June 2000 and Planning today to improve the lives of tomorrow State of Delaware Department of Health and Social Services (Division of Public Health) Delmarva Health Initiative Delaware Rural Health Plan Delaware Rural Health Plan June 2000 Planning today to improve the lives of tomorrow Table of Contents Executive Summary Rural Health Plan – Context within Existing State and Local Allocating Resources for Leadership Development and Staff Acknowledgements Acronyms Section I. Introduction to the Rural Health Plan Plan Overview General Characterization of Sussex County Rural Health Plan - Strategies Rural Health Plan - Process Planning Efforts The Rural Health Plan and Value Delivery Components of the “Value Chain” for Rural Health Section II. Environmental Analysis – Needs, Resources, and Gaps Needs Considered in the RHP Types of Resources Considered in the RHP Observations on Resource Sufficiency and Quality Aligning Resources with Needs – “Where are the Gaps?” Section III. Strategic and Operational Improvements Introduction Lifecycle Recommendations Service Area Recommendations Special Considerations Recommendations Summary of RHP Recommendations Master Table of Suggested Policy Collaborators Section IV. Leadership and Staffing Introduction Stakeholders Defined Accountable Entities and Shared Responsibility Accountability in Sussex County Support Section V. Funding Introduction Using the RHP to Finance Health Improvement General Funding Strategy Process Sources of Funding Section VI. Risks and Uncertainties Introduction Potential Risks and Uncertainties Section VII. Strategic Synthesis Introduction Principles/Tests of the RHP Strategy Table of Contents Page i Delaware Rural Health Plan June 2000 Planning today to improve the lives of tomorrow Appendices Appendix A Medicare Rural Hospital Flexibility Program (MRHFP) Appendix B Northland Health Group (NHG) - Firm Background Appendix C Value Chain Detail Appendix D Stakeholders Contributing to the Rural Health Plan Appendix E List of Studies Relevant to the RHP Appendix F Summary of Notes for Policy and Initiative Development (DRAFT) Table of Contents Page ii Delaware Rural Health Plan Planning today to improve the lives of tomorrow June 2000 Executive Summary In recognition of the unique and predominantly rural nature of Sussex County, the State of Delaware Department of Social Services - Division of Public Health (DPH) applied for Federal Office of Rural Health Policy grant funding to develop a Rural Health Plan (RHP). The Plan was designed to present an organized and strategic approach to improving the health of Sussex County residents. The RHP takes a community sensitive approach to addressing health status and access to services within Sussex County. The principal approaches employed in the RHP include: 1. Recognizing and building upon the prior and anticipated future collective efforts of multiple stakeholders to improve health status and access to health care services in Sussex County; 2. Balancing Sussex County health needs with existing and potential resources; and 3. Developing recommendations for policies and implementable targeted initiatives, which rely upon collaboration between government and community stakeholders. The authors of the Plan believe that in order to be relevant, and to play an instrumental role in improving the health of Sussex County residents, recommendations must deliver value to citizens. The RHP therefore applies business concepts of value creation to the greatest degree possible in the context of recommendations for health care improvement. The RHP’s “customers” are the residents of Sussex County whose health status it addresses. The process of RHP development deeply involved committed and knowledgeable stakeholders. The Delmarva Health Initiative (DHI) served as Steering Committee for plan development. The Steering Committee itself met monthly with the consultants to review and critique interim findings and recommendations. Written documentation was supplemented by additional primary and secondary qualitative research, including more than 50 individual interviews with a diverse range of Sussex County stakeholders, stakeholder focus groups involving key constituencies, and finally, a working stakeholder retreat held at Dewey Beach, Delaware on May 22, 2000. Final recommendations were drafted only after the stakeholder retreat input focused on action planning was available. In Section II of the Plan, needs and resources are organized by lifecycle (Infant and Perinatal; Child and Adolescent; Adult; and Geriatric), by clinical service type (Primary Care; Dental Care; Behavioral and Mental Health; and Home Care) and additionally by certain special needs areas (Cultural, Minority, Racial and Ethnic Issues; Access to Resources; Leadership and Planning; and Infrastructure). Each of the ten recommended policies and ten suggested initiatives in Section III were matched to identified needs and resource gaps. These are summarized in Table III-1 (page 43). Both policies and initiatives are a focused and feasible set of recommendations that could lead to measurable implementation goals. The RHP focuses on the highest priority issues. In developing these recommendations, an active attempt was made to build on existing activities and infrastructure wherever possible. An effort was also made to avoid emphasis on those areas that are already being actively addressed in an organized and effective way. Executive Summary Page 1 Delaware Rural Health Plan Planning today to improve the lives of tomorrow June 2000 Prioritization and operational implementation planning will be the next task of the stakeholders. Leadership and staffing will therefore be key to successful implementation of RHP recommendations. Leadership issues are directly addressed in Section IV. The concept of “accountable entities” (stakeholders committed to “leading change”) is introduced in this section and should be viewed as applicable to suggestions for initial collaborators, which are provided with each recommendation. Section V addresses funding. The Plan stresses that while direct service resources require funding in order to focus on eliminating gaps, financial resources should also be directed toward training leaders, providing staff to develop and facilitate coalitions of stakeholders and accountable entities, and to supporting systems that can deliver county specific, statistical and other data essential to making sound decisions. The RHP has documented the significant need to leverage available resources through concerted shared responsibility. The RHP is not itself a grant application or a direct funding mechanism. Rather it is a potential guide to local or state agencies for setting funding priorities based on delivering value to Sussex County. Discrete initiative recommendations from the RHP can be extracted and enhanced for presentation as funding requests whereas policy recommendations may create the vehicle for a range of fundable opportunities. Risks and uncertainties detailed in Section VI denote potential barriers to successful implementation of the RHP. By recognizing these, proactive strategies may be undertaken to minimize risks of achieving less than full value through the RHP. While it is not possible to predict all the potential barriers to success for each initiative and policy recommendation in the RHP, it is worthwhile to focus some attention on major anticipated areas of risk and uncertainty for the RHP as a whole. Section VII contains a “strategic synthesis.” This is an opportunity to overview the RHP as a whole and ask 10 important questions which ensure that the rural health business plan considers and applies key strategic principles appropriately. These same questions can, and should, be reapplied to specific strategies and initiatives developed in the course of implementing the RHP. The RHP is presented jointly to the Governor and Sussex County Administration. It is submitted as a contribution to health planning for Sussex County. The Plan honors past accomplishments with both pride and respect. It offers sober and candid analysis regarding those challenges that remain. It embodies optimism regarding the real potential for positive change which can be realized by building on the collaborative spirit and energy which has characterized prior successes. Executive Summary Page 2 Delaware Rural Health Plan June 2000 Planning today to improve the lives of tomorrow Acknowledgements As principal collaborators in the development of the Delaware (Sussex County) Rural Health Plan, both the Delmarva Health Initiative and the Department of Social Services – Division of Public Health wish to recognize the Sussex County hospitals as well as numerous other agencies, organizations, institutions, and individuals who have contributed to improving the health of Sussex County residents in advance of this plan. Although it has been impossible to individually note each of these past contributions in the Rural Health Plan, the current effort to organize and coordinate efforts going forward would not have been possible without the important groundwork accomplished more informally in the past. Only through the continuation of such important and dedicated grassroots efforts will progress on the ambitious goals of the Rural Health Plan be successful. Steering Committee Members Prue E. Albright Division of Public Health Norene Broadhurst Beebe Medical Center Don Clark Nanticoke Health Services Barbara DeBastiani Division of Public Health Stephany Foster Electronic Data Systems Liaison to DE Healthy Children William Gallery, DVM Edward Goate Central Delaware Community Health Partnership, Inc. Reverend John Hird Beebe Medical Center Trustee Wallace Hudson Beebe Medical Center Paul Lakeman Bayhealth Medical Center Joe Liefbroer Johnson Wax Colonel Mike Martin Dover Air Force Base Bill Neaton Bayhealth Medical Center Gina Bianco Perez Division of Public Health Beverly Smith Division of Public Health Lois Studte Southern Delaware Community Health Partnership, Inc. Acknowledgements Page 3 Delaware Rural Health Plan Planning today to improve the lives of tomorrow June 2000 Acronyms Abbreviation/ Acronym Full Text AARP American Association of Retired Persons AHCRQ Agency for Health Care Research & Quality ALS Advanced Life Support AAPP Alliance for Adolescent Pregnancy Prevention BBA Balanced Budget Act BLS Basic Life Support CAH Critical Access Hospital CD/SA Chemical Dependency and Substance Abuse CDC Center for Disease Control CON Certificate of Need CTT Certified Therapeutic Technician DAAPD Division of Aging Adults with Physician Disabilities DADAMH Division of Alcohol, Drug Abuse and Mental Health DDAIC Delaware Dental Access Improvement Committee DHCC Delaware Health Care Commission DHI Delmarva Health Initiative DHSS Department of Health and Social Services DIDER Delaware Institute for Dental Education and Research DIMER Delaware Institute for Medical Education and Research DPH Division of Public Health DSCYF Department of Services for Children, Youth, and their Families DSS Division of Social Services EMS Emergency Medical Service FTE Full Time Equivalent HCFA Health Care Financing Administration HPSA Health Professional Shortage Area HRSA Health Resources and Services Administration LBW Low Birth Weight MCO Managed Care Organization MRHFP Medicare Rural Hospital Flexibility Program MVA Motor Vehicle Accident NASW National Association of Social Workers NHG Northland Health Group ORHA Federal Office of Rural Health Policy PCP Primary Care Physician RHP Rural Health Plan RWJ The Robert Wood Johnson Foundation SBHC School Based Health Care SCI Strong Communities Initiatives SEER Surveillance, Epidemiology, and End Results Program STD Sexually Transmitted Disease Abbreviations/Acronyms Page 4 Section I Planning today to improve the lives of tomorrow Delaware Rural Health Plan Introduction to the Rural Health Plan Delaware Rural Health Plan Planning today to improve the lives of tomorrow June 2000 I. Introduction to the Rural Health Plan Plan Overview In recognition of the unique rural nature of Sussex County, Delaware, the Division of Public Health (DPH) applied for Federal Office of Rural Health Policy grant funding to enable development of an innovative Delaware (Sussex County) Rural Health Plan (RHP). The RHP takes a community sensitive approach to addressing the following aspects of health status and access to services in Sussex County (illustrated in Figure I-1): Figure I-1: IOM Model - Health Care Operating Environment • Health care resources; • Physical environment; • Social environment; • Disease prevalence; • Health and function; and • Well-being.1 While addressing each of these issues at some level, the RHP focuses primarily on the issues of primary (characteristics of the population and health care delivery system) and secondary (environmental) Social Environment Physical Environment Genetic Endowment Well-Being Disease Health Care Individual Response Health and Function Prosperity determinants of health. Evans and Stoddard, 1990, “Producing Health, Consuming Health Care” The RHP is intended to create awareness for those who are relatively unfamiliar with the county (e.g., new residents and policy makers from other parts of the state), as well as deepen the understanding and perspective of established stakeholders within Sussex County. General Characterization of Sussex County Sussex County is unique among both its peer counties within Delaware (Kent and New Castle) and the bordering counties in Maryland to the south and east. Given its area of 950 square miles, Sussex is one of the largest counties east of the Mississippi River and accounts for nearly half of the state’s total area. The total population of approximately 141,000 is aggregated primarily around the county’s four cities: Georgetown, Lewes, Milford, and Seaford. Not unexpectedly, health care resources are also concentrated in these areas. Rural Health Plan - Strategies The principal strategies employed in the RHP include: 1. Recognizing and building upon the prior and future collective efforts of multiple stakeholders to improve health status and access to health care services in Sussex County; 1 Institute of Medicine. Improving Health in the Community. National Academy Press: 1997. Section I Page 5 Delaware Rural Health Plan Planning today to improve the lives of tomorrow June 2000 2. Balancing Sussex County health needs with area resources, as reflected by a qualitative and quantitative understanding of existing assets and circumstances. This includes the input from government agencies, community groups, and individuals, representing health care providers, regulatory agencies, policy makers, social services, advocacy, and/or referral agencies; and 3. Developing policy and strategy recommendations and implementing targeted initiatives, which rely upon identified lead agencies and organizations that can achieve success through collaboration with relevant and interested community stakeholders. Although the distinctive geographic and demographic characteristics of Sussex County may not easily permit comparisons to rural areas in other eastern states, many of those states have completed RHPs focused on improving the quality of, and access to, health care in rural areas. These strategies have generally focused on facilitating the designation of Critical Access Hospitals (CAH), small facilities (with up to 15 acute care beds) which agree to certain size and activity limitations in exchange for generally favorable Medicare reimbursement. While this option has been explored in Delaware, it does not currently apply to any of the three existing Sussex County hospitals. The state’s approach to considering possible CAH development is set forth in Appendix A. The Delaware (Sussex County) Rural Health Plan therefore focuses on community-based health improvement rather than hospital-specific strategies. Through the Delaware State Office of Rural Health, DPH has shared responsibility for developing the RHP with the Delmarva Health Initiative (DHI), a county-wide collaborative of health care providers and advocates largely derived from past Sussex County Health Summits. DHI identified the need for technical assistance to facilitate RHP development and selected the Maine based Northland Health Group2 (NHG) to research and author the Plan. Rural Health Plan - Process DHI met monthly as the Steering Committee for this effort. DHI reviewed and critiqued interim findings and recommendations based on a review of existing need assessments and resource descriptions. This analysis was supplemented by additional primary and secondary qualitative research, including more than 50 interviews with a diverse range of Sussex County stakeholders. Complete listings of interviewees and documentation reviewed are provided in Appendices D and E. NHG also visited certain key community sites, government and community agencies, and provider facilities. Interviewees provided meaningful contributions to the understanding of key opportunities, challenges, and barriers addressed by the Plan. Rural Health Plan - Context within Existing State and Local Planning Efforts Lessons learned from historical public health planning efforts reveal an important balance for the RHPs users to appreciate. From one perspective, the Plan could be expected to be “allencompassing” so that the interests of all stakeholders are meaningfully represented (e.g., “wide representation and participation”). From another point of view, the Plan must be focused on high priority and high impact issues, and must contain clear and specific guidance for policy and 2 For NHG qualifications and firm background please see Appendix B Section I Page 6 Delaware Rural Health Plan Planning today to improve the lives of tomorrow June 2000 action (e.g., “less is more”) with value derived from focusing attention on a limited number of issues. Figure I-2: Context for Rural Health Plan RURAL 2010 / HEALTH PLAN HEALTHY DELAWARE ALL OTHER STATE-WIDE PLANNING SERVICE AREA OR COMMUNITY PLANNING CITY PLANNINGCOUNTY SUB- DIVISIONS In either circumstance, successful development of the RHP must create a contextual “fit” between existing state and community-level planning processes and activities (illustrated in Figure 2). The RHP does not replace, but rather complements, initiatives targeted to individual community needs or “at-risk” populations in particular areas. It provides a strategic and advocacy focus, at all levels of policy and implementation, for issues relevant to Sussex County. It can inform collaborative action across communities and can guide both policy makers and funders on pressing county-wide issues. At the broadest level, the RHP can serve to create relevant connections among state planning initiatives such as Health Delaware 2010, the Delaware Institute for Medical Education and Research (DIMER), and the Delaware Health Care Commission (DHCC) as well as multiple new and ongoing agency specific initiatives. The Rural Health Plan and Value Delivery In order to be relevant and to play an instrumental role in improving the health of Sussex County residents, projects and initiatives must deliver value to citizens. The model for understanding value delivery is found in commercial businesses, which regularly focus on the importance of value for attracting and retaining customers. This focus supports the ability of any business to operate efficiently, responsively, and profitably and thus be durable in its marketplace. The RHP applies the business concept of value creation to the greatest degree possible in the context of health care improvement. The RHPs “customers” are the residents of Sussex County whose health status it addresses. Additionally, however, customers could include the hospitals and other direct service providers, community based social service agencies, businesses, the state of Delaware itself, and perhaps many others who will use the RHP and benefit from its vision of policy and project opportunities. Components of the “Value Chain” for Rural Health The top value chain model seen below (Figure I-3) is presented to illustrate the components of value production for a manufacturing firm that produces goods from raw materials. Primary production activities are those that are easily recognizable as components of selling, constructing, or delivering a manufactured product. Support Activities and Processes are the “back room” functions that are necessary to support the primary activities but which are sometimes overlooked when measuring value. Both primary production and support activities are necessary. Each category expresses functionalities that are provided by the firm or delivered collaboratively with partnering organizations (e.g., subcontracted activities, joint ventures, etc.). Section I Page 7 Delaware Rural Health Plan Planning today to improve the lives of tomorrow June 2000 Figure I-3: Classical Manufacturing Value Chain Model ) ((( ) ( / Primary Production Activities Operations Infrastructure Staff and Leadership R & D Informational Technology Outbound Logistics Marketing and Sales Support Processes and Activities Service Inbound Logistics (Customer AcquisitionRaw Material Procurement) Fabrication) Delivery and FulfillmentPost-Sales Service and Support) Facility, Plant, Finance, Systems, etc. HR Functions: Recruitment, Training , etc. Product Development and Improvement InternalExternal Communications, Analysis, etc. Effective Product Marketing and Sales to Customers The value chain expresses the way in which different components of a business system complement each other to create value for “end users” or “customers.” A value chain adapted to rural health care is represented below (Figure 4). For each element of rural health care (i.e., dental health, primary care, and home health care), analogous Primary Activities (Projects and Initiatives) contribute in a linear fashion to program execution or delivery of services. This can be compared to an assembly line in a manufacturing production process for making “widgets.” Similarly, Support Activities (Policies and Structures) are essential enablers of the primary activities and the system, but do not directly play a role in production or delivery of services. Figure I-4: Rural Health Plan Value Chain Model ) Projects and Initiatives Provision of Direct Services Infrastructure Leadership/Staffing Planning Communication Discharge, Referral, Placement Public Awareness, Education, Information Policies and Structures Surveillance, Assessment, Monitoring, Prevention Access, Intake, Registration Value = Optimal Health Status for Sussex County Residents (CustomersFinance, Environmental Factors Accountability, Stakeholders, Recruitment, Training Project Development, Improvement, and Pilots Coordination, Partnering, Information Sharing, IT The concept of RHP “value delivery” therefore encompasses all of the components required for successful accomplishment of recommended projects and initiatives. The model is used throughout this document to analyze needs and resources as well as to target policies and initiatives to yield the most effective impact on community health status. Section I Page 8 Section II Planning today to improve the lives of tomorrow Delaware Rural Health Plan Environmental Analysis - Needs, Resources, and Gaps Delaware Rural Health Plan Planning today to improve the lives of tomorrow June 2000 II. Environmental Analysis – Needs, Resources, and Gaps Needs Considered in the Rural Health Plan After reviewing existing needs studies, NHG generally focused on those studies that were no more than three years old and contained specific, quantitative information regarding Sussex County issues. The focus on county-level studies limited the amount of available information. While there was no shortage of analytic studies and monographs for review, many contained data and observations that were aggregated and reported at the state level. Using these studies to plan at the county level would have required an assumption that Sussex County residents have the same needs and characteristics as Kent and New Castle Delawareans. However, this is not the case. For example, a review of data that is available for Sussex County (e.g., vital statistics) reveals that patterns of health, disease, and behavior differ dramatically in Sussex County when compared to the state as a whole or to Kent and New Castle Counties. Types of Resources Considered in the Rural Health Plan Multiple resources contribute to the Sussex County health care delivery system. In the Plan, resources are categorized into three types: • Direct Health Care Providers (providers of direct clinical health care services) • Human Service Providers (community or state agencies providing social services) • Service Integrators/Advocates (organizations providing referrals and/or problem solving assistance to clients across a broad range of needs) Each resource type contributes uniquely to the health status of rural Delawareans through delivery of components such as: health care services, health education, basic needs assistance, advocacy, and/or financial support. Observations on Resource Sufficiency and Quality Different methods for determining resource quality and utility are required to consider the three categories of resources addressed by the Plan. Direct Health Care Providers represent the only area for which accepted planning benchmarks exist, and for which estimates for the number of professionals required to serve a population are even moderately available. Even in this relatively limited context, the use of quantitative measures is controversial and problematic due to problems such as geographic distribution and lack of access. Therefore, assessment of resource adequacy, and the potential for resources to meet community needs, must be both a quantitative and qualitative exercise. In this plan, alignment between resources and needs has thus been determined by structured, qualitative assessments provided by individuals experienced with an “on the ground” perspective. To the extent possible, additional objective data (e.g., surveys, quantification, studies on access, etc.) have been used to further inform this process. Aligning Resources with Needs - “Where are the Gaps?” The sections that follow provide both narrative descriptions and schematic representations of Section II Page 9 Delaware Rural Health Plan Planning today to improve the lives of tomorrow June 2000 resource adequacy considered in three dimensions. A life cycle perspective (perinatal, child/adolescent, adult, and geriatric) and a provider or clinical service perspective (primary care, dental, behavioral health, home health) are both included as is a “special considerations” section. Each resource is examined in the context of its perceived performance in meeting existing needs and in delivering value. The graphics are used to represent alignment that does (or does not) exist among Sussex County’s resources. The RHP uses a “traffic light” scoring approach to depict resource adequacy at points along the value chain. Red indicates that gaps between needs and available resources are so significant that the system is “stopped;” yellow is a “warning” of incomplete functionality; and green means that the system operates smoothly, hence a “go.” Thus, a green marker denotes points where resources fully meet needs, yellow indicates questionable or sub-optimal resources, and red denotes a significant and potentially problematic gap between needs and resources. From a planning perspective, the most critical areas to address are the red markers or “gaps.” Figure II-1: Gap Analysis Example (5) For each needs dimension analyzed, overall “degree of alignment” or “performance” is summarized by a value chain component, and supporting notes and key points are indicated. (2) Population Group or Resource/Service Type being analyzed Significant Gap in Resources Questionable Resource Sufficiency Fully Sufficient Resources (4) Resource Alignment Legend Inf a nt s/ Perinat a l Lifecycle - Infants and Perinatal (3) Components of Value Chain being tested for alignment Summary of Findings: Infant and Perinatal Resource Alignment (1) Needs Dimension (“Gap Analysis” Topic) Each value chain component is evaluated and assigned a color that indicates its current “degree of alignment” or “performance”; if a color was not assigned, insufficient information existed to make the evaluation. Overall Status Information Intake DirectService Referrals Monitoring Infrastructure Leadership/ Staffing Planning Communication Section II Page 10 Delaware Rural Health Plan Planning today to improve the lives of tomorrow Lifecycle #1- Needs of the Infants and Perinatal Population June 2000 Source for all data below is Delaware Vital Statistics Annual Report (1998) • Key outcome indicators of infant and perinatal health care effectiveness are the neonatal/infant mortality and low birth weight (LBW) rates. In Sussex County, neonatal and infant mortality have risen for the past two 5-year cycles as compared to state. The LBW fraction has risen from a favorable level (pre-1995) to approach the higher state rate: 7 8 1987-19911988-19921989-19931990-19941991-19951992-19961993-19971994-1998 ) W DelFiii4 5 6 7 8 9 10 /iiUS e IIlity byii7 8 9 10 11 12 13 iUS DelNCC IIPerce nt of LBW Births Sussex v De law are 6.5 7.5 8.5 5 Ye ar Pe riod Perce nt (%of LBaw are Sussex gure II-4 Neonatal Mortality by 5 Year Perod US v DE v Counte s 19871991 19881992 19891993 19901994 19911995 19921996 19931997 19941998 5 Year Period Deaths1,000 Lve Brths DelawarKent NCC Sussex Figure-3 Infant Morta 5 Year Perod US v DE v Countes 19871991 19881992 19891993 19901994 19911995 19921996 19931997 19941998 5 Year Perod Deaths/1,000 aw are Kent Sus sex Figure-2 • Sussex County and Delaware are now higher than US in neonatal mortality (see Figs. II-2 and II-3). The rise in Sussex County infant mortality over the past two 5-year periods is unexplained and is of concern. Statewide LBW rates are generally driven more by births to teens and African American females; however, in Sussex County, teens and white births are the drivers. Figure II-5 Births to Single Mothers by County Among the white population in Sussex County, the (1994-1998) percentage of LBW infants exceeds both the US and the state. • Sussex County has more births to single mothers (43.7) compared to the state (35.79%) and other Delaware counties (Figure II-5). ll le County % Births to Single Mothers Delaware - A35.7% New Cast33.4% Kent 36.0% Sussex 43.7% • Prenatal care adequacy in Sussex County is lower than the state in the aggregate and in each racial/ethnic subgroup measured. While Sussex is not alone in this regard, the comparison between non-urban New Castle County and Sussex County is striking. Figure II-6 Births to Mothers Receiving Adequate Prenatal Care by Race DE Kent NCC Wilmington Sussex WhiBlack te All Races ) 47.1 66.9 67.4 81.2 71 0 10 20 30 40 50 60 70 80 90 % Prenatal Care Adequacy by Delaware County (1998KENT SUSSEX WILMINGTON BAL. NCC DEL County by Category of CareAdequate Intermed Inadequate Unknown Figure II-7 10 20 30 4050 60 7080 90 Percentage ofTotalBirths Section II Page 11 Delaware Rural Health Plan Planning today to improve the lives of tomorrow June 2000 Lifecycle #1-Resources for the Infants and Perinatal Population n o cat i ce / r e c e u p / n ng e / / g rv i io an n i l s i c t g g r i t r ess sh s/ a a rr m u o a r u n H E m e n e ces i l e r en ast n i e S ffi a k ead c h ni t e m v n o r ar c t Sta Re f t c re Di s u r o Pl a o In f r In f w A M n C S L A Di I A Infants and Perinatal Direct Service Social Services Service Integrators Overall T H S T A T U IMPROVED INFANT/PERINATAL SERVICES S Status Summary of Findings: Infant and Perinatal Gap Analysis • Awareness (of Resources): Good for some populations (white, insured), poor for others (Hispanic, Black, disadvantaged); More hospital-based education is needed; State Service Centers provides clearinghouse function. • Access to Care: Delmarva Rural Ministries has a mobile van and is expanding beyond migrant population; Geographic access/transportation problematic for fixed site resources; Generally more bilingual capacity needed; Social Service availability to disadvantaged and racial and ethnic minority populations needs improvement; new health center to open in Georgetown. • Direct Service: Physicians up-state support down-state providers with specialty care; Each hospital provides labor and delivery services with comparable service levels; Linkage of social services with direct clinical services needs improvement. • Referral: More lay support (resource fathers/mothers) needed; Child Development Watch is an important resource re: coordination of care and case management; Home visiting for first time parents provides opportunity to follow the family and observe in their own environment. • Monitoring: United Way and Child Development Watch are monitoring outcomes; Perinatal mortality is rising -reasons are not well understood; No systematic appreciation of health status on a county level. • Infrastructure: There are three duPont Pediatric Clinics (Milford, Georgetown and Seaford) that serve infants, and children and adolescents (up to 19 years) with family income up to 200% of poverty on a sliding fee scale basis. Transportation is a significant limitation to receiving infant and perinatal services for those who live a distance from these sites. • Leadership: The Perinatal Board has been very effective in providing system level leadership, however the social service sector does not have focused leadership in addressing this population. • Planning: Services for children with special health care needs, appear to be a strong potential resource but are currently under-funded; Perinatal Board is an important planning resource, helped raise Delaware’s ranking infant mortality from worst to 25th in country. • Communication: Provider-provider communication is spotty; 53 separate agencies on teen pregnancy; The symposium “Cradle of Hope” was effective. Section II Page 12 Delaware Rural Health Plan Planning today to improve the lives of tomorrow Lifecycle #2 - Needs of the Child and Adolescent Population June 2000 • While meaningful Sussex County specific data is lacking on younger childhood needs, extrapolation of state level data suggests that injury prevention, asthma, and special needs support services areas all may require attention. • As articulated in Delaware’s Maternal and Child Health Grant application, the following needs are apparent in Sussex County for special needs children: – Insufficient services for OT, PT, and speech therapy needs; – Child care needs for the population may be insufficient and currently under study; – Care coordination is insufficient for children > age 3 with special needs; – Culturally compatible specialty care access is insufficient. • Sussex County teen live birth rates are well above the US and state rates for both younger and older teens. For white teen mothers, the rate is rising whereas the US rate is falling for this group. African-American teen birth rates are falling at a rate similar to US and are decreasing faster than the state rate. Teen live birth rates in several census tracts (Bridgeville, Selbyville, and Laurel) stand out as extraordinarily high. Dierrtes 0 5 10 15 7983 8084 8185 86 8387 88 8589 90 8791 8892 8993 9094 9195 9296 9397 9498 iod US Difference (in %) ffence BetweenTeen (15-19)and GeneralLive Bih RatSussex County v.US v.DE (1978-1997) (20) (15) (10) (5) 8284865 YearPerDEL SUS Figure II-8 Figure II-9 Five-Year Average Teenage (15-19) Fertility Rates U.S., Delaware and Counties, 1978-1998 90 80 70 60 50 40 30 DE NCC liU.S. Kent Sussex Sources: Deaware Health Statistics Center National Center for Health Statstics 78-82 79-83 80-84 81-85 82-86 83-87 84-88 85-89 86-90 87-91 88-92 89-93 90-94 91-95 92-96 93-97 94-98 Five-Year Intervals Source for above data is Delaware Vital Statistics Annual Report (1998) • School Based Health Centers (SBHC) are in all Sussex County high schools; based on interviews and SBHC data, teen primary health care needs are characterized as “largely unmet.” Teen mental/behavioral health needs are also not adequately being met due, in part, to a lack of providers serving this population. In addition, for both primary care and mental health needs, transportation is inadequate and conflicts with access and confidentiality needs. Approximately 35% of SBHC visits are for mental health concerns. • Self reported substance use in older Sussex County adolescents exceeds state rates. The need for improvement is particularly apparent from the increase in use reported between grades 8 and 12, which greatly exceeds the state as a whole. 8th v 11th Grade Self Reported Substance Use Grade 8 Grade 11 Change Sussex % % % Cigarettes 22 39 17 Alcohol 25 53 28 Marijuana 15 25 10 Delaware % % % Cigarettes 24 33 9 Alcohol 29 47 18 Marijuana 19 25 6 Section II Page 13 Delaware Rural Health Plan Planning today to improve the lives of tomorrow June 2000 Lifecycle #2 - Resources for the Child and Adolescent Population no cat i e ci e p / / / i i rtu /enc nio sseen gn egr sh numm vre sal gn cu tamr ir s/ lla gn ekatIn o HEALTH STATUS er rr ah ces innaPl S tr evr i ifaSt inMo t e ar daeL sa ct sc o Re f Ac wA fIn Co re fn r uS Di Di I Children and Adolescents Direct Service Social Services Service Integrators IMPROVED CHILD / ADOLESCENT SERVICES Overall Status Summary of Findings: Children and Adolescents Gap Analysis • Awareness: State Service Centers are primary resources for reproductive health including education and services for family planning and sexually transmitted diseases (STD); YMCA resource centers and Boys and Girls Club disseminate information; SBHCs provide treatment for STD but do not provide broader family planning services in most districts; Resource guide is published for resources serving children with special needs • Access: Poor access to behavioral health, mental health, primary care, and family planning; Few transportation options; the Delaware Healthy Children Program (children’s health insurance) is an important resource; Access van is expanding awareness/access; Limited services for special needs children remains a problem; Adolescents access into family planning services remains problematic (e.g., confidentiality, lack of SBHC services, transportation and clinic hours were cited as barriers). • Direct service: Quality can be very good when services are available, with possible exception of teen OB/GYN services; Language and socio-cultural barriers impact patient-provider communication; Patientphysician communication problems make direct service quality less than ideal. • Referral: Little county level data is available to determine resource or care adequacy. • Monitoring: School nurses, especially at elementary and middle school levels, and SBHC are important resources, especially in the area of prevention, but little evaluative data is available; Outcomes measurement under development at United Way but not active. • Infrastructure: duPont Pediatric Clinics provide direct services; Resource infrastructure is not sufficient to meet behavioral health needs for this population; Direct state contracting has may have unintentionally reduced providers and decreased access; Head Start is an important resource; Feedback from mothers concerned about access/adequacy of special needs services for children. • Leadership: Leadership: Despite a proliferation of services, coordination of efforts to meet needs may be lacking; Community health partnerships have been initially successful, but more work is to be done. • Planning: Not clear if resources are equally available to Hispanics; Additional planning is needed, re: the stage of intervention for children, especially in areas of behavioral risk factors (e.g., prevention of substance use between 8th and 11th grade). • Communication: When children graduate, there is insufficient communication between SBHC and private health care systems to assure that primary care is in place; Although the role of SBHC is not provision of primary care, their role in assuring a medical home “drops off” precipitously upon graduation; Insufficient communication among providers; Agency collaboration is rising. Section II Page 14 Delaware Rural Health Plan Planning today to improve the lives of tomorrow Lifecycle # 3 - Needs of the Adult Population June 2000 • Delaware cancer mortality rates are the second highest in the US (1992-1996 SEER data). Mortality from prostate, colorectal, cervical, and lung cancers are extremely high in state. County rates are indistinguishable from state in vital statistics data for individual cancers due to small populations numbers. African-American men (lung, prostate, colorectal) and African- American women (cervical) predominate in excess mortality. Hospitals have been instrumental in developing integrated cancer care and support programs. • Sussex County exceeds Delaware and US mortality rates for all adult age groups except ages 35-44. Mortality is apparent across all age groups particularly for cancer, heart disease, and motor vehicle accidents (MVA). Figure II-10 y Age () p US Dea t h Ra te s B All Ca u sesSu s s e x Co u nty v. DE v. US (1992-1996) 0.0 200.0 400.0 600.0 800.0 1000.0 1200.0 1400.0 1600.0 25-34 35-44 45-54 55-64 Age Ba nd De a th R ate pe r 100,000 po Delaw are SUS SEX Source for above data is Delaware Vital Statistics Annual Report (1998) • Sussex County death rates from congestive heart disease exceed state rates. Cardiac disease is also the most frequent cause for hospitalization in Sussex County. Lifestyle and controllable risk factor issues predominate as predisposing factors: – Smoking – Motor vehicle accidents – Overweight – No seat belt use – Hypertension – Operating under the influence of alcohol • County specific Behavioral Risk Factor Survey data are not currently available. State level data is shown in Fig. II-11. Figure II-11 Delaware Adults at Risk from Selected • All racial and ethnic groups in Sussex County exceed US mortality rates in diabetes. African- American females in Sussex County have a strikingly high mortality (greater than 50 per 100,000) which exceeds both the state (40 per Percent of Adults 18 and Older 40 30 20 10 Behavioral Risk Factors, 1997 100K) and US (28 per 100K). • Sussex County rates for STDs such as syphilis, gonorrhea, and chlamydia exceed state rates which themselves are high compared to US rates. Binge Drinkers "Poor Health" No Health Ins. Diabetic High BP No Safety Belt Overweight Smokers Drink & Drive Chronic Drinkers With These Risks Factors Section II Page 15 Delaware Rural Health Plan Planning today to improve the lives of tomorrow June 2000 Lifecycle # 3 - Resources for the Adult Population on i enc / ec ion ng i s l i tacuninningmmoC ertucu ip/hs ss/een e/grahsc vre arefRe lla roonitM i ss /ekaInt gnffiPla am t Service Integrators Direct Service Social Services H E A L T H S T A T U S Adults redaLe evSur tr S ce sfran ar r ct Sta oInf Ac Aw re Di Di I Overall Status Summary of Findings: Adult Gap Analysis • Awareness: Good for those highly familiar with the system, but relatively poor for all others; Delaware Help Line serves primary referral function providing general state level information; Database is extensive, but the use by (and focus on) Sussex County population is unclear; Mixed to poor impressions by other providers; Awareness of multiple other resource directories is low. • Access: Primary care provider numbers appear adequate for population when federal shortage area criteria are applied BUT this may not result in operational access if practices are closed to new patients, certain payer types or do not have accessible hours or geographic sites for special populations; Dental access is limited, even for populations able to pay, joint planning is trying to address this; Lack of transportation infrastructure is a long standing problem; Managed care networks limit access to some physicians. • Direct service: Direct medical and dental care service quality is acceptable for adults by report, however, the availability of such services may be significantly limited for many residents who encounter access barriers (see above). • Referral: Most problematic for mental health; Hospitals provide referrals to physicians; Most frequent call is for family practice physicians accepting Medicaid; Awareness for referral opportunities may limit otherwise functional systems. • Monitoring: Little county level data is available to determine resource or care adequacy. • Infrastructure: Many services focused on adult population; State funding mechanism lowers incentive to collaborate and may lead to inter-agency competition; Mental health access or infrastructure (too few providers) is a problem; Transportation remains problematic, particularly for residents of more rural and less densely populated portions of the county. • Leadership: Leadership and joint planning among direct providers are of mixed quality -some good examples, but many more opportunities for improvement; Division of Volunteerism not functioning well or meeting potential as an integrator. • Planning: Community/state supports multiple referral services and resource directories which could be coordinated better -it is not clear if funding is adequate to support all; Good coordination of resources in rehab (DE Association of Rehabilitation Facilities); Less joint planning/coordination in other areas; Should look at cost and efficiency issues for long range. • Communication: Hospitals serve catchment areas well however there is minimal operational collaboration across hospital services and staffs; Increased coordination of services and resource inventories represents an opportunity to improve their advocacy/service integration role. Section II Page 16 Delaware Rural Health Plan Planning today to improve the lives of tomorrow June 2000 Lifecycle # 4 - Needs of the Geriatric Population • As a result of both the aging of the population and an increasing retiree population, the Sussex County elderly population is anticipated to grow rapidly through 2010. The greatest growth rate will be in the over 85 age group. Figure II-12 Figure II-13 ) 0 Projl Elderly Population Growth Estimates(1999-202010,000 20,000 30,000 40,000 50,000 60,000 70,000 80,000 90,000 1999 2000 2005 2010 2015 2020 Year ected Populati on > Age 60 New Cas te Cou nt y Kent Count y Sussex County Est. % G ro wth in Elderly Pop ulation Segments Sussex County(2000-2020) 160% 140% % Gr 120% ow th 100% (20 0020 80% 20) 60% 40% 20% 0% Over 60 Over 75 Over 85 Age Band • Mortality rates for elderly population in Sussex County exceed state and US in the greater than 65 age groups in the aggregate: All causes 65-74 75-84 85+ US 2578.7 5851.5 15280.2 Delaware 2731.5 6209.4 17297.2 Sussex Co. 2597.8 6362.8 17126.3 and, significantly, for the following specific conditions: – Pneumonia and influenza – Motor vehicle accidents • Other than basic mortality data, despite an anticipated explosive geriatric population growth, there is a striking lack of data to support the identification of needs for this population. This data is required for a thorough understanding of needs and for resource development. Anecdotal and qualitative data suggests needs in the following areas: – Primary care – Geriatric medical specialists – Home care – Transportation – Social activities • Coordinated and long range planning for this population appears to be lacking at the county level. Section II Page 17 Delaware Rural Health Plan Planning today to improve the lives of tomorrow June 2000 Lifecycle # 4 -Resources for the Geriatric Population no cat i / ru e ci e pi / ng / e/gr l s i t sh s/ i r ecnali niotamr essne numm rve cu gn are gnffi HEALTH STATUS ekatIn ahsc o er ces innaPl rast S t evr ni ead o ar tc Sta Re f fIn cA oM oC fn r wA Su re iD L Di I Geriatric Direct Service Social Services Service Integrators IC SERVICES I MPROVED GERIATR Overall Status Summary of Findings: Geriatric Gap Analysis • Awareness: Population is bypassing integrators and working directly with providers. • Access: Access to prescription medication is a problem; “Pill Bill” may increase access to prescription drugs for low income; Not clear if adult day care is meeting need or is appropriately located; CHEER and senior centers are key resources; Vans believed to have significantly alleviated transportation problems for the geriatric population, but individuals requiring multiple services or living in low population density areas continue to experience transpiration related limitations. • Direct service: Difficult population to serve due to cultural and access issues; Home Health is an important support and is in short supply; Geriatric medical specialists are not readily available in Sussex County. • Referral: Discharge planning is working well, but limited by a resource availability or knowledge; Adequacy of discharge largely depends on the area -many services in the Beebe area; Out-referral hampered by lack of Sussex County geriatricians (see above). • Monitoring: Division of Aging and Adults with Physical Disabilities (DAAPD) does not have current health status or needs/resource assessment for geriatric population; Unclear if CHEER adequately meets all need or if it is serving a large enough percentage of the population; Senior Summit indicated that resources are not meeting needs. • Infrastructure: State directory of geriatric services indicates many resources are present but sufficiency is unknown; CHEER and Senior Centers are important resources (e.g., providing immunizations, focus for day activity, housing, recreation); Assisted living increasing, but not clear if demand supports increase in housing units; Information on the advocate/service integrator area is limited; Transportation options inadequate. • Leadership: Centralized funding may be a threat to these organizations; Seniors benefit from some advocacy through AARP; Leadership shown by DHSS/DAAPD limited by lack of planning data. • Planning: With no data, planning is insufficient; Each agency is perceived as doing its own thing, no joint planning; Some believe direct services are not prepared for rapid growth of this population (migration to Sussex) or the aging of the population; Additional work in the planning of services is needed; Social service agencies should work with direct service providers to plan for improved geriatric services. • Communication: Better communication with direct service providers can improve services. Section II Page 18 Delaware Rural Health Plan Planning today to improve the lives of tomorrow June 2000 Service Area #1: Primary Care Needs • Substantial data and analysis from Division of Public Health University of Delaware Survey (1998) and DIMER report (10/99) are available to support an understanding of primary care needs. • The estimated need for additional primary care providers differs when taking a "by the numbers" view versus documenting the experience reported by individuals related to “limited practical access or availability” of numerically adequate providers. Sussex County is currently designated a medically underserved area. Northern Sussex County is designated as a primary care shortage area. Designation is based in part on the overall number of full time equivalent (FTE) physicians. However, contradictory information exists regarding true operational capacity (consumer perceptions and experience of practitioner availability) for the following reasons: – Practices may be closed to new patients; – Practices may accept limited insurance or network participation; – While the federal criteria for FTE (hours of practice per week) are met, productivity is not considered (i.e., low productivity would effectively reduce capacity); – Typical hours of operation (no evenings or weekends) may effectively limit access for certain populations; – Lack of knowledge or skill in the care of special populations (e.g., disabled, child/adolescent, AIDS, and geriatrics) may limit the effective availability of providers; – Sussex County has the lowest use of non-physician clinicians (e.g., physician assistants, nurse practitioners and certified nurse midwives) in the state, thus limiting the “extendibility” of practices; – The primary care capacity is clustered around hospitals, especially for OB/GYN services, thus making access geographically difficult for some citizens - particularly those lacking private transportation. This geographic problem is institutionalized, to some degree, by hospital credentialling rules requiring physicians to live within 30 miles of the hospital; and – Cultural accessibility (Hispanic population) and multi-lingual capacity are limited. • The general orientation of primary care in Sussex County is toward acute/sick care rather than “wellness” or preventative care. This may affect the impact of lifestyle-related conditions as well as early diagnosis of serious disorders (such as cancer) which may result in higher mortality. Contributing factors include: – Availability: In situations of limited practitioner availability, both providers and consumers reserve their use to the most acute needs rather than preventive services; and – Cultural Attitudes: The generally conservative Sussex County population holds a “take care of yourself” ethic that supports receiving care only when ill. • As public health clinics have transitioned away from direct primary care services, private providers have become the only resource for care such as maternal and child health services. This may have resulted in an unintended negative impact on primary care availability. Section II Page 19 Delaware Rural Health Plan Planning today to improve the lives of tomorrow June 2000 Service Area #1: Primary Care Resources n o cat i ce / r e c e u p / n / e / i s i i t ng ess g rv an l sh n io c g a s/ r i g rr o a t m u r u n a r e e n m i l e r ces en ast n i e S H E AInreDiSMnLPlC DiI Infants/PerinatalAdultsGeriatricsChildren/Adolescents All Resource Types A T H S T A T U IMPROVED PRIMARY CARE SYSTEM S Overall Status Summary of Findings: Primary Care Gap Analysis • Awareness: Hospitals make medical staff directories available and provide information through the hospital on available primary care practices; Telephone directories contain listings only; Little systematic information on a county-wide basis that provides practice details. • Access: Improvements have been made to access/intake; Sussex County has numerically adequate capacity; but problematic geographic distribution; fewer than 37% of PCP sites have Spanish bilingual capacity; 25% of Sussex County PCPs do not participate in a managed care network; Primary care access for special populations is problematic; Few providers are open to Medicaid; Recruitment of healthy individuals to receive primary “well care” remains problematic. • Direct service: As public health clinics have transitioned away from direct services, private providers are the only source of primary care; Quality of care from primary providers is perceived as acceptable. • Referral: Linkages with behavioral health, geriatric specialists, and dental services remain questionable. • Monitoring: School nurses and SBHC support surveillance of children and adolescents by monitoring vaccinations and “medical homes”; Minimal County level measurement or monitoring of the quality or accessibility of primary care; DIMER has a statewide role. • Infrastructure: Hospital bylaws require physicians reside within 30 miles of hospital; Sussex County has lowest use of mid-level providers in state. • Leadership: Hospitals, DIMER, and Physician Organizations are providing leadership. • Planning: DIMER has taken a coordinating role in planning and recruitment; DHCC has reported planning related data. • Communication: Insufficient data to determine resource adequacy. a k ead ffi ni t c h e m v n ar c t Re f o r Sta t u r c o s a In o f r w A f Section II Page 20 Delaware Rural Health Plan Planning today to improve the lives of tomorrow June 2000 Service Area #2: Dental Care Needs • Delaware Institute for Dental Education and Research (DIDER) data and interviews confirm Sussex County meets Dental Health Professional Shortage Area (HPSA) criteria for dental care (1998 Dentists in Delaware Report). • There is a substantial capacity deficit in Sussex County dental services for treating both insured and non-insured populations. Shortages are particularly acute in western Sussex County, from Bridgeville to Laurel. There is also a shortage of culturally compatible dentists for certain populations (Hispanic, African-American). Many dental practices are closed to new patients. Further, the capacity of dentists is likely to deteriorate due to planned retirements. One in five dentists was uncertain if s/he would be in practice in five years in Sussex County. • Sussex County dentists reportedly have heavier workloads than industry standards. Improved access may require a change in office hours, but this is difficult to reconcile with their current workload. Those patients that are seen in Sussex County primarily receive urgent care. Preventative dentistry is not emphasized like in other parts of the state. • Employers report an increased cost of dental coverage resulting from the need to allow network access outside of the local (Sussex County) area. It is not uncommon for insured patients to travel to Kent or Wilmington counties for a dentist. Most uninsured travel to Wilmington County for care at one of the dental clinics. • There are a number of ongoing initiatives focused on attracting dental resources to Sussex County. These have been associated with some success to date. The response to the dental crisis indicates a capacity for effective crisis planning. The Delaware Dental Access Improvement Committee (DDAIC) report (Spring, 2000) articulated a coordinated approach to improvement. As proposed, activity intended to attract dentists to Sussex County has begun and includes a recruitment campaign, indicating that proactive planning to address the dentist shortage has begun. Current efforts are focused on addressing infrastructural issues (including licensing regulations) that constitute barriers to additional recruitment: – Training and licensure requirements are restrictive; – Delaware has its own testing program and does not grant license reciprocity to other states; – Dental hygienists are not permitted to practice preventative dentistry other than under the direct supervision of a dentist; and – There is no dental school in Delaware. The General Practice Dental Residency Program and dental hygiene education programs are both located in New Castle County. • Although there has been substantial effort to focus on and improve the dental issue, those involved say it is too early to tell what the final outcomes will be, but progress has been made and they continue to be optimistic. Section II Page 21 Delaware Rural Health Plan Planning today to improve the lives of tomorrow June 2000 Service Area #2: Dental Care Resources ru e /enc ci e p / ng no / i t s i iontaicnummoC e/gr sseen hs cu rve l gn s / are llai ta i gn o r ces HEALTH STATUS ekatIn ahsc er ast r inna S mr ni t fi evr ead Sta f ar c t f re oM o cA Re fn r uS wA D i Pl fIn L Di I All Resource Types Infants/Perinatal /Adolescents Children Adults Geriatrics Overall IMPROVED DENTAL CARE SYSTEM Status Summary of Findings: Dental Care Gap Analysis • Awareness: There is no organized way for the population to know if there is a new provider or resource; Little or no prevention related education to general population. • Access: Of the few practices available, many are closed to new patients; Strategies to improve access by expanding office hours are difficult to reconcile with current workload; Medicaid children have limited access through public health clinics, with less than one-third of eligible children receiving services each year. Children above the Medicaid threshold have problematic access, with affordability being a primary barrier. • Direct service: Sussex County dentists have heavier workloads than industry standards - despite this, wait times (in office) are low; Quality of dental providers is perceived as adequate. • Referral: There is a lack of dental sub-specialists located in Sussex County. • Monitoring: Preventative care is not a high priority, many practices do not send reminders for regular care and checkups; Dental health status to date has not been measured on a population basis - plans are underway for Fall 2000. • Infrastructure: Sussex County is under-served; shortages particularly acute in western Sussex County; One in five dentists was uncertain if s/he would be in practice in five years in Sussex County; Efforts are underway to attract dental resources to Sussex(e.g., recruitment campaign, training programs); State licensing regulations are a barrier in increasing the number of dentists (e.g training requirements are restrictive Delaware has its own testing program, no reciprocity with other states, etc.). • Leadership: Effort to get water fluoridated in under-served communities was successful; Western Sussex Health Coalition has been active; DDAIC report (Spring, 2000) articulated coordinated approach to improvement. • Planning: The response to the dental crisis indicates orientation toward crisis-focused planning, and the beginning of proactive planning; Planning has resulted in effective policy advocacy (e.g., allowing hygienists limited practice outside of dentist’s office); DIDER/DDAIC are focal. Recruitment campaign is underway. • Communication: Little communication between dentists and other health care providers; Few newspaper articles describing needs or calling attention to problem. Section II Page 22 Delaware Rural Health Plan Planning today to improve the lives of tomorrow June 2000 Service Area #3: Mental/Behavioral Health Needs • Behavioral health needs were characterized and documented in the 1999 DIMER report as inadequate. DIMER documented a "severe shortage" of mental health practitioners in Sussex County. However, Sussex County lost its federal Mental HPSA designation in 1998. Data analysis is underway at DPH to determine if HPSA designation can be reinstated. • Based on interviews and a review of limited Sussex County data available from the Division of Alcohol, Drug Abuse and Mental Health (DADAMH): – Ambulatory chemical dependency and substance abuse services (CD/SA) appear to be insufficient; – Child and adolescent services are insufficient; – Specialty geriatric mental health services are virtually non-existent; – SBHC staff report significant access problems to mental health services for children and adolescents: • No formal process is available for adolescent behavioral health referrals or for linkages between primary care and behavioral health resources; • There is 0.5 FTE child psychiatrists in the county, located on the coast; There are no pediatric or adolescent behavioral health inpatient units nor hospital services in Sussex County; • Knowledge of, and linkages between, resources (communication) in the child and adolescent population are lacking; • Transportation/data from schools confirm that access for adolescents is a real problem; and • Needs data reveal high suicide rates (although small absolute numbers) among teens. • Hospital personnel report a significant proportion of emergency room use is directly related to behavioral health needs and that providers do not feel they can provide optimal care for these problems in the emergency room setting. Sussex County has no involuntary admission capacity, patients are taken to the state hospital in New Castle County, often utilizing suboptimal transportation arrangements (most often transported in police cars by on-duty officers). – Managed care organizations as well as other payers are emphasizing outpatient treatment, BUT – Credentialling limitations limit use of non-physician providers. • For many Sussex County individuals, there are cultural issues driving a hesitancy to use mental health and substance abuse services. For example, the adult and geriatric population associates a stigma with the use of mental health treatment. Some faith communities may also discourage or minimize the potentially beneficial role of mental health professionals. Leadership, planning, and communication for those populations which can be reached needs to be improved, especially addressing dual diagnosis, isolation and depression, and stigma associated with seeking mental health care. Section II Page 23 Delaware Rural Health Plan Planning today to improve the lives of tomorrow June 2000 Service Area #3: Mental/Behavioral Health Resources on t i e/ e a e on p / tu r s / nc c g e/ c i s i n s i rv h ssllau aroceke teitoraeadng ni r csceuterfi H enrmata Seharrrnisfngmmun Infants/Perinatal Children/AdolescentsAdultsGeriatrics AwnAcDaano fIniifvfrLStPlC I reDReSMoIn All Resource Types E A L T H S T A T Overall IMPROVED MENTAL HEALTH SYSTEM U Status S Summary of Findings: Mental/Behavioral Health • Awareness: Easter Seals produced a study on information for adult awareness/information; Geriatric population barriers are cultural and related to the stigma associated with mental health treatment; Differences in awareness may be related to geography (closer to hospitals = higher awareness); Western Health Council is actively investigating issues of awareness and access. • Access: “By the numbers,” Sussex is not classified as a HPSA for mental health care; One part-time child psychiatrist in Lewes is the only one in the county and is involved mostly in crisis work; Significant access to specialized child, adolescent and geriatric providers was consistently reported; Transportation/data from schools complicate access for adolescents creates a real problem. • Direct service: A significant portion of emergency room use is directly related to behavioral health needs; Direct providers are perceived as doing an “average” job under these circumstances; Reimbursement levels for providers are well below average and may impact quality; Providers perceived as not knowledgeable about special needs for geriatric population. • Referral: No formal process for adolescent referral or linkages between resources; Adult population may know what is needed, but may take multiple calls to arrange for services. • Monitoring: Needs data reveal high suicide rates (although small overall numbers) in several age groups; External outcomes measurement is beginning (United Way, Managed Care, DHSS/DADAMH); Burden of “non institutionalized” mental health is not well understood at the county level; Mental Health Parity Law passed in 1999, regulations under development. • Infrastructure: No involuntary admission capacity within Sussex County; Transportation of involuntary patients is inadequate; Licensing and health plan credentialling regulations problematic for non-physician providers; Inadequate CD/SA services. • Leadership: Sussex County could benefit from more support from state; agencies doing “best they can;” Seaford area initiative (Western Health Council ) has recently begun to assess mental health needs regionally. • Planning: Need more focus on outpatient care; Looking more at parity in mental health benefits for adult population; More focus on geriatric population, especially in the areas of dual diagnosis, isolation, mental health stigma. • Communication: Linkages among providers serving adolescent population are lacking; Interagency Council is helping increase communication. ti g a l c e / i s Section II Page 24 Delaware Rural Health Plan Planning today to improve the lives of tomorrow June 2000 Service Area #4: Home Health Needs • Home health services are an increasingly important part of the health care system as delivery is transitioned away from hospital inpatient care. Based on a population over age 65, (approx. 26,250) it is projected that there will be 2,339 annual users of home health care services in Sussex County. Special population groups (perinatal/infants, special needs children, convalescing and chronically debilitated individuals, and older adults) may be disproportionate users of home health services and further stress capacity. Anecdotally, there is a general belief that currently, people who need services most urgently are receiving them. However, others with less acute or urgent needs, but who could benefit from home health services for preventive or disease management benefits are unlikely to receive services. It is unclear whether or not home health resources can keep pace with the population growth. At this time, there is no quantitative data on Sussex County’s present or future home care capacity or requirements. The following interim conclusions appear warranted: – Home health resources are not positioned to accommodate growing population: • Ancillaries, supportive services, and chronic disease management resources are minimal and have not been studied as to adequacy of focus and distribution; – The limited labor pool creates both staffing and quality of care issues. Home health agencies are facing staffing needs and shortages. With low unemployment and competitive employers able to pay more competitive wages, agencies are having a difficult time retaining staff and paying competitive wages. Some believe this may threaten the quality of services. • Home health service access and infrastructure focused on treating the Medicare population are at risk due to severe decreases in funding from the federal government. Across the country, this makes the future and long term viability of home health agencies uncertain. Specific to Sussex County, there is a concern that resources are progressively less able to meet needs and that the situation is getting worse. General categories of need were identified as: – Skilled nursing; – Homemaker services; – Personal care services; – Child aide services for special need children; – CTT services in behavioral health; – Services for special needs populations; and – Coordination and communication of services for geriatric population. Section II Page 25 Delaware Rural Health Plan Planning today to improve the lives of tomorrow June 2000 Service Area #4: Home Health Resources n o e / e e / r cati c c p u n s/ on g scharge/ ect Servi s sh i n uni ruct ccess/ enes ng illa a l g H E rDReSMonfrLeadPlanniC nforiI AIDS Infants/PerinatalChildren/AdolescentsAdults Geriatrics All Resource Types A T H S T A T U Overall S Status Summary of Findings: Home Health Gap Analysis • Awareness: Population understanding of home health services is variable by ethnic status; Much information is distributed via the hospitals as part of the discharge planning process. • Access: Threatened by changes in Medicare reimbursement; General belief that people who need services most urgently are served; Care can be accessed for most urgent needs, but sometimes it takes a “long time;” Services for chronic disease management, special needs and subacute needs may be more difficult to access. • Direct service: Service is considered of acceptable quality, except in geriatrics where there is room for improvement in considering this population’s special needs. • Referral: Chronic disease patients may return to the hospital more frequently due to lack of access to a primary care provider linked with good home health supports. • Monitoring: No monitoring systems or performance data were known; No quantification of population need for home health services; Lack of outcome monitoring is a problem, particularly for infant/perinatal and geriatric populations. • Infrastructure: Viability of home health providers is threatened by decreasing Medicare reimbursement; Long term viability is uncertain; Labor pool shortages aggravate the situation; Anticipated worsening of situation as rapid retail growth continues. • Leadership: Labor shortage is making it difficult for agencies; Recruiting home health staff is getting harder and more expensive; No clear leadership on this issue. • Planning: No clear consensus that resources can keep pace with growing need; resources are perceived as having a more difficult time meeting needs and the situation is getting worse, not better. • Communication: Coordination and communication of services for geriatric population is a real need. t i r i a o ntake ffin m er m r rv e ni t ast e m ar f t a A u o w i I Section II Page 26 Delaware Rural Health Plan Planning today to improve the lives of tomorrow June 2000 Special Considerations: Hispanic Population Needs Hispanic Population The identifiable and rapidly growing Hispanic population in Sussex County prompted a specific focus on needs in that community. In the first large scale attempt to characterize Hispanic population needs, DPH in conjunction with La Esperanza/La Red, conducted a survey in 1999. While there have been multiple initiatives and efforts to provide health services for the Hispanic community in the past several years, concern remains regarding the level of health care services accessible to Hispanics in Sussex County. Key findings are summarized below: • Qualitative information from some providers, employers, and community agencies suggesting there are generally adequate levels of health care services, but the Hispanic population itself perceives that services are not available. • Most of the Hispanic population is resident rather than migrant. According to the survey, about one-third of Sussex Hispanics consider themselves migrant. Most respondents have been in the area for less than five years but more than one year. The majority of the Sussex County Hispanic population lives in Georgetown, followed by Seaford and Milford. • Nearly 88% of the population surveyed speak Spanish only. Improved access to care, therefore, requires substantial bilingual capabilities at provider sites. In addition, transportation and reduced financial barriers were prioritized as needs by respondents. • Most of the population is single, but live in a group environment with annual household incomes of less than $20,000. Most of the employed Hispanic population works in a high risk environment for occupational injuries, such as farming and poultry industries. • In order to enroll in financial and medical assistance programs, individuals must present evidence that they are “legal.” The need to verify “legal” status adds a layer of complexity to accessing many services. This does not apply to Medicaid eligibility for children. • More migrants reported receiving “no care” than reported using a “clinic” site for care. Longer term residents appear to be more likely to receive care in private practice or hospital settings. • There is an indication that services for Hispanic children are more adequate than for adults due to existing resources and Medicaid eligibility (for children who are US citizens and whose parental income qualified them for Medical Assistance). Too often, however, undocumented parents do not apply for Medicaid for their otherwise eligible children due to fears of deportation. • There is much less evidence that services for adults are accessible. Nearly one half of respondents reported being denied medical care, or avoiding seeking that care, during the past 12 months; approximately one quarter specifically cited denial of medical care due to inability to pay or avoidance of seeking services for financial reasons. Few survey respondents reported seeking preventive medical care. All interviewees indicated that access to dental care was a significant problem. Section II Page 27 Delaware Rural Health Plan Planning today to improve the lives of tomorrow June 2000 Special Considerations: EMS and County Infrastructure EMS • Including Emergency Medical Services (EMS) in the RHP recognizes the special role prehospital care plays in Sussex County health delivery. – Early intervention (improved outcomes); – Safe, appropriate, and timely transport (stabilization/reduce pain and anxiety); – Maximized effectiveness within available resources (cost and staffing). • EMS issues for Sussex County identified in interviews include: – Sussex County is large and sparse; – The 911 system is, in some senses, a victim of its own success in achieving broad public awareness - “misuse of 911;” – EMS dispatchers regularly make social service referrals to 911 callers - there is an important message here that is not necessarily the same as misuse; – EMS representatives are aware of, and concerned about, adequacy of response times; – Historically separate systems between the county (ALS) and the local services (BLS); and – Measuring the quality of pre-hospital care remains a challenge despite positive steps taken within the system. • The Fitch Report and Delaware Emergency Medical Services Improvement Committee Report studied EMS needs and specified state-level policy recommendations, e.g.: – Illustrated need for development of better data and tracking systems. – Led to creation of a new board to oversee EMS operations and improvements. Infrastructure Needs • Sussex County demographic characteristics: High poverty rate, high percentage of citizens who have not completed high school (50-55% of African American adults have not completed high school); Better estimates for the status and needs re: Hispanic populations are needed. • Eight Sussex County communities were identified in the Strong Communities Initiative (SCI) as high risk for health and safety due to significant infrastructural deficiencies. • The purpose of the SCI was to assist the eight unincorporated, rural Sussex County communities to become self sufficient and to create a working partnership between the communities, state, county, local governments and businesses: – Many of the Strong Communities (neighborhoods) had experienced deterioration; single-parent families lived amidst the highest rates of violence, drug trafficking, teen pregnancy and substandard housing; – Critical issues included crime, water quality, septic/sewer, trash and dumping, etc. continue to impact quality of life and, possibly, health in these communities and others. • Only 77% of respondents in the Strong Communities Survey reported that they had health insurance. • A total of over 30 additional and similar communities exist in Sussex County for which environmental/infrastructural issues predominate as health concerns. • Significant leadership, planning and monitoring needs remain: – County-wide and local data regarding nature and adequacy of infrastructure; – A county-wide representative body to lead and evaluate initiatives; and – Initiatives that will engage the public more broadly to solve infrastructural problems. Section II Page 28 Section III Planning today to improve the lives of tomorrow Delaware Rural Health Plan Strategic and Operational Improvements Delaware Rural Health Plan Planning today to improve the lives of tomorrow June 2000 III. Strategic and Operational Improvements (Broad Policy and TargetedInitiative Recommendations) Introduction The value chain presented in Sections I and II demonstrated that for the RHP, broad policies and targeted initiatives represent the direct value generating activities. Each of the ten recommended policies and ten suggested initiatives detailed below were matched to identified needs and resources (from Section II) through an iterative process consisting of documentation review, site interviews, DHI Steering Committee workgroups, stakeholder focus groups, and finally, a working stakeholder retreat held at Dewey Beach, Delaware on May 22, 2000. This conference had a broad invitational list and was attended by over 70 stakeholders. For ease of reference, the key components of each recommendation are summarized in Table III-1 at the end of this section. The DHI Steering Committee determined that the Plan should have a focused and feasible list of implementation recommendations. While recognizing that enough input would be obtained to create an exhaustive array of possible projects and studies, the Committee wisely recognized that this could be paralytic and that later accomplishments could be more easily built on a platform of early and significant successes. The RHP honors this approach by providing a sufficiently broad, but quantitatively and scope limited, initial menu of policy and implementation recommendations for each area of analysis from Section II. A more detailed compendium encompassing the broader input and learning obtained is recorded and reported in Appendix F. In developing recommendations, an active attempt was made to build on existing activities and infrastructure wherever possible. Simultaneous efforts were made to avoid emphasis on those areas which are already being actively addressed in an organized and effective way. Recommendations are organized according to key needs and resource areas defined in the preceding section. Section III Page 29 Delaware Rural Health Plan Planning today to improve the lives of tomorrow June 2000 Lifecycle Needs Recommendations Infants and Perinatal Needs Addressed: Infant mortality and low birth rate trends improving infant and perinatal outcomes. Policy Recommendation 1: Support and enhance existing initiatives focused on • The RHP endorses current activities being performed under the auspices of the Perinatal Board and the Alliance for Adolescent Pregnancy Prevention (AAPP); • These activities should be enhanced and publicized widely in Sussex County in order to increase enrollment and participation; and • Encourage expansion and support for “resource mothers” and “resource fathers” programs. Policy Recommendation 1 Suggested Policy Collaborators Should Include: • Agencies/Advocacy Groups • Department of Health and Human Services (DHSS)/Department of Health (DPH) • Hospitals reforms that eliminate barriers to the provision of prenatal care in the first trimester for eligible and presumptively eligible pregnant females. · School Districts Policy Recommendation 2: Implement Medicaid reimbursement and procedural • Reimbursement rules for obstetric practitioners that do not penalize providers of care to pregnant women who may experience first and second trimester fetal losses; • Procedures for presumptive eligibility voucher use which are well understood by practitioners and clients and which result in a favorable pattern of use and care delivery; • Enforce existing rules and mandates requiring presumptive eligibility to be honored by practitioners and facilities; and • Expand voucher availability and acceptability for individuals who are not presumptively eligible but require first trimester pregnancy care. Policy Recommendation 2 Suggested Policy Collaborators Should Include: • DHSS/DSS (Division of Social Services) and DPH • Sussex County medical providers Section III Page 30 Delaware Rural Health Plan Planning today to improve the lives of tomorrow June 2000 Children and Adolescents Needs Addressed: Children and adolescents at risk for abuse and neglect, chemical or substance abuse, teen pregnancy, and behavioral problems. community focused initiatives to support family unity and child and adolescent healthy lifestyles. Policy Recommendation 3: Actively plan, implement, and promote family and As a matter of public policy, stress and prioritize funding for community and family oriented projects in such areas as: • Family communication; • After school recreational and social activities; • Day care; • Behavioral health information and education; • Parenting classes and parent-parent mentoring initiatives; • Adult-child mentoring initiatives; • Diversity training and education; • After school activities and recreational opportunities; and • Job initiatives for teens. Policy Recommendation 3 Suggested Policy Collaborators Should Include: • DHSS/ Department of Services for Children, Youth, and their Families (DSCYF) • Faith Communities • School Boards and Parent Teacher Associations (PTA) • State Police system for Sussex County teens. Initiative Recommendation 1: Implement and market a peer support and advisory • Teen Advisory Panel to serve as a problem solving resource and forum for policy discussion and feedback; • Teen Crisis Line to respond to confidential inquiries and concerns of teens; • Teen Peer Counseling Program to enable peer-peer problem solving, support, and relationship building; • Extend services to younger teens (middle school level); • Enhance emphasis on social, family support, and behavioral health services; • Actively collect and analyze encounter level data and use it to measure outcomes and plan services; • Address rise in substance abuse between grades 8 and 11; and Section III Page 31 Delaware Rural Health Plan Planning today to improve the lives of tomorrow June 2000 • Seek, to the maximal degree possible, to leverage SBHC services to diminish teen pregnancy. Initiative Recommendation 1 Suggested Initiative Collaborators Should Include: • Boys’ and Girls Clubs • Chambers/Employers • County Administration • DHSS/DPH • Faith Communities • School Districts • YMCA of SBHC services. Initiative Recommendation 2: Support the expansion, depth, and optimal utilization • Extend services to younger teens (middle school level); • Enhance emphasis on social, family support, and behavioral health services; • Actively collect and analyze encounter level data and use it to measure outcomes and plan services; • Address rise in substance abuse between grades 8 and 11; and • Seek, to the maximal degree possible, to leverage SBHC services to diminish teen pregnancy. Initiative Recommendation 2 Suggested Initiative Collaborators Should Include: • DHSS/DPH • Faith Communities • Hospitals • Legislature • School Districts Section III Page 32 Delaware Rural Health Plan Planning today to improve the lives of tomorrow June 2000 Adults Needs Addressed: Unintentional injury prevention and diabetes mortality. prevention education efforts targeting motor vehicle crashes, workplace injuries, and substance use related injuries. Initiative Recommendation 3: Undertake intensive and coordinated injury • Leverage existing Trauma Center designations to provide enhanced analysis and trending of injuries, follow up education, community and workplace based education and prevention programs; and • Identify best practices and develop interventions through a multi-disciplinary task force of hospitals, EMS, ER physicians, nurses, etc. Initiative Recommendation 3 Suggested Initiative Collaborators Should Include: • Community Colleges • DHSS/DPH (Healthy Delaware 2010) • Emergency Medical Services (EMS) • Hospitals • High Risk (for injury) Employers • State Police diabetes mellitus health improvement initiative. Initiative Recommendation 4: Undertake intensive • Components to include screening, education, self care and monitoring components as well as enhancing access to specialty care; and • White males and black females should be targeted. Initiative Recommendation 4 Suggested Initiative Collaborators Should Include: • American Diabetes Association • DHSS/DPH • Faith Communities • Hospitals • Managed Care Organizations (MCOs) Section III Page 33 Delaware Rural Health Plan Planning today to improve the lives of tomorrow June 2000 Geriatric Needs Addressed: Planning and geriatric specialty clinical resources. initiative, with a specific Sussex County and local community focus, to better understand the health and social service needs of elderly adults currently and for the next decade of anticipated high geriatric population growth. Initiative Recommendation 5: Undertake a formal data collection and planning • Data obtained should provide information about: • Demography and epidemiology; • Burden of illness/morbidity; • Service use patterns; • System capacity; • Quality of life; • Functional status; and • Other health status measures. • Analysis and planning based on this data should be ongoing; broad review and goal setting should be accomplished at an annual Sussex County Geriatric Summit. Initiative Recommendation 5 Suggested Initiative Collaborators Should Include: • AARP • CHEER • DHSS/Division of Aging and Adults with Physical Disabilities (DAAPD) • Hospitals execute a recruitment strategy for geriatric specialists, physician extenders, and primary care physicians with an interest in caring for the elderly, to Sussex County. Initiative Recommendation 6: Use the output obtained from the above to inform and Ensure that current and future analytic and planning activities through the DAAPD are structured to provide specific information and recommendations for Sussex County: • Ensure that there is coordination between accountable and advocacy groups representing the elderly. Section III Page 34 Delaware Rural Health Plan Planning today to improve the lives of tomorrow June 2000 Initiative Recommendation 6 Suggested Initiative Collaborators Should Include: • CHEER • DHSS/DAAPD • Hospitals • Sussex County medical providers Service Area Needs Recommendations Primary Care Needs Addressed: Quantity and distribution of primary care practitioners in Sussex County. The RHP strongly recognizes the critical importance of improving primary care access in Sussex County. Needs in this area are currently being addressed through DIMER and DHCC analyses and recommendations that are both adopted and endorsed by the RHP. Area hospitals play a significant role in improving access to physician resources. Dental Care Needs Addressed: Quantity and distribution of dental practitioners in Sussex County. The RHP strongly recognizes the critical importance of improving dental care access in Sussex County. Needs in this area have been addressed through Dental Care Access Improvement Committee analyses and recommendations which are both adopted and endorsed by the RHP. Mental/Behavioral Health Needs Addressed: Quantity and distribution of mental and behavioral health practitioners in Sussex County. well as an active recruitment and retention strategy, for mental and behavioral health practitioners for Sussex County, which ensures adequate provider staffing and access for county residents. Initiative Recommendation 7: Develop a behavioral health provider staffing plan, as • Target recruitment to ensure addressing needs by age, geographic location, service requirements, racial, cultural, and ethnic compatibility; • Given the scarcity of behavioral health resources, provider recruitment should ensure the maximum potential to share these resources across hospital service areas; • Use the models of dental and primary care manpower assessment and recruitment to guide development of a customized approach to behavioral health recruitment; and Section III Page 35 Delaware Rural Health Plan Planning today to improve the lives of tomorrow June 2000 • Seek to integrate recruitment and retention activities with payment reform and payer, as well as employer network reform, to ensure sufficient and balanced incentives to achieve goals. Initiative Recommendation 7 Suggested Initiative Collaborators Should Include: • Agencies • DHSS/ DSCYF • Hospitals • MCOs network credentialling requirements with the goal of permitting, and enabling reimbursement for, the supervised practice of behavioral health counseling and therapies by qualified pre-licensees during their periods of practical professional training. Policy Recommendation 4: Review practitioner licensure regulations and MCO Enable the practice and reimbursement of otherwise license eligible, fully educated, Masters’ level counselors and therapists while they are under professional licensed supervision in the process of obtaining required practical experience. Policy Recommendation 4: Suggested Policy Collaborators Should Include: • DHSS/DPH • Employers • Legislature • MCOs • National Association of Social Workers (NASW) • State Board of Social Work Examiners Home Health The RHP notes, with concern, potential limitations in resource availability and current reimbursement structure in this area. There was insufficient planning data and topical expertise among the stakeholders to support specific recommendations at this time. This area should be revisited in light of the activities recommended in the geriatric section above. Section III Page 36 Delaware Rural Health Plan Planning today to improve the lives of tomorrow June 2000 Special Considerations Needs Recommendations Cultural, Minority, Racial and Ethnic Issues Needs Addressed: Issues of cultural barriers to care for racial, ethnic, and other minority residents of Sussex County. between key employers of ethnic and racial minority residents and their workers in health planning activities; Solicit multilateral long term participation in strategy development. Policy Recommendation 5: Establish dialogue and a mutually receptive environment • Emphasize the intersection and shared benefit from improved health status of ethnic and minority residents of Sussex County; • Ensure bilingual and culturally compatible access to such meetings, as appropriate; and • Use meetings as a means for bilateral education and consciousness raising. Policy Recommendation 5 Suggested Policy Collaborators Should Include: • Advocacy Groups/Agencies • Chambers/Employers • Community Colleges • County Administration • DHSS/DPH • Faith Communities • Hospitals community forums for communications between consumers and accountable entities. Initiative Recommendation 8: For minority and ethnic populations, develop regular • Use this input for gaining knowledge about needed resources and services; • Use input as a basis for innovative development of new services; • Develop approaches for meeting non-traditional family units; and • Forums should be bilingual, as appropriate to constituencies. Section III Page 37 Delaware Rural Health Plan Planning today to improve the lives of tomorrow June 2000 Initiative Recommendation 8 Suggested Initiative Collaborators Should Include: · Agencies/Advocacy Groups · Community Colleges • County Administration • DHSS/DPH • Faith Communities • Hospitals The following recommendation is applicable to both the minority and access needs areas: non-traditional access to health care services attractive to racial and ethnic minority as well as non-minority residents of Sussex County. Initiative Recommendation 9: Actively support, pursue, and create opportunities for • Non-traditional siting of service facilities (i.e., employment sites, shopping malls, mobile units, community centers); • Culturally compatible physical space, staffing, and language; and • Create access which encourages service use by all members of non traditional family and living units. Initiative Recommendation 9 Suggested Initiative Collaborators Should Include: • Agencies/Advocacy Groups • Chambers/Employers • County Administration • DHSS/DPH • Faith Communities • Hospitals Section III Page 38 Delaware Rural Health Plan Planning today to improve the lives of tomorrow June 2000 Access to Resources Needs Addressed: Linking consumers and referring professionals and agencies with resources. Policy Recommendation 6: As a matter of public policy, encourage the statewide consolidation and reorganization of existing resource compendia and directories into a master directory of services. • Standardize content to reflect key information required for timely and appropriate referrals for services; • Organize and index in a geographically and service friendly fashion to enable easy identification of local and appropriate resources; • Commit to publication in, and access from, a variety of media, including electronic and web based, to extend availability to the public more broadly; • Update on a frequent basis; • Provide “real time” access to the directory by key referral resources (such as EMS dispatch, hospitals, key agencies, Delaware Help Line); and • Consider the creation of centralized toll free referral “hot line(s)” with compendium access to respond to telephonic requests for local and appropriate resources and referrals. Policy Initiative 6 Suggested Policy Collaborators Should Include: • DHSS • Legislature • State Service Center Office Leadership and Planning Needs Addressed: The lack of available data to support leadership in health planning and implementation of change in Sussex County. Policy Recommendation 7: As a matter of public policy, mandate the collection and distribution of all statewide health (including vital statistics) demographic, epidemiologic, and sociologic data on at least a county level and preferably on a ZIP code level. • Given the significant disparities in population and demography between northern and southern Delaware, regional and local data is essential to understanding the population of Sussex County and using that understanding to plan for resources and services; Section III Page 39 Delaware Rural Health Plan Planning today to improve the lives of tomorrow June 2000 • A model exists for the differential collection and reporting of New Castle County and Wilmington area data for this reason. • Although data integrity may be compromised by relatively small numbers of observations in Sussex County, knowledge of this potential pitfall can result in appropriate corrections and offsets when necessary and should not prevent the collection of county specific data. Policy Recommendation 7 Suggested Policy Collaborators Should Include: · County Administration · DHSS · Legislature Policy Recommendation 8: As a matter of public policy, support and encourage leadership development within ethnic and non-ethnic communities of Sussex County. • Seek opportunities to engage community constituencies in planning and problem solving forums; • Develop opportunities to engage residents across age, racial, and ethnic groups; • Sponsor leadership development experiences (i.e., seminars, retreats, school curriculum, committee and initiative participation) which include both identified and potential new leaders from the community; and • Ensure that language and cultural diversity is not a barrier to engaging Sussex County residents in leadership experiences. Policy Recommendation 8 Suggested Policy Collaborators Should Include: • Community Colleges • County Administration • DHSS • Faith Communities • First State Community Action • Legislature • School Districts Section III Page 40 Delaware Rural Health Plan Planning today to improve the lives of tomorrow June 2000 Policy Recommendation 9: As a matter of public policy, commit to ongoing collaborative planning and strategy for health improvement in Sussex County. • Build and expand upon the positive experience of DHI by encompassing a larger representative constituency including County Administration, DIMER, MCOs, employers/business; School Districts, faith communities, and consumers. Policy Recommendation 9 Suggested Policy Collaborators Should Include: · Chambers/Employers · County Administration · DHI · DHSS · Faith Communities · Hospitals · School Districts Initiative Recommendation 10: Set, and monitor progress towards, specific improvement goals for health status, access, planning, and implementation for Sussex County related to key recommendations in the RHP. • Using the value chain model, create and monitor specific metrics of effectiveness and implementation to inform stakeholders and enable assessment of progress; and • Regularly measure against these to provide feedback to planners and funders regarding the effectiveness of goals. Initiative Recommendation 10 Suggested Initiative Collaborators Should Include: • All stakeholders, coordinated by DHI and DPH Section III Page 41 Delaware Rural Health Plan Planning today to improve the lives of tomorrow June 2000 Infrastructure Needs Addressed: The ongoing need for upgrading and maintaining roads, sanitation, public safety, telecommunications, and transportation in Sussex County. Policy Recommendation 10: As a matter of public policy, continue support of community infrastructure improvement initiatives, including ongoing planning and upgrading based on a sound understanding of the growth and use characteristics of the region. • Continue to support, and expand as needed, community improvement and decay prevention programs such as the SCI; and • Develop a mechanism to assess and report on the “state of infrastructure” of Sussex County on a regular basis with the goal of ensuring that evolving infrastructure matches developing needs based on growth, innovation, and natural obsolescence of infrastructure. Policy Recommendation 10 Suggested Policy Collaborators Should Include: · Chambers/Employers · County Administration · DHSS · Department of Transportation · EMS · First State Community Action · State Planning Authorities · State Police Section III Page 42 Delaware Rural Health Plan Planning today to improve the lives of tomorrow June 2000 Table III-1: Summary of RHP Recommendations Category Initiative # Policy # Page # Brief Description 1 30 Support and enhance existing initiatives focused on improving infant and perinatal outcomes. Infants/Perinatal 2 30 Implement Medicaid reimbursement and procedural reforms that eliminate barriers to the provision of prenatal care in the first trimester for eligible and presumptively eligible pregnant females. Child/Adolescent 3 31 community focused initiatives to support family unity and child and adolescent healthy lifestyles. Child/Adolescent 1 31 Implement and market a peer support and advisory system for Sussex County teens. Child/Adolescent 2 32 Support the expansion, depth, and optimal utilization of SBHC services. Adults 3 33 Undertake intensive and coordinated injury prevention education efforts targeting motor vehicle crashes, workplace injuries, and substance use related injuries. Adults 4 33 Undertake intensive diabetes mellitus health improvement initiative. Geriatric 5 34 Undertake a formal data collection and planning initiative, with a specific Sussex County and local community focus, to better understand the health and social service needs of elderly adults currently and for the next decade of anticipated high geriatric population growth. Geriatric 6 34 Use the output obtained from the above to inform and execute a recruitment strategy for geriatric specialists, physician extenders, and primary care physicians with an interest in caring for the elderly, to Sussex County. Mental/Behavioral 7 35 Develop a behavioral health provider staffing plan, as well as an active recruitment and retention strategy, for mental and behavioral health practitioners for Sussex County, which ensures adequate provider staffing and access for county residents. Mental/Behavioral 4 36 Review practitioner licensure regulations and MCO network credentialling requirements with the goal of permitting, and enabling reimbursement for, the supervised practice of behavioral health counseling and therapies by qualified prelicensees during their periods of practical professional training. Cultural/Minority 5 37 Establish dialogue and a mutually receptive environment between key employers of ethnic and racial minority residents and their workers in health planning activities; Solicit multilateral long term participation in strategy development. Infants/Perinatal Actively plan, implement, and promote family and Section III Page 43 Delaware Rural Health Plan Planning today to improve the lives of tomorrow June 2000 Cultural/Minority and Access 9 38 Actively support, pursue, and create opportunities for nontraditional access to health care services attractive to racial and ethnic minority as well as non-minority residents of Sussex County. Access 6 39 As a matter of public policy, encourage the statewide consolidation and reorganization of existing resource compendia and directories into a master directory of services. Leadership and Planning 7 39 As a matter of public policy, mandate the collection and distribution of all statewide health (including vital statistics) demographic, epidemiologic, and sociologic data on at least a county level and preferably on a ZIP code level. Leadership and Planning 8 40 As a matter of public policy, support and encourage leadership development within ethnic and non-ethnic communities of Sussex County. Leadership and Planning 9 41 As a matter of public policy, commit to ongoing collaborative planning and strategy for health improvement in Sussex County. Leadership and Planning 10 41 Set, and monitor progress towards, specific improvement goals for health status, access, planning, and implementation for Sussex County related to key recommendations in the RHP. Leadership and Planning 10 42 As a matter of public policy, continue support of community infrastructure improvement initiatives, including ongoing planning and upgrading based on a sound understanding of the growth and use characteristics of the region. Section III Page 44 Delaware Rural Health Plan Planning today to improve the lives of tomorrow June 2000 Table III-2: Master Table of Suggested Collaboration Agencies/Advocacy GroupsCDCCHEERChambers/EmployersCounty AdministrationDHIDHS/DAAPDDHSS/(all other) DHSS/DPHEMSFaith CommunitiesHospitalsLegislatureMCOsSchool DistrictsState PoliceOther Initiatives 1 x x x x x x 2 x x x x x x 3 x x x x x x x 4 x x x x x 5 x x x x x 6 x x x x x 7 x x x x x 8 x x x x x x 9 x x x x x x x 10 x x x x x x x x x x x x x x x x x Policies 1 x x x x x 2 x x x 3 x x x x x 4 x x x x x x 5 x x x x x x x x 6 x x x x 7 x x x x 8 x x x x x x x 9 x x x x x x x 10 x x x x x x x Section III Page 45 Planning today to improve the lives of tomorrow Delaware Rural Health Plan Section IV Leadership and Staffing Delaware Rural Health Plan Planning today to improve the lives of tomorrow June 2000 IV. Leadership and Staffing Introduction Leadership and staffing are key to successful implementation of policies and targeted initiatives developed as a result of the RHP. Leadership must provide overall vision, direction, and guidance for initiatives, while project staff attends to day-to-day operational issues. Without capable leadership, projects will either fail to “get off the ground” or will be limited in their effectiveness. Issues of leadership simultaneously constitute the key to success, as well as the greatest potential vulnerability for the RHP. Staffing community-based initiatives may take various forms. For large-scale projects, a dedicated program staff may be necessary. For shorter term or smaller initiatives, volunteers or contributed staff time from supporting organizations may be sufficient. Developing leadership for community-based programs is challenging. Collaboration and joint action, while advantageous in bringing organizations together, may also lead to unintended consequences such as diffusion of responsibility, or alternatively stated, a lack of clear accountability. Stakeholders Defined For the purpose of the RHP, “stakeholders” may be defined as organizations and individuals that have an interest in the health of a community’s population and share responsibility for monitoring, assessing, and improving community health. As a group, stakeholders may include consumers, providers, businesses, government, and other relevant sectors of the community. Entities comprising stakeholders may expand or contract in number, and membership may change, to reflect shifts in health issues and strategies that present themselves. Accountable Entities and Shared Responsibility Accountable entities are stakeholders or groups of stakeholders that are clearly identified as “leading change” and which are expected to achieve specific results as part of the community’s strategy for addressing health issues. Realizing the true benefits of collaborative efforts requires a paradigm of shared responsibility supported by all stakeholders. Shared responsibility in the context of health care planning begins as individuals and organizations explicitly take ownership for improving health status, show commitment to collaboration focused on measurable goals, and assume mutual accountability for creating change. The process of creating responsibility for actions in the form of specific accountable entities will differ from problem to problem, from strategy to strategy, from time to time, and from place to place. The basis for designating a stakeholder as an accountable entity may include regulatory requirements, legislative mandates, social pressures, market forces, lobbying, voluntary initiatives, enlightened self-interest or, most likely, a combination of these and/or other factors. Section IV Page 46 Delaware Rural Health Plan Planning today to improve the lives of tomorrow June 2000 Accountability in Sussex County Section III (Strategic Approaches to Improvement – Policies and Initiatives) identifies “suggested initial collaborators.” These represent those accountable entities which must be “at the table” to begin to discuss and advance the RHPs recommended policies and/or initiatives. They are not, in themselves, responsible for staffing or funding recommendations but without their commitment and support, it is unlikely that forward motion can be attained. The following accountable entities are anticipated to play key roles in multiple policies and initiatives and deserve special mention in this discussion: • Delmarva Health Initiative: DHI emerged from the Health Summit of 1998. Its very existence is a reflection of the county-wide appreciation of the value of accountable and collaborative leadership. The membership of DHI is currently composed primarily of hospital affiliated representatives – equally balanced between Bayhealth Medical Center, Beebe Medical Center, and Nanticoke Health Services representatives, including both administrative staff and board members. In addition, a number of state and independent agencies are represented, including the United Way. DHI’s primary role may be characterized as the overall convener of county-wide planning, and thus the “keeper of the RHP.” Going forward DHI will need to take central accountability for advancing RHP recommendations. • Regional/Community Health Coalitions: Other coalitions, such as the regional Health Councils as well as various hospital-affiliated community health boards, provide additional leadership. Ideally, these organizations would maintain active participation with DHI. • Hospitals: The three Sussex County hospitals play a pivotal role both in the communities they serve as well as throughout the county through shared accountability for most urgent care and substantial non-urgent care. Each hospital provides a full range of acute care services and leadership support to projects impacting their distinct service areas. The hospitals are also committed to improving overall health in Sussex County and fully recognize that impacting community health is dependent on many more factors than the delivery of direct hospital sponsored services. Participation in DHI by the hospitals underscores the ability of otherwise competitive entities to collaborate on a larger vision of health improvement. • Other health care providers: Development of leadership among physicians, other medical and dental care providers, behavioral health providers, and other providers is an important strategy for promulgating policies and initiatives that directly impact their practices or agencies. Minimally, these categories of stakeholders need to play a role in project development, from designing the initiative to recruiting participation from consumers who are their clients, and finally to monitoring and interpreting outcomes. • State Agencies: In the course of developing the RHP, interviewees representing both community organizations and state government indicated that Sussex County is often “overlooked,” “ignored,” and/or “not considered,” in state level planning or by state agencies. This occurs even though DPH hosts both the state’s Office of Rural Health and Section IV Page 47 Delaware Rural Health Plan Planning today to improve the lives of tomorrow June 2000 Southern Health Services which have provided valuable support to Sussex County development. • Sussex County Administration: Local government has a major stake in improving health care, social services, and both employment and commerce within the county. It has supported DHI from its inception and is expected to be an important influence on any county-wide initiatives going forward. • Faith Community Leaders: Faith leaders can play important roles in supporting both individual healthy behaviors and enhanced community activism. Indeed, they have demonstrated positive influence on health and infrastructure issues, particularly in the African-American and Hispanic communities. Clergy and clergy-led community efforts can also be influential at the policy level, as exemplified by the Strong Communities' success in drawing attention to inadequate infrastructure. Allocating Resources for Leadership Development and Staff Support Resources allocated toward strategies identified in the Plan should be balanced between direct services and supporting structures (e.g., leadership development, communication, infrastructure, etc.). Indeed, the need for leadership development was highlighted in Section III of the RHP. While direct service resources are focused on eliminating gaps, funding should also be channeled to training leaders, providing staff to develop and facilitate coalitions of stakeholders and accountable entities, and to supporting systems that can deliver county specific, statistical and other data essential to making sound decisions. The RHP has documented the significant need to leverage available resources through concerted shared responsibility. RHP objectives will be best met if leadership is multi-disciplinary, cross-organizational, and inclusive of ethnic, racial, and minority populations. Section IV Page 48 Section V Planning today to improve the lives of tomorrow Delaware Rural Health Plan Funding Delaware Rural Health Plan Planning today to improve the lives of tomorrow June 2000 V. Funding Introduction Consistent with the themes for the RHP, applying business concepts is a useful mechanism to help consider, as well as enable, funding strategies. The RHP is not itself a grant application or a direct funding mechanism. Rather it is a potential guide to local or state agencies for setting funding priorities based on delivering value to Sussex County. Discrete initiative recommendations from the RHP can be extracted and enhanced for presentation as funding requests whereas policy recommendations may create the vehicle for a range of fundable opportunities. The funding necessary to support new initiatives stemming from the RHP can be considered as similar to “startup capital” in the business world where firms seeking to implement new ideas (or “dot.com” strategies) compete for initial funding from external investors (“venture capitalists”). In business, sustained funding is derived from returns on ongoing operations. Sustained funding for rural health initiatives must be justified on the basis of a return on funding which takes the form of improved health outcomes and diminished public spending on illness, accident, or addiction services. The parameters of funding competition thus remain: value, capacity to execute, and potential for “return on investment.” Using the RHP to Finance Health Improvement Firms seeking capital develop business plans and then seek the support of venture capital investors who perceive a potential for a favorable return. Similarly, projects and initiatives identified in the RHP also require “venture/startup capital.” Sources of such funding include private foundation grants as well as both state and federal government grants and allocations. The RHP supports project development by contributing to the justification and/or demonstration of the effectiveness of a program. Funders increasingly require ongoing program evaluation to ensure that programs meet initial expectations. The outcomes can be expressed as improved health status and translated into “dollars saved” in unnecessary health care costs, reduced employer benefit costs and enhanced profitability for business, decreased loss of work capacity, increased worker productivity, and enhanced attractiveness of Sussex County to new residents, businesses, and professionals. Dovetailing initiatives with Healthy Delaware 2010 objectives, for instance, can represent a credible and “pre-qualified” return opportunity. The “grants as venture capital” analogy thus creates a useful framework. The community program or initiative becomes a “business” and external funding sources become “investors.” This approach is particularly relevant in addressing the issue of long-term sustainability. Few external funders are interested in contributing resources indefinitely to sustain projects that are appropriately funded as “pilots.” This reality often leads grantees to focus significantly on the time frame of the grant, whereas the “business planning” frames a longer-term perspective that identifies stakeholders and benefits and seeks internal sources of funding or enhance sustained fundability from external sources. Section V Page 49 Delaware Rural Health Plan Planning today to improve the lives of tomorrow June 2000 General Funding Strategy Process Steps towards a general funding strategy process are as follows: 1. Identify a community need based on observation, data, and an understanding of resource gaps along the value delivery continuum; 2. Understand and communicate the impact of that need in the context of what target customers value and the potential return on investment as described above; 3. Develop a project, service, or intervention that is targeted to address a specific problem (e.g., relieve a “bottleneck” in the value delivery chain) and which “fits” or complements the other initiatives; 4. Define and clearly state the project’s goals, objectives, deliverables, etc. and determine an appropriate budget and return; 5. Identify potential funding sources (e.g., foundation grant, local stakeholders, and federal or state grants or allocations) for whom value delivery is a priority and, therefore, whose goals are complementary to the project goals; pursue multiple funding vehicles if possible and permitted; consider seed funding with “follow-on” sustained funding based on demonstrated return; 6. Receive funding, implement the program and develop a sustainability plan; and 7. Monitor and report performance against goals using metrics that are directly relevant to measurement of return and value delivery and, thus, to enhancing and assuring sustainability. Stakeholders should plan to use the understanding of Sussex County needs, value creation, and gaps in resources, presented in the RHP, to support funding requests. Focusing on these elements will support responsive project development and will increase the likelihood of receiving funding from competitive sources seeking optimal value for invested funding. The process of defining the projects and initiatives is well underway. Section III of the RHP (Strategic and Operational Improvements [Broad Policy and Targeted Initiative Recommendations]) provides broad policy and specific implementation recommendations as they were identified in the development of the RHP. Additional focused planning may be required to create specific business plans for these and to bring them to the implementation phase. Sources of Funding Since value delivery is largely measured in terms of achieving population and health system goals, governmental (federal, state, or local) funding sources should be sought for sustained direct support, in anticipation of population-wide returns or benefits. In addition, private foundations often support the development of effective, efficient, and exportable models for health improvement. The unique “value orientation” of the Delaware RHP, and of projects spawned by it, can provide competitive advantage in obtaining such funding. Consistency with Healthy Delaware 2010, CDC initiatives, and other consensus improvement efforts can support the appropriateness of funding requests. Section V Page 50 Delaware Rural Health Plan Planning today to improve the lives of tomorrow June 2000 Pursuing grant dollars may be expensive in terms of the “person hours” required between developing the grant and securing the funding decision. Not every grant application is successful – few grant writers achieve “hit rates” over 50 percent. Local alternatives to grant funding are appropriate and desirable to seek including, but not limited to, private contributors, grassroots fundraising, and cost sharing from collaborating agencies. • Federal Programs: A wide array of federal programs focused on health already exists. Three major sources of funding are the Health Resources and Services Administration (HRSA)1, the Federal Office of Rural Health Policy (ORHP)2, and the Agency for Health Care Research and Quality (AHCRQ)3. Staff to Delaware’s US Representative and/or Senators may also be able to assist in identifying and facilitating opportunities at the federal level. • State and Local Government: Significant state funding is directed at Sussex County through direct service programs and insurance (e.g., Medicaid, Children’s Health Insurance, etc.). The state has also created the Delaware Health Fund, which provides significant resources to support community health initiatives. Local government may also be positioned to provide financial support to efforts that will result in improved health for local citizens. Healthy Delaware 2010 is funded by DPH and federal sources. The Behavioral Risk Factor Survey is funded through grants. • Private, State or Local Foundations: The duPont/Nemours philanthropies distribute funds for child health in Delaware, operate clinics, and may have an interest in providing additional support to Sussex County. The Robert Wood Johnson (RWJ) Foundation4 is the largest private foundation making grants exclusively in health care and has historically funded demonstration programs. Current areas of interest include access, care of chronic conditions, and harm reduction strategies – all of which link directly to Sussex County needs as identified in this RHP. Information on other foundations can be found though the Foundation Center5. • Local Industry and Business: Depending on the issue, local businesses may be willing to contribute to initiatives. For example, the employer may underwrite a work site wellness program by emphasizing benefits such as reduced absenteeism or lower health care costs. Similarly, promoting access to state health insurance programs for dependents of low income, part time, or non-benefited employees may be advantageous to businesses. Hospitals, under their charitable giving programs, may be willing to contribute to seeding direct service or infrastructural initiatives which directly or indirectly enhance their community mission, benefit residents of their catchment areas, and/or indirectly enhance their attractiveness to a referral base. • Individuals: Support from individuals may take one of two forms: large gifts from wealthy contributors or smaller gifts from broader community fundraising. Expenses associated with fundraising from a broader base of individuals may be significant in terms of “person hours,” mailing, phone calls, etc. Raising money from individuals also may put one in “competition” with agencies that use fundraising as their main source of income and support (e.g., United 1 Internet address: www.hrsa.gov 2 Internet address: www.nal.usda.gov/orhp/ 3 Internet address: www.ahcpr.gov/ 4 Internet address: www.rjwf.org 5 Internet address: www.fdncntr.org Section V Page 51 Delaware Rural Health Plan Planning today to improve the lives of tomorrow June 2000 Way) and which also address health care or social service missions. This speaks for careful consideration of collaborative initiatives rather than stand-alone competitive grassroots fundraising. Section V Page 52 Section VI Planning today to improve the lives of tomorrow Delaware Rural Health Plan Risks and Uncertainties Delaware Rural Health Plan Planning today to improve the lives of tomorrow June 2000 VI. Risks and Uncertainties Introduction Risks and uncertainties denote potential barriers to successful implementation of the RHP. By recognizing these, proactive strategies and planning may be undertaken to minimize risks of achieving less than full value through the RHP. While it is not possible to predict all the potential barriers to success for each initiative and policy recommendation in the RHP, it is nonetheless worthwhile to focus some attention on major anticipated areas of risk and uncertainty for the RHP as a whole. As specific projects are planned in more depth, stakeholders should determine which of the following concerns apply,