technology Resource Center Easter Seals of Delaware and Maryland’s Eastern Shore 100 Enterprise Place, Suite 1, Dover, DE 19904-8200 Voice: 302-739-6885 TTY: 302-739-6886 DATI Sussex Assistive Technology Resource Center University of Delaware 20161 Office Circle, Suite C, Georgetown, DE 19947 Voice: 302-856-7946 TYY: 302-856-6714 Technology/ Assistive Devices Delaware Association For the Blind 800 West Street, Wilmington, DE 19801 302-655-2111 Delaware Division of Libraries Library for the Blind and Physically Handicapped (talking books and equipment and NFB Newsline) 43 S. DuPont Highway, Dover, DE 19901 302-739-4748, 800-282-8676 Delaware Health and Social Services Division for the Visually Impaired 1901 N. DuPont Highway, New Castle, DE 19720 302-255-9854 11-13 S.W. Front Street, Milford, DE 19963 302-424-7240 Delta Society National Service Dog Center 875 124th Avenue NE, Bellevue, WA 98005 425-679-5500 Descriptive Video Service (for videos with verbal description) 617-300-3600 Media Access Group 818-562-3344 www.mopix.org Dogs for the Deaf (hearing dogs) 10175 Wheeler Road, Central Point, OR 97502 541-826-9220 Possible sources of used/new equipment: Agencies are listed in the Yellow Pages under Medical Equipment and Supplies and Wheelchair Lifts and Ramps. They may also be listed in the Classified section of your local newspaper. Also, contact local service organizations, such as Lions Clubs, Rotary Clubs, Kiwanis Clubs, Telephone Pioneers, Elks Clubs and Shriners, as they may maintain a closet of used equipment or help in the purchase of new equipment. All the major car companies (Ford, GM, Saturn, Volkswagen, etc.) offer rebates to cover up to $1,000 to add lifts, ramps and hand controls to a new vehicle. Transportation These agencies offer accessible transportation for persons with vision and mobility concerns. DART First State (www.dartfi rststate.com) DART First State is the statewide transit service of the Delaware Transit Corporation (DTC), a subsidiary of the Delaware Department of Transportation, which provides both fixed route and intercounty bus service, as well as a paratransit bus service, throughout the state of Delaware. FIXED ROUTE SERVICE DART First State provides fixed route services in both New Castle County and in the greater Dover area. A seasonal fixed route service is provided in the Rehoboth, Lewes and Dewey Beach area. DART First State also provides a free shuttle which loops downtown Wilmington. INTERCOUNTY BUS SERVICE DART First State’s intercounty bus service provides transportation to, from, and within all 3 counties in Delaware. Its routes operate between Wilmington, Dover, and Rehoboth Beach and Newark, Dover, and Rehoboth Beach with several stops in between. DART First State offers reduced fares for both fixed route and intercounty service to senior citizens and persons with disabilities. Seniors are required to show a Medicare card when boarding the bus. Persons with disabilities must apply to be certified as being eligible for the reduced fare program. Once certified, a reduced fare identification card will be issued which must be presented when paying a reduced fare. Cash fares are accepted at the time of boarding; however, a discounted reduced fare card may be purchased in advance at any of our DTC sales outlet. Please call the number below for a list of locations. Statewide Transit Information 800-652-DART If calling within New Castle County 302-652-DART PARATRANSIT SERVICE DART First State also includes a paratransit service which provides door-to-door transportation for eligible disabled individuals and senior citizens. This service operates statewide Monday through Saturday service. Reservations must be made 24 hours in advance. After 1:00 p.m., reservations for the following day will not be accepted unless the traveler is determined to be eligible under the Americans with Disabilities Act (ADA). ADA-eligible persons may make reservations up to 4:30 p.m. for service the following day. Paratransit Reservations/Information 800-553-DART Customer Service 800-355-8080 OTHER TRANSPORTATION PROVIDERS There are several agencies that provide transportation on a fee basis. Contact the Delaware Transit Corporation for a copy of their Directory of Transportation Services in the State of Delaware at 800-553-DART or go to www.dartfirststate.com/directory/ Accessible Van Purchase (new and used) Here is a partial list of companies that sell new and used vans and minivans that are equipped for drivers and passengers with mobility limitations. Contact the National Mobility Equipment Dealers Association at 800-833-0427 for information about their member agencies. Read the monthly issues of the Disabled Dealer magazine at www.disableddealer.com or call 888-651-0666 for a subscription. Accessible Vans and Mobility 888-821-4212 www.avmvans.com M.I.T.S. Corporation 800-243-6487 www.mitscorp.com Accessible Van Rental To rent a wheelchair accessible vehicle by the week or month, call: Accessible Vans of America 888-AVA-VANS www.accessiblevans.com Wheelchair Getaways 800-642-2042 www.wheelchairgetaways.com Wheelers 800-456-1371 SCAT (Senior Citizen Affordable Taxi) Sponsored by the state of Delaware’s Department of Transportation, SCAT provides half-price taxi service for persons aged 60 and over and qualified disabled persons. The ser vice is offered seven days a week, including holidays. SCAT ticket books contain $10.00 worth of tickets and may be purchased for $5.00 at locations throughout the State. For more information call: DART First State 800-652-DART New Castle County 302-652-DART SEPTA SEPTA commuter trains run from Newark (Rte. 896), Churchmans Crossing and Wilmington Station to Delaware County, Pennsylvania, Philadelphia International Airport and Center City with connections to SEPTA trains and transit routes serving the entire Philadelphia metropolitan region. Convenient, economical connections to New York City via New Jersey Transit are also available. Wilmington Station can be reached from New Castle County, Dover, Smyrna, and many other locations by DART First State. For information on SEPTA and Blue Diamond routes and schedules call: SEPTA 215-580-7800 DART First State 800-652-DART UNI-CITY — Newark Area Uni-City is a transportation service that operates in the University of Delaware/Newark area. Buses operate along 3 loops. Call ahead to schedule a pick-up on an accessible bus. There is no charge for the service. For more information call: UNI-CITY 302-831-1187 Volunteering This agency offers volunteer opportunities in a variety of settings throughout the state. VOLUNTEER Resource Center The Volunteer Center matches adults of all ages with community agencies in need of volunteers. Volunteers with almost every type of interest and skill can be “linked” with agencies that can put them to work. For more information about Volunteer Research Center call: Delaware Health and Social Services Division of State Service Centers 1901 N. DuPont Highway, New Castle, DE 19720 302-255-9748, 302-857-5017, 800-815-5465 Resources GLOSSARY OF DISABILITY ACRONYMS AND TERMS ADA Americans with Disabilities Act ADD Attention Deficit Disorder ADHD Attention Deficit Hyperactivity Disorder APS Adult Protective Services ARC/DE Association for the Rights of Citizens with Mental Retardation/Delaware BIE Business Industry Education Alliance CEC Council for Exceptional Children CFR Code of Federal Regulations CIL Center for Independent Living CODE Council for Deaf Equality CP Cerebral Palsy CST Child Study Team DATI Delaware Assistive Technology Initiative DELARF Delaware Association of Rehabilitation Facilities DDC Developmental Disabilities Council DDDS Division of Developmental Disabilities Services DHHS Department of Health and Human Services (U.S.) DHSS Delaware Health and Social Services DOE Department of Education DOL Department of Labor DPH Division of Public Health DSAAPD Division of Services for Aging and Adults with Physical Disabilities DSAMH Division of Substance Abuse and Mental Health DSCYF Department of Services for Children, Youth and their Families DVI Division for the Visually Impaired DVR Division of Vocational Rehabilitation EPSDT Early Periodic Screening, Diagnosis and Training GACEC Governor’s Advisory Council for Exceptional Citizens IDEA Individuals with Disabilities Education Act (federal) IEP Individualized Education Plan JFC Joint Finance Committee LRE Least Restrictive Environment OSEP Office of Special Education Programs, U.S. Department of Education OT Occupational Therapist PIC Parent Information Center of Delaware PT Physical Therapist SCPD State Council for Persons with Disabilities SSI Supplemental Security Income SSDI Social Security Disability Income TTY/TDD Telecommunication Device for the Deaf DISABILITY AND CONSUMER BOARDS, COUNCILS AND COMMISSIONS State advisory councils seek consumer representation and welcome your participation. Call the groups below for additional information or call the Governor’s Office, Boards and Commissions at 302-7444101 to apply for membership in any of the many groups seeking consumer members. Architectural Accessibility Board ..............302-739-5644 Council on the Blind ...........................302-255-9800 Council on Deaf Equality .......................302-739-3621 Developmental Disabilities Council ............ 302-739-2232 Developmental Disabilities Services ........... 302-744-9630 Elderly and Disabled Transportation Committee (EDTAC) ............................302-577-3278 Governor’s Committee on Employment of Persons with Disabilities .............................302-761-8275 Health Care Commission .........................302-739-6906 Hispanic Affairs ...............................302-255-9743 (State) Independent Living Council .............302-761-8275 Interagency Coordinating Council ...............302-255-9135 Nursing Home Resident Quality Assurance Commission ...................................302-255-1780 Public Health ..................................302-739-4701 Services for Aging and Adults with Physical Disabilities ........................800-223-9074 State Council for Persons with Disabilities.....302-739-3621 Substance Abuse and Mental Health ..............302-255-9399 Vocational Rehabilitation ......................302-761-8275 RESOURCE GUIDES Call the agencies below for a copy of these resource guides. Coma Guide for Caregivers ......................800-223-9074 or access the guide at www.dhss.delaware.gov/dsaapd Delaware Assistive Technology Resource Guide ......... 302-651-6790 or 800-870-DATI or access the guide at www.dati.org Delaware Central Directory for Services for Young Children with Special Needs 302-255-9134 or access the guide at www.dhss.delaware.gov/dms/ Delaware Division for the Visually Impaired Consumer Resource Manual 302-255-9800 or access the guide at www.dhss.delaware.gov/dvi Delaware HIV/AIDS Resource Guide .........302-654-5471 Delaware Schools Directory 302-739-4601 or access the guide at www.doe.k12.de.us/EduDir EduDirStart.asp Directory of Human Services for Delaware ..302-255-9675 Directory of Transportation Services in Delaware 800-553-DART or access the guide at www.dartfi rststate.com/directory/ Guide to Health Insurance for Delaware Citizens 800-336-9500 or access the guide at www.delawareinsurance.gov Guide to Services for Older Delawareans ...800-223-9074 or access the guide at www.dhss.delaware.gov/dhss/dsaapd/files/aging guide.pdf Quick Reference Directory (of Human Services) 800-464-4357 Statewide Housing Services Directory 302-739-4263 or access the guide at www.destatehousing.com/ information/pubs.shtml ADA (Americans with Disabilities Act) ADA Information Center for the Mid-Atlantic Region TransCen Inc. Disability and Business Technical Assistance Centers (DBACs) 451 Hungerford Drive, Suite 700, Rockville, MD 20850 800-949-4232 www.adainfo.org Call to receive "ADA in Focus" quarterly newsletter ADA Information Line U.S. Department of Justice 800-514-0301 V 800-514-0383 TTY www.ada.gov Delaware State Coalition on the ADA (SCADA) 800-949-4232 Employment (Title 1) Equal Employment Opportunity Commission (EEOC) 800-669-4000 V www.eeoc.gov Job Accommodation Network (JAN) (with questions about accommodations on the job) 800-526-7234 www.jan.wvu.edu Access Board (accessibility guidelines) 800-872-2253 V 800-993-2822 TTY www.access-board.gov Transportation ADA Questions .....................888-446-4511 (V/TTY) Aviation Consumer Protection Hotline..800-778-4838 Project ACTION National Accessible Transportation Project 800-659-6428 www.projectaction.easterseals.com DISABILITY RELATED PUBLICATIONS ON THE NET: www.360usainc.com www.newmobility.com www.blvd.com www.disableddealer.com www.specialliving.com www.sportsnspokes.com www.pvamagazines.com www.questmag.org For information on federal government agencies, go to www.FirstUSA.gov, the U.S. government official web portal or www.disabilityinfo.gov. NATIONAL ORGANIZATIONS This is a list of some of the national organizations related to disability issues and advocacy. ABLEDATA (database of assistive devices) 8630 Fenton Street, Silver Springs, MD 20910 800-227-0216 V 301-608-8912 TTY www.abledata.com Adaptive Environments 180-200 Portland Street, Boston, MA 02114 617-695-1225 www.adaptenv.org American Association of People with Disabilities 1629 K Street, Washington, D.C. 20006 800-840-8844 www.aapd-dc.org Amputee Coalition of America 900 E. Hill Avenue, Suite 205, Knoxville, TN 37915 888-AMP-KNOW www.amputee-coalition.org ARC (Association for the Rights of Citizens with Mental Retardation) of the U.S. 1010 Wayne Avenue, Suite 650 Silver Spring, MD 20910 301-565-3842, 800-433-5255 www.thearc.org Autism Society of America 7910 Woodmont Avenue, Bethesda, MD 20814 800-3AUTISM www.autism-society.org Beach Center on Families and Disability Bureau of Child Research, University of Kansas 1200 Sunnyside Avenue, Lawrence, KS 66045 785-864-7600 www.beachcenter.org Brain Injury Association 1608 Spring Hill Road, Vienna, VA 22182 800-444-6443 www.biausa.org Center for Universal Design, College of Design North Carolina State University P.O. Box 8613, Raleigh, NC 27695 800-647-6777 www.design.ncsu.edu/cud Council for Exceptional Children 1110 N. Glebe Road, Arlington, VA 22201 888-232-7733 www.cec.sped.org Closing the Gap (assistive technology) P.O. Box 68, 526 Main Street, Henderson, MN 56044 507-248-3294 www.closingthegap.com Disability Rights Education and Defense Fund (DREDF) 2212 6th Street, Berkeley, CA 94710 800-348-4232 www.dredf.org Disability Statistics Center (UCSF) Institute for Health and Aging 3333 California Street, Suite 340 San Francisco, CA 94118 415-502-5210 www.dsc.ucsf.edu HEATH Resource Center (Post secondary education for persons with disabilities) 2134 G Street NW, Washington, D.C. 20052 202-973-0904 www.heath.gwu.edu Independent Living Research Utilization Project (ILRU) Institute for Rehabilitation and Research 2323 S. Sheppard, Suite 1000, Houston, TX 77019 713-520-0232 www.ilru.org Learning Disabilities Association of America 4156 Library Road, Pittsburgh, PA 15234 412-341-1515 www.ldanatl.org Mobility International USA (MIUSA) (international student exchange) 132 E. Broadway, Eugene, OR 97401 541-343-1284 www.miusa.org Moss Rehabilitation Center Accessible Travel Resource Center 1200 W. Tabor Road, Philadelphia, PA 19141 800-CALL-MOSS www.mossresourcenet.org National Alliance for the Mentally Ill 2107 Wilson Blvd., Suite 300, Arlington, VA 22201 800-950-6264 www.nami.org National Association of the Deaf 8630 Fenton Street, Silver Spring, MD 20910 301-587-1788 V 301-587-1789 TTY www.nad.org National Center on Secondary Education and Transition Institute on Community Integration University of Minnesota, 6 Pattee Hall 150 Pillsbury Drive SE, Minneapolis, MN 55455 612-624-2097 www.ncset.org National Clearinghouse of Rehabilitation Training Materials Oklahoma State University 206 W. Sixth Street, Stillwater, OK 74078 800-223-5219 www.nchrtm.okstate.edu National Council on Disability 1331 F Street NW, Suite 1050, Washington D.C. 20004 202-272-2004 www.ncd.gov National Dissemination Center for Children and Youth with Disabilities (NICHCY) P.O. Box 1492, Washington, D.C. 20013 800-695-0285 www.nichcy.org National Easter Seals Society 230 W. Monroe Street #1800, Chicago, IL 60606 800-221-6827 www.easter-seals.com National Empowerment Center 599 Canal Street, Lawrence, MA 01840 800-769-3728 www.power2u.org National Family Caregivers Association 10400 Connecticut Avenue, Suite 500 Kensington, MD 20895 800-896-3650 www.nfcacares.org National Institute on Disability and Rehabilitation Research (NIDRR) Department of Education 400 Maryland Ave. SW, Washington, D.C. 20202 202-245-7640 www.ed.gov/offices/OSERS/NIDRR National Mental Health Association 2001 N. Beauregard Street, Alexandria, VA 22311 800-969-6642 www.nmha.org National Mental Health Consumer Self-Help Clearinghouse 1211 Chestnut Street, Ste. 1207 Philadelphia, PA 19107 800-553-4KEY www.mhselfhelp.org National MS Society 733 3rd Avenue, New York, NY 10017 800-344-4867 www.nmss.org National Organization for Rare Disorders (NORD) 55 Kenosia Avenue, P.O. Box 1968 Danbury, CT 06813 203-744-0100 www.rarediseases.org National Organization on Disability 910 16th Street NW, Suite 600, Washington, D.C. 20006 202-293-5960 www.nod.org National Rehabilitation Information Center (NARIC) 4200 Forbes Blvd., Suite 202, Lanham, MD 20706 800-346-2742 www.naric.com National Spinal Cord Injury Association 1 Church Street, Rockville, MD 20850 800-962-9629 www.spinalcord.org PACER Center (Parent Advisory Coalition for Educational Rights) 8161 Normandale Blvd., Minneapolis, MN 55437 952-838-9000 www.pacer.org President’s Committee on Employment of Persons with Disabilities 1331 F Street N.W., Washington, D.C. 20004 202-376-6200 www.pcepd.gov Rehabilitation Society of North America (RESNA) 1700 N. Moore Street, Suite 1540, Arlington, VA 22209 703-524-6686 V 703-524-6639 TTY www.resna.org Self Help for Hard of Hearing People 7910 Woodmont Avenue, Bethesda, MD 20814 301-657-2248 www.hearingloss.org Through the Looking Glass National Resource Center for Parents with Disabilities 2198 6th Street, #100, Berkeley, CA 94710 800-644-2666 www.lookingglass.org Trace Research and Development Center 2107 Engineering Centers Building, 1550 Engineering Drive University of Wisconsin-Madison, Madison, WI 53706 608-262-6966 www.trace.wisc.edu Traumatic Brain Injury - National Resource Center Virginia Commonwealth University P.O. Box 980542, Richmond, VA 23298 804-828-9055 www.neuro.pmr.vcu.edu United Cerebral Palsy Association 1660 L Street NW, Suite 700, Washington, D.C. 20036 800-872-5827 V, 202-973-7197 TTY www.ucpa.org United Spinal Association 75-20 Astoria Blvd., Jackson Heights, NY 11370 718-803-3782 800-807-0190 (Philadelphia offi ce) www.unitedspinal.org World Institute on Disability 510 16th Street, Suite 100, Oakland, CA 94612 510-763-4100 V, 510-208-9496 TTY www.wid.org ****************** U.S. Department of Justice Civil Rights Division Disability Rights Section A GUIDE TO DISABILITY RIGHTS LAWS May 2005 This guide provides an overview of Federal civil rights laws that ensure equal opportunity for people with disabilities. To find out more about how these laws may apply to you, contact the agencies and organizations listed below. AMERICANS WITH DISABILITIES ACT (ADA) The ADA prohibits discrimination on the basis of disability in employment, State and local government, public accommodations, commercial facilities, transportation, and telecommunications. It also applies to the United States Congress. To be protected by the ADA, one must have a disability or have a relationship or association with an individual with a disability. An individual with a disability is defined by the ADA as a person who has a physical or mental impairment that substantially limits one or more major life activities, a person who has a history or record of such an impairment, or a person who is perceived by others as having such an impairment. The ADA does not specifically name all of the impairments that are covered. ADA TITLE I: EMPLOYMENT Title I requires employers with 15 or more employees to provide qualified individuals with disabilities an equal opportunity to benefit from the full range of employment-related opportunities available to others. For example, it prohibits discrimination in recruitment, hiring, promotions, training, pay, social activities, and other privileges of employment. It restricts questions that can be asked about an applicant’s disability before a job offer is made, and it requires that employers make reasonable accommodation to the known physical or mental limitations of otherwise qualified individuals with disabilities, unless it results in undue hardship. Religious entities with 15 or more employees are covered under title I. Title I complaints must be filed with the U. S. Equal Employment Opportunity Commission (EEOC) within 180 days of the date of discrimination, or 300 days if the charge is filed with a designated State or local fair employment practice agency. Individuals may file a lawsuit in Federal court only after they receive a “right-to-sue” letter from the EEOC. Charges of employment discrimination on the basis of disability may be filed at any U.S. Equal Employment Opportunity Commission field office. Field offices are located in 50 cities throughout the U.S. and are listed in most telephone directories under “U.S. Government.” For the appropriate EEOC field office in your geographic area, contact: (800) 669-4000 (voice), (800) 669-6820 (TTY) www.eeoc.gov Publications and information on EEOC-enforced laws may be obtained by calling: (800) 669-3362 (voice), (800) 800-3302 (TTY) For information on how to accommodate a specific individual with a disability, contact the Job Accommodation Network at: (800) 526-7234 (voice/TTY) www.jan.wvu.edu ADA TITLE II: STATE AND LOCAL GOVERNMENT ACTIVITIES Title II covers all activities of State and local governments regardless of the government entity’s size or receipt of Federal funding. Title II requires that State and local governments give people with disabilities an equal opportunity to benefit from all of their programs, services, and activities (e.g. public education, employment, transportation, recreation, health care, social services, courts, voting, and town meetings). State and local governments are required to follow specific architectural standards in the new construction and alteration of their buildings. They also must relocate programs or otherwise provide access in inaccessible older buildings, and communicate effectively with people who have hearing, vision, or speech disabilities. Public entities are not required to take actions that would result in undue financial and administrative burdens. They are required to make reasonable modifications to policies, practices, and procedures where necessary to avoid discrimination, unless they can demonstrate that doing so would fundamentally alter the nature of the service, program, or activity being provided. Complaints of title II violations may be filed with the Department of Justice within 180 days of the date of discrimination. In certain situations, cases may be referred to a mediation program sponsored by the Department. The Department may bring a lawsuit where it has investigated a matter and has been unable to resolve violations. For more information, contact: U.S. Department of Justice Civil Rights Division 950 Pennsylvania Avenue, NW Disability Rights Section - NYAV Washington, D.C. 20530 www.usdoj.gov/crt/ada/adahom1.htm or ada.gov (800) 514-0301 (voice) (800) 514-0383 (TTY) Title II may also be enforced through private lawsuits in Federal court. It is not necessary to file a complaint with the Department of Justice (DOJ) or any other Federal agency, or to receive a “righttosue” letter, before going to court. ADA TITLE II: PUBLIC TRANSPORTATION The transportation provisions of title II cover public transportation services, such as city buses and public rail transit (e.g. subways, commuter rails, Amtrak). Public transportation authorities may not discriminate against people with disabilities in the provision of their services. They must comply with requirements for accessibility in newly purchased vehicles, make good faith efforts to purchase or lease accessible used buses, remanufacture buses in an accessible manner, and, unless it would result in an undue burden, provide paratransit where they operate fixed-route bus or rail systems. Paratransit is a service where individuals who are unable to use the regular transit system independently (because of a physical or mental impairment) are picked up and dropped off at their destinations. Questions and complaints about public transportation should be directed to: Office of Civil Rights Federal Transit Administration U.S. Department of Transportation 400 Seventh Street, S.W., Room 9102 Washington, D.C. 20590 www.fta.dot.gov/office/civ.htm (888) 446-4511 (voice/relay) ADA TITLE III: PUBLIC ACCOMMODATIONS Title III covers businesses and nonprofit service providers that are public accommodations, privately operated entities offering certain types of courses and examinations, privately operated transportation, and commercial facilities. Public accommodations are private entities who own, lease, lease to, or operate facilities such as restaurants, retail stores, hotels, movie theaters, private schools, convention centers, doctors’ offices, homeless shelters, transportation depots, zoos, funeral homes, day care centers, and recreation facilities including sports stadiums and fitness clubs. Transportation services provided by private entities are also covered by title III. Public accommodations must comply with basic nondiscrimination requirements that prohibit exclusion, segregation, and unequal treatment. They also must comply with specific requirements related to architectural standards for new and altered buildings; reasonable modifications to policies, practices, and procedures; effective communication with people with hearing, vision, or speech disabilities; and other access requirements. Additionally, public accommodations must remove barriers in existing buildings where it is easy to do so without much difficulty or expense, given the public accommodation’s resources. Courses and examinations related to professional, educational, or trade-related applications, licensing, certifications, or credentialing must be provided in a place and manner accessible to people with disabilities, or alternative accessible arrangements must be offered. Commercial facilities, such as factories and warehouses, must comply with the ADA’s architectural standards for new construction and alterations. Complaints of title III violations may be filed with the Department of Justice. In certain situations, cases may be referred to a mediation program sponsored by the Department. The Department is authorized to bring a lawsuit where there is a pattern or practice of discrimination in violation of title III, or where an act of discrimination raises an issue of general public importance. Title III may also be enforced through private lawsuits. It is not necessary to file a complaint with the Department of Justice (or any Federal agency), or to receive a “right-to-sue” letter, before going to court. For more information, contact: U.S. Department of Justice Civil Rights Division 950 Pennsylvania Avenue, NW Disability Rights Section - NYAV Washington, D.C. 20530 www.usdoj.gov/crt/ada/adahom1.htm or ada.gov (800) 514-0301 (voice) (800) 514-0383 (TTY) ADA TITLE IV: TELECOMMUNICATIONS RELAY SERVICES Title IV addresses telephone and television access for people with hearing and speech disabilities. It requires common carriers (telephone companies) to establish interstate and intrastate telecommunications relay services (TRS) 24 hours a day, 7 days a week. TRS enables callers with hearing and speech disabilities who use telecommunications devices for the deaf (TDDs), which are also known as teletypewriters (TTYs), and callers who use voice telephones to communicate with each other through a third party communications assistant. The Federal Communications Commission (FCC) has set minimum standards for TRS services. Title IV also requires closed captioning of Federally funded public service announcements. For more information about TRS, contact the FCC at: Federal Communications Commission 445 12th Street, S.W. Washington, D.C. 20554 www.fcc.gov/cgb/dro (888) 225-5322 (Voice) (888) 835-5322 (TTY) TELECOMMUNICATIONS ACT Section 255 and Section 251(a)(2) of the Communications Act of 1934, as amended by the Telecommunications Act of 1996, require manufacturers of telecommunications equipment and providers of telecommunications services to ensure that such equipment and services are accessible to and usable by persons with disabilities, if readily achievable. These amendments ensure that people with disabilities will have access to a broad range of products and services such as telephones, cell phones, pagers, call-waiting, and operator services, that were often inaccessible to many users with disabilities. For more information, contact: Federal Communications Commission 445 12th Street, S.W. Washington, D.C. 20554 www.fcc.gov/cgb/dro (888) 225-5322 (Voice) (888) 835-5322 (TTY) FAIR HOUSING ACT The Fair Housing Act, as amended in 1988, prohibits housing discrimination on the basis of race, color, religion, sex, disability, familial status, and national origin. Its coverage includes private housing, housing that receives Federal financial assistance, and State and local government housing. It is unlawful to discriminate in any aspect of selling or renting housing or to deny a dwelling to a buyer or renter because of the disability of that individual, an individual associated with the buyer or renter, or an individual who intends to live in the residence. Other covered activities include, for example, financing, zoning practices, new construction design, and advertising. The Fair Housing Act requires owners of housing facilities to make reasonable exceptions in their policies and operations to afford people with disabilities equal housing opportunities. For example, a landlord with a “no pets” policy may be required to grant an exception to this rule and allow an individual who is blind to keep a guide dog in the residence. The Fair Housing Act also requires landlords to allow tenants with disabilities to make reasonable access-related modifications to their private living space, as well as to common use spaces. (The landlord is not required to pay for the changes.) The Act further requires that new multifamily housing with four or more units be designed and built to allow access for persons with disabilities. This includes accessible common use areas, doors that are wide enough for wheelchairs, kitchens and bathrooms that allow a person using a wheelchair to maneuver, and other adaptable features within the units. Complaints of Fair Housing Act violations may be filed with the U.S. Department of Housing and Urban Development. For more information or to file a complaint, contact: Office of Program Compliance and Disability Rights Office of Fair Housing and Equal Opportunity U.S. Department of Housing and Urban Development 451 7th Street, S.W., Room 5242 Washington, D.C. 20410 www.hud.gov/offices/fheo/index.cfm (800) 669-9777 (voice) (800) 927-9275 (TTY) For questions about the Fair Housing Act, you may call Fair Housing First at: (888) 341-7781 www.fairhousingfirst.org For publications, you may call the Housing and Urban Development Customer Service Center at: (800) 767-7468 Additionally, the Department of Justice can file cases involving a pattern or practice of discrimination. The Fair Housing Act may also be enforced through private lawsuits. AIR CARRIER ACCESS ACT The Air Carrier Access Act prohibits discrimination in air transportation by domestic and foreign air carriers against qualified individuals with physical or mental impairments. It applies only to air carriers that provide regularly scheduled services for hire to the public. Requirements address a wide range of issues including boarding assistance and certain accessibility features in newly built aircraft and new or altered airport facilities. People may enforce rights under the Air Carrier Access Act by filing a complaint with the U.S. Department of Transportation, or by bringing a lawsuit in Federal court. For more information or to file a complaint, contact: Aviation Consumer Protection Division U.S. Department of Transportation 400 Seventh Street, S.W. Room 4107, C-75 Washington, D.C. 20590 www.airconsumer.ost.dot.gov (800) 778-4838 (V) (800) 455-9880 (TTY) VOTING ACCESSIBILITY FOR THE ELDERLY AND HANDICAPPED ACT The Voting Accessibility for the Elderly and Handicapped Act of 1984 generally requires polling places across the United States to be physically accessible to people with disabilities for federal elections. Where no accessible location is available to serve as a polling place, a political subdivision must provide an alternate means of casting a ballot on the day of the election. This law also requires states to make available registration and voting aids for disabled and elderly voters, including information by telecommunications devices for the deaf (TDDs) which are also known as teletypewriters (TTYs). For more information, contact: U.S. Department of Justice Civil Rights Division 950 Pennsylvania Avenue, NW Voting Section - 1800G Washington, D.C. 20530 (800) 253-3931 (voice/TTY) NATIONAL VOTER REGISTRATION ACT The National Voter Registration Act of 1993, also known as the “Motor Voter Act,” makes it easier for all Americans to exercise their fundamental right to vote. One of the basic purposes of the Act is to increase the historically low registration rates of minorities and persons with disabilities that have resulted from discrimination. The Motor Voter Act requires all offices of State-funded programs that are primarily engaged in providing services to persons with disabilities to provide all program applicants with voter registration forms, to assist them in completing the forms, and to transmit completed forms to the appropriate State official. For more information, contact: U.S. Department of Justice Civil Rights Division 950 Pennsylvania Avenue, NW Voting Section - 1800G Washington, D.C. 20530 www.usdoj.gov/crt/voting (800) 253-3931 (voice/TTY) CIVIL RIGHTS OF INSTITUTIONALIZED PERSONS ACT The Civil Rights of Institutionalized Persons Act (CRIPA) authorizes the U.S. Attorney General to investigate conditions of confinement at State and local government institutions such as prisons, jails, pretrial detention centers, juvenile correctional facilities, publicly operated nursing homes, and institutions for people with psychiatric or developmental disabilities. Its purpose is to allow the Attorney General to uncover and correct widespread deficiencies that seriously jeopardize the health and safety of residents of institutions. The Attorney General does not have authority under CRIPA to investigate isolated incidents or to represent individual institutionalized persons. The Attorney General may initiate civil law suits where there is reasonable cause to believe that conditions are “egregious or ?agrant,” that they are subjecting residents to “grievous harm,” and that they are part of a “pattern or practice” of resistance to residents’ full enjoyment of constitutional or Federal rights, including title II of the ADA and section 504 of the Rehabilitation Act. For more information or to bring a matter to the Department of Justice’s attention, contact: U.S. Department of Justice Civil Rights Division 950 Pennsylvania Avenue, NW Special Litigation Section - PHB Washington, D.C. 20530 www.usdoj.gov/crt/split (877) 218-5228 (V, TTY) INDIVIDUALS WITH DISABILITIES EDUCATION ACT The Individuals with Disabilities Education Act (IDEA) (formerly called P.L. 94- 142 or the Education for all Handicapped Children Act of 1975) requires public schools to make available to all eligible children with disabilities a free appropriate public education in the least restrictive environment appropriate to their individual needs. IDEA requires public school systems to develop appropriate Individualized Education Programs (IEP’s) for each child. The specific special education and related services outlined in each IEP reflect the individualized needs of each student. IDEA also mandates that particular procedures be followed in the development of the IEP. Each student’s IEP must be developed by a team of knowledgeable persons and must be at least reviewed annually. The team includes the child’s teacher; the parents, subject to certain limited exceptions; the child, if determined appropriate; an agency representative who is qualified to provide or supervise the provision of special education; and other individuals at the parents’ or agency’s discretion. If parents disagree with the proposed IEP, they can request a due process hearing and a review from the State educational agency if applicable in that state. They also can appeal the State agency’s decision to State or Federal court. For more information, contact: Office of Special Education Programs Office of Special Education & Rehabilitative Services U.S. Department of Education 400 Maryland Avenue SW Washington, D.C. 20202 www.ed.gov/about/offices/list/osers/osep (202) 245-7468 (voice/TTY) REHABILITATION ACT The Rehabilitation Act prohibits discrimination on the basis of disability in programs conducted by Federal agencies, in programs receiving Federal financial assistance, in Federal employment, and in the employment practices of Federal contractors. The standards for determining employment discrimination under the Rehabilitation Act are the same as those used in title I of the Americans with Disabilities Act. Section 501 Section 501 requires affirmative action and nondiscrimination in employment by Federal agencies of the executive branch. To obtain more information or to file a complaint, employees should contact their agency’s Equal Employment Opportunity Office. Section 503 Section 503 requires affirmative action and prohibits employment discrimination by Federal government contractors and subcontractors with contracts of more than $10,000. For more information on section 503, contact: Office of Federal Contract Compliance Programs U.S. Department of Labor 200 Constitution Avenue, N.W., Room C-3325 Washington, D.C. 20210 www.dol.gov/dol/esa/ofccp (202) 693-0106 (voice/relay) Section 504 Section 504 states that “no qualified individual with a disability in the United States shall be excluded from, denied the benefits of, or be subjected to discrimination under” any program or activity that either receives Federal financial assistance or is conducted by any Executive agency or the United States Postal Service. Each Federal agency has its own set of section 504 regulations that apply to its own programs. Agencies that provide Federal financial assistance also have section 504 regulations covering entities that receive Federal aid. Requirements common to these regulations include reasonable accommodation for employees with disabilities; program accessibility; effective communication with people who have hearing or vision disabilities; and accessible new construction and alterations. Each agency is responsible for enforcing its own regulations. Section 504 may also be enforced through private lawsuits. It is not necessary to file a complaint with a Federal agency or to receive a “right-to-sue” letter before going to court. For information on how to file 504 complaints with the appropriate agency, contact: U.S. Department of Justice Civil Rights Division 950 Pennsylvania Avenue, NW Disability Rights Section - NYAV Washington, D.C. 20530 www.usdoj.gov/crt/ada/adahom1.htm or ada.gov (800) 514-0301 (voice) (800) 514-0383 (TTY) Section 508 Section 508 establishes requirements for electronic and information technology developed, maintained, procured, or used by the Federal government. Section 508 requires Federal electronic and information technology to be accessible to people with disabilities, including employees and members of the public. An accessible information technology system is one that can be operated in a variety of ways and does not rely on a single sense or ability of the user. For example, a system that provides output only in visual format may not be accessible to people with visual impairments and a system that provides output only in audio format may not be accessible to people who are deaf or hard of hearing. Some individuals with disabilities may need accessibility-related software or peripheral devices in order to use systems that comply with Section 508. For more information on section 508, contact: U.S. General Services Administration Center for IT Accommodation (CITA) 1800 F Street, N.W. Room 1234, MC:MKC Washington, DC 20405-0001 www.gsa.gov/section508 (202) 501-4906 (voice) (202) 501-2010 (TTY) U.S. Architectural and Transportation Barriers Compliance Board 1331 F Street, N.W. Suite 1000 Washington, DC 20004-1111 www.access-board.gov 800-872-2253 (voice) 800-993-2822 (TTY) ARCHITECTURAL BARRIERS ACT The Architectural Barriers Act (ABA) requires that buildings and facilities that are designed, constructed, or altered with Federal funds, or leased by a Federal agency, comply with Federal standards for physical accessibility. ABA requirements are limited to architectural standards in new and altered buildings and in newly leased facilities. They do not address the activities conducted in those buildings and facilities. Facilities of the U.S. Postal Service are covered by the ABA. For more information or to file a complaint, contact: U.S. Architectural and Transportation Barriers Compliance Board 1331 F Street, N.W., Suite 1000 Washington, D.C. 20004-1111 www.access-board.gov (800) 872-2253 (voice) (800) 993-2822 (TTY) GENERAL SOURCES OF DISABILITY RIGHTS INFORMATION ADA Information Line (800) 514-0301 (voice) (800) 514-0383 (TTY) www.ada.gov Regional ADA and IT Technical Assistance Centers (800) 949-4232 (voice/TTY) www.adata.org STATUTE CITATIONS Air Carrier Access Act of 1986 49 U.S.C. § 41705 Implementing Regulation: 14 CFR Part 382 Americans with Disabilities Act of 1990 42 U.S.C. §§ 12101 et seq. Implementing Regulations: 29 CFR Parts 1630, 1602 (Title I, EEOC) 28 CFR Part 35 (Title II, Department of Justice) 49 CFR Parts 27, 37, 38 (Title II, III, Department of Transportation) 28 CFR Part 36 (Title III, Department of Justice) 47 CFR §§ 64.601 et seq. (Title IV, FCC) Architectural Barriers Act of 1968 42 U.S.C. §§ 4151 et seq. Implementing Regulations: 41 CFR Subpart 101-19.6 Civil Rights of Institutionalized Persons Act 42 U.S.C. §§ 1997 et seq. Fair Housing Amendments Act of 1988 42 U.S.C. §§ 3601 et seq. Implementing Regulation: 24 CFR Parts 100 et seq. Individuals with Disabilities Education Act 20 U.S.C. §§ 1400 et seq. Implementing Regulation: 34 CFR Part 300 National Voter Registration Act of 1993 42 U.S.C. §§ 1973gg et seq. Section 501 of the Rehabilitation Act of 1973, as amended 29 U.S.C. § 791 Implementing Regulation: 29 CFR § 1614.203 Section 503 of the Rehabilitation Act of 1973, as amended 29 U.S.C. § 793 Implementing Regulation: 41 CFR Part 60-741 Section 504 of the Rehabilitation Act of 1973, as amended 29 U.S.C. § 794 Over 20 Implementing Regulations for federally assisted programs, including: 34 CFR Part 104 (Department of Education) 45 CFR Part 84 (Department of Health and Human Services) 28 CFR §§ 42.501 et seq. Over 95 Implementing Regulations for federally conducted programs, including: 28 CFR Part 39 (Department of Justice) Section 508 of the Rehabilitation Act of 1973, as amended 29 U.S.C. § 794d Telecommunications Act of 1996 47 U.S.C. §§ 255, 251(a)(2) Voting Accessibility for the Elderly and Handicapped Act of 1984, 42 U.S.C. §§ 1973ee et seq. *U.S. Government Printing Office: 1998 — 417-737/74258 ********************* A Guide To Insurance And Health Care Programs For People With Disabilities Info and tips for people with disabilities covered by private or public health care in Delaware From Matthew Denn Delaware’s Insurance Commissioner 1-800-282-8611 www.state.de.us/inscom A Message From Delaware’s Insurance Commissioner Matthew Denn This guide is intended to answer many of the questions faced by people with disabilities regarding their insurance or health plan coverage – from what you can expect when it comes to purchasing different types of insurance to situations you may face when seeking coverage for treatment to how to insure your medical equipment. We could not have produced this guide without the help of a number of devoted Delawareans: Brian Hartman of the Community Legal Aid Society; Kyle Hodges of the State Council for Persons with Disabilities; Christine Long of the Division of Developmental Disabilities Services; Patricia Maichle of the Delaware Developmental Disabilities Council; Rita Marocco of the National Association for the Mentally Ill-Delaware; Wendy Strauss of the Governor’s Advisory Council for Exceptional Citizens; and Jamie Wolfe of the DDDC and SCPD. Thanks to each of them. How Are You Covered? What benefits you qualify for, what processes you must go through to get them and even who can help you if you run into trouble depends on what type of health coverage you have. People with disabilities may be covered under any of the following programs or plans, or could be covered by some combination of them. If you are covered in more than one way, it’s important to know which is your primary plan and which is your secondary plan. An active employer policy is always primary over any state or federal policy. . Medicare: The federal program that offers health coverage to seniors and people with disabilities in the Social Security disability system. . Employer/private/commercial health plan: If your disability is covered by a private insurance company by a policy obtained through an employer or by a policy you have purchased as an individual, it falls in this category. . Medicaid: A federal government program that provides health benefits to adults and children with disabilities who meet financial standards. . Parents' benefits: For those who were born with a disability or acquired a disability before reaching a certain age, they are often covered by their parents' health insurance from a private employer. . Military veterans benefits: If the disability was acquired during military service, it is likely covered under veterans benefits administered by the federal Department of Veterans Affairs (VA). . Active military: Children with disabilities whose parents are active military are covered by the federal government's health care plan for the armed services, called TRICARE. . State funded programs: There are a number of state funded programs that may provide some form of assistance or cover some services for people with disabilities. For adults, it may include the Delaware Prescription Assistance Program to defray the cost of prescription drugs. For children, the Delaware Healthy Children Program covers the cost of medical care for those who meet eligibility requirements. . Workers compensation: Administered by the Delaware Department of Labor, covers disabilities that are job-related. Terms To Know Acute care – Short-term medical treatment, usually in a hospital, for patients having an acute illness or injury or recovering from surgery. ADA - The Americans with Disabilities Act of 1990 prohibits discrimination against individuals with disabilities in employment, housing, education and access to public services. The federal Department of Justice and the Equal Employment Opportunity Commission are charged with enforcing many of the provisions of the ADA. Assistive technology - Any item, piece of equipment, or product system, whether acquired commercially or off the shelf, modified, or customized, that is used to increase, maintain, or improve functional capabilities of individuals with disabilities. Assistive technology includes, but is not limited to, wheelchairs, reading machines and devices for grasping. In the area of computers, assistive technologies include screen readers, screen magnifiers, speech synthesizers, voice input software and more. Co-pay – A pre-set charge or contribution for a medical visit or service that the patient is responsible for paying, with an insurance policy or medical coverage plan paying the rest. For example, a visit to a primary doctor’s office may have a co-pay for the patient of $10, a visit to a specialist $20, an emergency room visit $135, etc. Custodial care – Assistance with the activities of daily living, whether in a residential care facility or at home, including, but not limited to, help in walking, bathing, preparing meals and supervising use of medications. Custodial care normally does not require a trained medical professional. Dual eligibility – Someone who meets the qualifications for both Medicare and Medicaid. Durable medical equipment – Durable medical equipment can be used over and over again, is ordinarily used for medical purposes and is generally not useful to a person who isn’t sick, injured or disabled. Examples include canes, crutches, walkers, wheelchairs, hospital beds, bed pans, special toilet seats and machines that make breathing easier. ERISA – Some health plans are what is known as “self-funded,” meaning that rather than having an insurance company assume the risk and possibly lose money when claims are paid out, the organization that is providing their coverage is at risk. A company may administer a self-funded plan (in that situation, called a “third party administrator”), but ultimately is not responsible for its losses, rules, procedures or decisions. Self-funded plans were made exempt from oversight by the state Department of Insurance under the federal Employee Retirement Income Security Act, and thus are sometimes known as ERISA plans. Long-term care insurance – An insurance policy purchased to pay your costs in the event that you need long-term care services. Depending on the policy, long- term care services may include home health care, respite care, adult day care, care in a nursing home or in an assisted living facility. Medicaid waiver – An ability by the state to allow persons to enroll in Medicaid programs under more liberal financial and other standards and to offer an enhanced menu of services. Medical necessity – A standard used by insurers to determine whether a prescribed or desired treatment is covered. The standard varies from company to company, but often addresses whether a treatment is in accordance with the generally accepted standards of medical practice, appropriate for the patient’s illness, injury or disease, and is not simply for the convenience of the patient or physician. Out-of-network – Refers to treatment professionals who have not signed provider contracts with the insurer providing coverage for your care. Typically, an insurance subscriber will pay a higher cost or be responsible for the full fee to see an out-of-network treatment professional. PDL – A preferred drug list is a list of medications in any given class of medications, developed by the insurer, that the physician and/or prescriber is allowed to choose from when deciding the best drug therapy for your diagnosed condition, and for which the insurer will pay. Parity – Equivalent benefits and restrictions in insurance coverage for mental health services and for other health services. In Delaware, state law requires health insurance coverage for treatment of mental disabilities to be equal to treatment for physical disorders. Pre-existing condition – A current or past health problem which must be disclosed in applications for health insurance. Failure to disclose a preexisting condition could be cause for an insurance company to cancel your policy. Some insurance policies may exclude any coverage of a pre-existing condition. If a health insurance plan does not have such an exclusion, the company must cover your pre-existing condition, though often after an affiliation period or probationary employment period. Federal law restricts how insurers can ban coverage and medical treatments or treatments for pre-existing conditions. Prior authorization – The active step that the physician and/or prescriber of medications must take in order to gain approval for medications that are either not approved for step 1 of step therapy or not included on a preferred drug list (PDL) that most insurers have developed. Prior authorization is also required by insurers in advance of many medical procedures Skilled nursing – Institutional care that is less intensive than hospital care in its nursing and medical services, but which includes procedures whose administration requires the training and skills of an RN. Step therapy – involves starting treatment with a less costly medication (which is step 1) and moving only if necessary to more costly treatment (step 2). When the insurer deems it appropriate, step 2 drugs may be authorized if step 1 drugs are not effective for your condition. Step therapy prescription programs are designed to save on health care costs while providing medication that has been deemed by the insurer as historically effective. Third-party administrator – In some cases, refers to an insurer that administers a self-funded plan (see “ERISA”). Other times, the term refers to a company contracted by an insurance company to administer a specific set of benefits. For instance, many insurers use a third-party administrator to administer mental health benefits. Insuring Equipment Durable medical equipment, such as walkers, wheelchairs, and hospital beds, are generally covered under homeowners insurance policies in case the equipment is damaged in a disaster or stolen. However, there may be limits in your homeowner policy on the coverage – check with your insurance agent or company to make sure. You may need an addition to your policy – called an endorsement, a floater or a rider – to make sure your equipment is covered for its full value. If you rent your home, you will only be covered for damage or theft of your property – including durable medical equipment – if you have purchased renters insurance. Talk to an agent or insurance company. Since 2004, state law has required that all new assistive technology devices sold or leased to Delaware consumers have a one-year warranty. If a device is defective, and if the consumer attempts to have the device repaired or reports 30 cumulative days of the device being out of service, the manufacturer must at the consumer’s direction replace the item or refund the purchase price. Rights And Privacy Under a federal law called HIPAA (Health Insurance Portability and Accountability Act ), you have extensive rights to keep your medical information private. Some things you should know: . If you want your family members to be able to discuss your condition with doctors or to check on your status while you are having a procedure, you must specifically grant them permission. Even for those whom you grant permission, you may restrict what they can see. For example, you may wish your family to know your medical diagnosis, but not share its causes or your medical history. . You have the right to refuse to give your HIPAA authorization to, or to rescind your authorization from, anyone – including doctors and your insurance company. However, if you refuse to grant your insurance company or medical plan access to your records, they may refuse to provide coverage. . When you sign a HIPAA authorization for a new doctor, a specialist or insurance company, you can have it expire after a specific period of time, such as 6 months or a year, after which your permission would have to be sought again. What's Covered? It is important to know what is and isn’t covered under your health plan. Make sure to check on the following items. . Assistive technology . Co-pays . Caps on benefits . Dental . Diabetic supplies . Doctor visits . Durable medical equipment . Emergency room visits . Hearing aids . Hospital stays . In-home care . Long-term care . Mental health – in- and outpatient treatment . Substance abuse – in- and outpatient treatment . Out-of-network – what are the benefit levels and out-of-pocket costs? . Prescription drugs . Rehabilitation services . Routine checkups and well visits . Therapy . Vision and eyeglasses Tips . Read and understand your policy before you face a medical issue. If you do not understand something in your policy, contact your insurance agent or company and ask to have it explained to you. . Keep records of all your communications with insurance companies about your benefits, including the names of people you speak to over the phone and the dates of your conversation. . Put all complaints in writing and use certified mail so you have a record that your complaint was received and when. . Keep your health insurance card with you at all times or know your insurance company, your identification number and account number. . Maintain a list of medications that don't work for you. A fugure doctor may want to prescribe the drug to you again. . Have a copy of your health history. . If you are having a problem with your insurance company, speak to your employer’s human resources personnel, if applicable. They are the ones to whom your insurance company is accountable. . Know which is your primary insurance and which is your secondary insurance. . Your insurance/doctors are required to provide you the information however you can understand it, which may include Braille, sign language, large print. Ask for information a